Hello. I have suffered from Cholinergic Urticaria for 6 months. I would like to start a thread about Background and Success Stories so we can perhaps find a common link or source. I know there are many scattered success stories but I would like to narrow to the most legitimate ones. So far, I see that diet, skin care, and product elimination cured hivesguy.
I have been on the same diet for 2 months with not much luck. I also have been working out regularly only to notice that my “effective sweat area” has decreased from 50% of my body down to about 10% of my body. Sometimes the hives itch, sometimes they have an electric-like feeling and sometimes it is just tingling. For me, the itch is the worst. Anyway, if you have cholinergic urticaria, please respond with some background and maybe we can find a common link.
Here is mine:
Background: I am 43 years old asian male. I participated in sports all my life and played Division 1 Tennis in College. I after college I took up golf, running and weightlifting. With golf I would get constant exposure to the sun…sometimes for 5 hours a day 3 times a week. Running would also get me exposed to the sun. With the running, I was running marathons about 2 times a year and 1-3 hour runs 3 time to 4 times a week.
I never had any issues with sweating…in fact I always noticed I would sweat more than the people around me and at the end of a run, my shirt AND shorts would be soaked through. (These days I can only sweat on my forehead and lower back. My arms, legs, upper back and chest lost the ability to sweat).
About 6 months ago I had a very bad case of the flu. I caught it from my girlfriend who is a dentist. She gets sick all the time from treating patients. I took some antibiotics and about a week later, I recovered naturally. After I recovered I started working out again and started to notice the tingling. It was very minor at the time and would go away within mins of working out once I started to sweat.
My sweating was normal at this point. I did not have viable hives. After about a month of working out I noticed hives all over my arms, chest and legs after working out. they are flesh colored. I always wear a heart rate monitor when I work out and I noticed that my “easy pace” running heart rate increased about 20 beats per minute. For example I used to be able to jog at 10 min/mile warm up pace at 130bpm and now it has jumped up to 150bpm. It is probably my body overheating and making my heart work harder. I don’t think the higher heart rate is fitness related because I know my body and should be able to jog without getting into anaerobic heart rate zones.
I tried the SCD diet (chicken soup, coconut oil and very bland proteins) for about a month and that made me tired. I am now doing the elimination diet starting with chicken, turkey, carrots and some fruit. Nothing has been working so far but it is possible I have not given it enough time. For supplements, I am taking Neuroprotek, Quercitin – C and mangosteen pills. I am also drinking mangosteen juice twice a day.
In summary, it is possible when I got the flu something in my body got thrown out of whack. Or maybe the antibiotics I took wiped out good bacteria and now bad bacteria is taking over. Or maybe it is a degenerate problem and it was just a coincidence that I got sick and took antibiotics at the same time I first noticed the tingling. I don’t know. All I know is if we can all work together maybe we can get closer to the source. So please respond to my post if you have had any success or if you would like to share your background.
To keep a common language, I would classify your “solution” under the following types “Cured”, “Helped (symptoms)”, “Didnt Work – gave enough time”, “Didnt work yet – not enough time for conclusion”. For my diet and supplements, I would classify all those as “Didnt Work yet – not enough time for conclusion” and the exercise/sweat therapy I would classify as “Helped” but can’t call it a cure because my sweat area is actually decreasing.