To cut to the chase: I’ve had cholinergic urticaria for 3 years, after the first 6 months I found an antihistamine that stopped it so this was much less of an issue, but in the past 8 months that has stopped working and it occurs daily, sometimes twice, and doesn’t discriminate: happens at work, at home, on a dog walk, in the library etc., and recently my entire face has started swelling up too which doesn’t help things
I’m sure people can relate to how this affects me emotionally, but the hardest thing I have is explaining it to people without getting upset, since every time I explain what it is and how it affects me and how there isn’t anything doctors can do to help me I tear up and people don’t really understand why im getting so upset (as they have never had daily violent reactions like I do)
I also feel that family and friends although appear sympathetic they don’t realise how much it affects me, but im not one to go around telling a sob story either. It’s not necessarily sympathy I want, Id just love way of explaining why I ‘dont want to run to catch the early train’, or that I ‘cant to go for that 2 hour hike EVEN THOUGH it isn’t that steep and its a really beautiful day’ without having to go into details.
It sometimes feels like it would be so much easier to have a visible injury like a broken leg then people would perhaps understand.
I’m not 100% sure exactly what sort of advice im really after, but if anyone has anything they could share I’d really appreciate it. I just hate looking like a cry baby every time I have to explain that I’m allergic to my own body when I sweat!
Thanks in advance!
From a UK sufferer xx,