I believe my son may have Cholinergic Urticaria. Please review my details below and advise ASAP.
I think my son may have Cholinergic Urticaria. He’s had the identical symptoms described in this website for about 3 years now. We took him to his pediatrician about 2 years ago for this, and she referred us to a neurologist. She could not figure out what my son had, and both doctors were puzzled.
No diagnoses was ever made and I was told to bring him back if the situation re-occurred. Well today, 2 years later, my son had an unusually much more severe onset (this time he had visual changes which is new), then within 7-8 minutes it subsided and he was fine.
I literally watched the whole event take place as we drove home after eating breakfast at IHOP. He said he suddenly became very hot, and “felt like pins were poking his back and the back of his neck”. I literally watched as large bright red hives ( similar to red welts) came up around his neck, and up towards his jaw line; they were also on his forearms and tops of his hands.
Then he began to blink rapidly (like a fast flutter of eyelids). He immediately rolled the windows down in my car (we were driving) and he then stated he felt like he was getting ready to “pass out”. The hives subsided within 7-8 minutes and by the time we arrived home he was perfectly fine, as if nothing ever happened.
I was terrified as it was one of the worst things to witness, he later described it as “everything started going black, just like when I stand up too fast.” He said he didn’t want to tell me this in the car because he didn’t want to scare me (!?!). I called his pediatrician and spoke to her nurse, she advised me to take my son to the ER immediately.
However, like I said he is perfectly fine now. No signs or symptoms that anything ever happened. So I refrained from taking him into the ER and am trying to scheduled him for a doctor’s appointment tomorrow ASAP! Please feel free to email me and advise. I am very, very concerned about these symptoms, I believe the episodes are becoming much more severe and worsening each time he has one.
Although he expressed no difficulty in breathing during the event, I wondered if this was perhaps a “pre-anaphalactic reaction ” and eventually the breathing will become effected. Should we see an allergist or neurologist? Who? Any help or advice is very much appreciated!
Thank for reading and please contact me should you have a solution or recommendation for me.
Thank you kindly,
Louise (a concerned mother)