Wife’s Eczema Rash is Gone, My Cholinergic Urticaria is the Same

In a recent post, I talked about how my wife had recently developed a strange eczema-type rash on her chest and back. Just to recap, this rash slowly developed over a period of a few weeks, until the rash was getting quite noticeable, and really bothering her.

She was really starting to get aggravated about the rash. She would be sitting in bed, and then start scratching her back, and then her chest. It was itching her quite a bit in her sleep as well.

She also said that while she was at work, it would get itchy, especially when she would get heated. I found that interesting, and in fact, many people with eczema also get really itchy when they get hot. However, I don’t think it is quite such as “prickly” sensation like Cholinergic Urticaria. I think it is more of a typical itch.

I jokingly told her to amplify her rashes by about 1,000 times and then she can know what it is like to live in my skin (and the rest of you). I think it helped her relate to my hives a bit more, as she felt first hand how uncomfortable itchiness can be (although it was still nothing compared to hives).

What Caused My Wife’s Rash on Her Chest and Back?

When my wife first started to get this rash, I was really shocked. My wife has always had gorgeous skin. It is the really clear and smooth type, that has really nice glow to it. In fact, I compliment her all the time on her awesome skin. She never seems to have an issue with eczema, itching, or anything like that.

So whenever she got the rash, I was perplexed. I didn’t really put much thought into it at first, thinking that it may pass or something. But after it started to get progressively worse, I started to give more serious attention to it.

So we started thinking of everything that could potentially be causing her rash & itching. We thought perhaps it was a new detergent we got, but it was supposedly a “hypo-allergenic” brand with no artificial chemicals or scents (made by ALL Brand). So we shot down that idea.

Then, we thought perhaps the shampoo, but she had used that before and had no issues. Then we considered lotion, but she had been using that for a couple of months with no issues. We thought and thought, and couldn’t figure anything out.

But I knew that rashes just don’t pop out of the blue. Something was causing this to happen, and the fact that it kept getting worse made me realize we need to figure it out soon. My logical type of thinking always makes me want to “solve the puzzle.” Perhaps that is one reason why CU has been driving me so crazy, I haven’t yet been able to “solve it.”

Anyway, I kept pondering and pondering about my wife’s rash. I tried to rack my brain to think of anything that has ever caused her to get a rash or reaction. Then suddenly, I remembered that several years ago, she had this cinnamon flavored toothpaste at her mom’s house. When she would use it, her lips would get red and a little puffy.

So I briefly thought about Cinnamon. I also remembered how when she ate cinnamon gum, it would also cause a slight redness around her lips.  So naturally, my thoughts were, “If she gets that kind of reaction from cinnamon on her mouth, then she must be allergic to it. Do we have anything cinnamon she has been eating lately?”

Bingo. I then started thinking about how she recently switched her breakfast meal. She normally eats those Eggo Waffles with syrup. However, she had recently been eating a new cinnamon kind. Furthermore, she also started buying applesauce, and surprise, it too had cinnamon in it. This all happened right at the same time as the rash (give or take a few weeks).

So I jumped up with excitement, and said, “I know what is causing this babe!” She was like, “What?” in a somewhat skeptical tone. And I proceeded to tell her my theory. I reminded her of the cinnamon reactions she had in the past, and then pointed out that her rashes began about 1-2 weeks after she started eating all the new foods with cinnamon in it.

She thought about it for a  few seconds and said, “Oh my gosh Ben, I think you are right.” So she completely cut the cinnamon out of her diet, and her rash slowly improved. It is now completely gone! She is 100% back to normal! So cinnamon was definitely the cause, and once that was gone, so was the rash.

Of course, I have been really happy about it (after all, I solved the puzzle, and prevented further suffering for my wife). I have been rubbing it in her face and saying, “You’re the big RN nurse, but yet I was the mastermind that figured out your rash.” Of course, I am totally joking, but it is fun to play around like that with her. She just replies, “Your right Bennie-Bob, you cured me.” I know, Bennie-Bob is corny, but I like how she calls me that.

Relating Cholinergic Urticaria to My Wife’s Eczema

My wife’s little rash experience was certainly nothing like CU. Cholinergic Urticaria symptoms are way worse, more painful, more itchy, etc. However, this whole experience has really got me thinking.

If I had never figured out that cinnamon was the cause of my wife’s rash, she would have kept eating the foods that were stressing out her system. Her rashes would have persisted, and she would have been miserable for the whole summer, possibly longer. She would have had the rash until one day, by accident, she stopped eating the cinnamon.

Yet I knew something had to cause it. There is almost always a logical explanation for things in life. By keeping in my mind that in fact something had to be causing it, it forced me to continue trying to think of what the “thing” was.

I know that Cholinergic Urticaria is caused by something. At this point, I just don’t know what. Perhaps it is something hormone related. Perhaps there is an allergy that is causing us to do this, and we are completely unaware of it (just as my wife).

But there is no doubt that something is causing this. The second we find out what that “something” is, we can fix it just like my wife was fixed once we recognized the “something”. People don’t just up and get rashes, hives, or anything else for no reason. There is always something causing it. In my wife’s case, it was an allergen which she never really realized bothered her that much, and it was in food she was eating daily.

Perhaps in our case, it too is an allergen. Maybe it is something we eat every day, and we have no idea that this tiny ingredient is causing bad symptoms. Or maybe it is something in the environment such as pollen or dust mites, that is causing our system to go haywire. Or maybe there is something in the water, or an ingredient in something that is causing a delayed and peculiar allergic response. Or perhaps there is some type of virus or something altering our system.

In any event, I definitely know something is causing this, and I strongly believe that if we find that something and remove it from our bodies/environment, we can be cured forever. In my wife’s case, she was cured after about 2 weeks of absolutely no more cinnamon. In our case, maybe it will take 3-4 weeks or longer. But it should slowly creep away, until we no longer are bothered by the itching and prickling ever again. Slowly, we will just start to sweat when we get hot, and we will eventually realize we no longer have hives at all.

There are so many things that could be causing this, and that is perhaps the most frustrating thing. It could be diet, it could be environment, it could be hormonal, and so forth.

At this time, I don’t really think it is a genetic issue. The reason is that in most people it goes away after a period of time, and often stays gone. So to me it sounds like something gets out of whack, and then gets corrected (such as sun exposure/vitamin D, body stops being allergic to something, etc.).

Again, I have made several posts about my diet journeys so far, and they have definitely altered the level of my CU. I am going to attempt some more extreme diets soon, and eliminate some other foods that I suspect I have an allergy to.

Anyway, I thought I would post that today. Also, there is a great thread in the Cholinergic Urticaria forum recently by a member who has been able to really get some sweat, and suspects a cure (even if only temporary). So you may want to check that out.

I will keep everyone updated on any new diets when I try them.

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This post was written by Ben on June 2, 2009

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Cholinergic Urticaria Hives are More Intense, Not Getting an Allergy Test

Hello Everyone!

My Cholinergic Urticaria  (Heat Hives) Has Gotten Worse

Once again, after a crappy diet of mine over the past 2-3 weeks, I am suffering with some new eczema rashes, and way more intense Cholinergic Urticaria symptoms. This all started about 2-3 weeks ago. As most of you know, I have been suffering from a lot of allergy symptoms over the past year. I have had red itchy bumps on my skin, random itchy patches of skin, and stomach issues on occasion. They all come & go, and my diet has been linked for sure to these rashes, bumps, etc.

I have repeatedly noticed during my many diet attempts over the past year that when I eat really organic & healthy, my hives get way better, all rashes clear up,  and my stomach/digestion problems are solved. The hives have never fully been cured by diet alone, but they have significantly improved while on the diet.  Then, just like clockwork, when I eat a lot of processed foods, and foods with any milk, wheat, oats, or other ingredients, it all comes back. I get itchy rashes, and the hives go through the roof in intensity.

I have eaten milk free foods still, but have allowed wheat on occasion, and even ate a few fast food meals over the past 2 weeks. This all came as a result of my wife’s graduation, and other events over the past month that has placed me in a difficult situation of eating foods that I know give me trouble. So I ate foods I know give me trouble with probiotics, hoping it would balance it out.

I have posted about this several times over the past year of this whole diet experience. I have also speculated in the past that they hives may go away on a prolonged diet of organic foods, and combining that with avoidance of known food allergies/intolerances. I have never been able to fully test this theory to a level I am satisfied with, as I have only made it as long as a month or two on the diet–and at that point I either had no will power left to eat healthy, or it was getting too expensive to eat organic. But I suspect it could really help, if not cure, cholinergic urticaria doing so for several months. I won’t lie, it takes an incredible amount of will power to eat only fruits, veggies, and lean meat for a long time.

But anyway, I plan to clean up my diet for a while again. I could barely sleep for the last 2 nights because my skin is so “icky” feeling. It is so sensitive right now, and when I feel the covers touch my skin it just gives me this really light sensation like I am getting chill bumps all over or something. Add that to the fact that I am practically breaking out in hives over the slightest thing, and that is reason enough for me to get the diet back on track for a while.

Allergy Tests Are Way Too Expensive…I’ll Pass For Now

I was talking to my mother on the phone about the allergy test she had about 2 years ago. She was reading me some of the results, and notably, she was allergic to dust mites, milk, citrus, peanuts, oats, onions, and more. I had a lot of known food issues that matched her known allergies. I suppose allergies probably have a genetic aspect to them, so I feel like her test would probably be somewhat similar in comparison, with many allergens over-lapping.

So I decided that so many people on the forum have had an allergy test, and it would be somewhat beneficial to know some of my allergens so I could avoid them for sure. So my mother called up the allergy place she went to a couple of years ago, and inquired about the cost of having a testing performed.

I literally could not believe how much they said…$2,000! Yep, that is right, two thousand bucks to prick your back & give a detailed test result. Holy Moly! I am getting medical insurance within the next month or two (my wife’s benefits finally kick in), but there is still a deductible with that ($500), plus I think we have to pay 20%. So that is still several hundred dollars…yikes!

So I have decided that i am just going to pass on that for now, and possibly forever. Instead, I am going to seek cheap/free ways of finding food allergies by carefully paying attention to my diet, skin, rashes, etc. I will eliminate known food allergies, and then work from there & monitor everything over the course of the next few weeks. I still can’t believe $2,000!! The medical field is robbing people blind these days apparently. Especially since all it does is suggest some things you may be allergic to. It doesn’t even cover every known allergy! Sheesh!

Update on Probiotics Supplements

I have stopped taking the probiotics for my digestion. It didn’t have any effect on the hives at all. It maybe helped my digestion a bit, but nothing major. So I will not continue to take them at this point (unless I eat something bad, which I plan to avoid at this point).

There are some reports that it does help some people with eczema or digestion issues, so it is worth a shot for anyone suffering from that. But it didn’t work that well for me.

Update on Wife’s Rash/Eczema/Dermatitis

I think I have figured out what was causing my wife’s rash. As I mentioned in my last post or two, she started getting these little red spots that were itchy on her back, arms, and upper chest.

So I was racking my brain trying to figure what caused this with her. I finally figured out that within the last month, she has switched from regular waffles to these waffles with cinnamon in them. She also started eating this applesauce with cinnamon in it as well over the past month.

So I pointed this out to her, and reminded her how she is allergic to cinnamon. Whenever she chews gum with cinnamon in it (like Big Red), or uses cinnamon toothpaste, she will get a big red area when the cinnamon product touches her skin (such as around her mouth).

So I think that is probably what is causing her rash, and hopefully it will clear up by the end of the week. It did give her an idea of what it feels like to suffer with itchiness (she normally has flawless skin). But a little itchy rash is still nothing compared to my Urticaria Cholinergic.

Conclusion: Cleaning Up the Diet for a While

So I just wanted to give a few updates on the allergy test thing, talk about the hives, etc. I will definitely clean up my diet majorly over the next week or two, and I suspect the rashes/hives will improve.

I still can’t wait to get a house within the next few months. Then, I can really eat organic, remove dust mites, filter the water, etc. I expect I will really be able to beat this hives thing!

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This post was written by Ben on May 18, 2009

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