Happy New Year Cholinergic Urticaria Sufferers!

It has been a little while since I have posted on the cholinergic urticaria blog, so I thought I would write a quick update post on a few things. First and foremost, I hope everyone had a great holiday season, and I hope 2010 brings some awesome things to us all.

I like to constantly examine my life and analyze it so that I can learn as much from it as I can. My wife and I had a year of big ups and big downs in 2009. Here is a quick recap of those:

Positive things that happened to me in 2009:

  • My wife Graduated from Nursing School with her RN-BSN degree (a big dream come true)
  • My wife got a job immediately after graduation (which is great considering the state of the economy)
  • We bought our first house which was a dream come true (something I have wanted for years) and we love it
  • We grew many more members on the forum of this site, and some of my other websites have grown in terms of income and traffic
  • I feel like I have matured and grown as an individual
  • I have decided to change my career path/business strategy slightly after agonizing and stressing for the last year, which I hope works out well

Negative things that happened to me in 2009:

  • My wife’s younger sister passed away, which basically devastated the entire family, and we (my wife especially) still struggle with it.
  • My Cholinergic Urticaria didn’t go away, which is something I had hoped for.

So there are the big highlights. Some big dreams came true, and some big tragedies also happened. That’s life I guess. But overall it was a good year considering.

My Plans and Hopes for 2010:

I am optimistic about 2010, and I feel like I have a fresh start in life or something. I now have my house, my wife is done with school, and I am going to be experimenting with different career/business ideas. I hope and pray it turns out to be a good year. My resolutions are as follows:

  • Work extremely hard on “finding my purpose” in terms of my career, and pray it works out well and is successful
  • Get in better shape and exercise more
  • Try to eat healthy, but I will allow for the occasional treats
  • Work really hard on trying to be happy with what I’ve got, and who I am. This is something I struggle with as I am a perfectionist and when I feel I am not doing well in an area in my life, I worry a lot about it. Hopefully I can just be more positive in this regard and accept life for what it is, while working hard and striving for happiness in all areas.
  • Re-read the bible, and continue my studies in religion and life

How My Hives Have Been Doing, and How My Thinking Has Changed

My hives have still been here of course, and they are about the same in terms of intensity/frequency. I do find relief most of the time in my house because we don’t turn the thermostat on at all, and only use space heaters when we need them (and try to only run them as short of length as possible).

This saves us so much money on electricity (our previous one was $42, and our most recent was $70–not bad for a 3 bedroom house with a basement too). It also means that in rooms where we don’t have the heaters, it has gotten as cool as 40 degrees. But I enjoy it and just put a sweater on or something, and use my space heater to ensure I don’t get too cold.

It has also been a huge help that my wife basically has taken over many tasks that used to cause me a hives reaction. Like returning an item to walmart, my wife does that for me. She has also took postal packages for me when needed, even done shopping for me, going in to Subway and ordering our subs, and so forth.  I am very appreciative of that fact, because it has helped me avoid many potential hives attacks and frustrations. In fact, it has been a while now since having hives in public due to this fact.

I have also pondered my hives a lot, and my thinking has changed a lot on cholinergic urticaria as of recent. It is funny because I really went through a process, and I will continue to progress through this situation. Like people say you have a process when you know you are going to die (like denial, anger, fear, acceptance, etc.) My hives have played out in a similar way:

  • First I was confused and frustrated as to why my body was getting this tingling/itching sensation. I was really confused, had no idea what was happening to me, which was scary. I thought for a time I might be dying or have cancer or something. It didn’t help that the doctors didn’t know what it was either, which really freaked me out.
  • Then, over the years, that confusion settled down once I realized I wasn’t alone, and my condition had a name, and didn’t appear to be fatal. That helped a lot. The confusion over what I had, however, soon was replaced with anger and a deeper confusion. I began asking, “why me?,” and more importantly, “what the heck is causing this cholinergic urticaria, and what can I do to treat it?”
  • This then led to a period where I logically thought, “I know what condition this is, and I know something must be causing this, so what?” At that point I tortured my mind day and night trying to find a practical solution to curing the cholinergic urticaria symptoms. I did everything from putting myself through difficult diet regimens and even fasting, experimenting with antihistamines, to working out, to exposing myself to the sun, to vitamin supplementation, anti-yeast medication,  and more. None of this seemed to do the trick, which led to even more frustration and feelings of failure and hopelessness.
  • At this point, I think that I am finally in the “acceptance” phase. Given all of the research, experiments, and more, I have finally realized this fact about cholinergic urticaria: I have it, and w hile I don’t know everything about it, I must live with it the best I can because there is basically nothing I can reasonably do about it. At this point, I have no other option than to simply, “live with it, and get over it.” I know that I may have this off and on during the majority of my life (although I try to remain positive that it will go away soon for good). I also know that there is basically nothing I can do in terms of medication, unless I do heavy duty drugs (such as steroids), of which I don’t want the side effects that come along with it.  But I am no longer going to put myself through this mental thing that I can somehow cure it. I have given it my best shot, and done everything I reasonably can.

Even if they can find out the exact mechanisms and cause of cholinergic urticaria, I honestly don’t think they would be able to do anything about it without giving some heavy medications that could potentially mess up other things in the body. So that is how my thinking has changed over the years since living with this condition. I hate the hives, but I deal with it. It has messed up my life in many ways and has limited what I am able to do even on a daily basis, but whining about it doesn’t solve anything either. And in the end, I need to be thankful for what I have, and learn to deal with those things I don’t have (like perfect health).

In any event, that is a quick update on some of my thoughts, and a quick recap of the year. I hope you all have a slammin’ 2010, and many of your dreams come true. I also hope and pray this is the year that our hives may mysteriously disappear for good. Stay positive, keep fighting, and learn to manage your hives as best as possible (both mentally and physically).  Till next post,

Ben (HivesGuy)

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This post was written by Ben on January 8, 2010

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Happy Halloween My Fellow Cholinergic Urticaria Hives Sufferers!

Happy Halloween my little hivites!

Whew, my wife and I have been totally busy (working like 14 hour days) trying to get moved in, remodeling, repairing, cleaning and all sorts of things. I have barely had time to blog, and I have only crept around the Cholinergic Urticaria forum as of recent (although I haven’t posted there lately, I have read each post and hope to catch up soon).

We absolutely love our house, and we have been painting, repairing, and all sorts of things. It has taken forever, however, the house is starting to look really great on the outside (almost like a new one). I have only re-done 1 room on the inside so far, and I have done a lot of painting on the outside (the shutters, doors, etc.), plus a few repairs.

I can’t wait to do more remodeling, and at some point I may try to take pics of some things I have done and post them so you can see what I’ve done.

I have had some crazy things happen during all of this work. One day I decided to pressure wash the entire outside of the house (it is white siding). While I was doing it, I got stung by a bee in the ear. I was a little worried that I might go into a crazy reaction or something (considering my wacky immune system), but luckily I didn’t (it sure hurt though).

I also got stuck on my roof for a while (hehe). I was getting up there because our ridge vent (that’s the metal looking thing that tops a person’s house) seems to be leaking a bit.

So when I got up there, the shingles were wet from recent rain, and I almost slipped off. I was lying flat on my back holding on my roof for dear life, afraid to move because each time I did, I slid a bit. Plus I hate heights with a passion (they just freak me out).

Add to that the fact that the ladder I was using wasn’t nearly tall enough (I barely made it off/on the roof), and I was stuck up there for like 10 minutes holding on for dear life.

My wife kept laughing so hard she was crying. I was like, “Stop laughing at me, I am being serious….I am about to fall off of this dang roof!”  Meanwhile my wife kept laughing and saying, “Oh my gosh, I am so sorry, what can I do to help, I am trying to stop laughing,  ha ha ha, hehehe…”

It was funny though looking back, and I made it off safely. I then learned to put the ladder in the back of my truck so it can reach better next time (which worked out to be a great idea). And I was right, a few nails have backed out on the vent, and I will repair it later this week.

Update on the Hives Situation

The hives have actually been quite a bit better, although I still have them. I have had a few itchy attacks, but they were very light, and I have even been sweating a bit, which is a treat.

I think being able to really focus and work extremely hard has helped. I was so tired one day, I literally didn’t have the energy to have a hives attack! I have even had a few days that I didn’t even get prickly, and instead just sweat a bit.

Plus I think the hot weather, combined with my extreme focus on the work has made the hives less intense. I love it! I am optimistic about being able to really manage the hives way better here, and so far it seems to be true.

Well, that just about wraps everything up. I hope everyone has a very safe and itch-free Halloween! Be safe, and don’t do anything crazy!

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This post was written by Ben on October 31, 2009

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