Title: Facial Edema (Swelling) With Cholinergic Urticaria Hives Post by: bbroom on October 06, 2008, 10:54:55 PM
If i stay out in the sun (like at the beach) to the point of getting a slight sunburn, my forehead swells. the following day, the fluid seems to drain towards the eyes and nose region. this creates what my loving children describe as “mama’s lizard face” the fluid literally puffs up my eyes and cheek area as to give the appearance that i have no bridge to my nose. honestly, it is quite comical. during these couple of days, until the fluid disappears, it certainly gives botox a run for it’s money.
my skin is so tight from the build up of fluid, that i could not make a frown line or wrinkle up my nose if I wanted to. what an extreme way to banish wrinkles. lol
I was curious to find out if anyone has had a similar experience?? bbroom
Title: Re: facial edema Post by: HivesGuy on October 07, 2008, 05:40:41 PM
No, I never get any type of swelling reaction like you described. I’ve had a couple of mild sunburns since I’ve had cholinergic urticaria, but I have never had any severe swelling or unusual blistering. Only mild redness of a regular burn, followed by the “peeling” most people get.
It sounds like that is pretty severe reaction to the burn. Has anyone else on this forum ever had this type of reaction??
Title: Re: facial edema Post by: brockham on October 08, 2008, 03:23:57 AM
Sounds like you have more angiodema than Cholinergic Urticaria?
Title: Re: facial edema Post by: bbroom on October 09, 2008, 08:07:43 PM
SOME TIMES I FEEL THAT MANY OF THE WEIRD MALADIES THAT POP UP , WE AS Cholinergic Urticaria SUFFERERS, AUTOMATICALLY ATTRIBUTE THEM TO ANOTHER SYMPTOM OF THE CONDITION. AS ALWAYS WE ARE LOOKING FOR A CAUSE AND EFFECT AND HOPEFULLY THE SOLUTION. MY PALMS AND SOLES OF MY FEET GET EXTREMELY SENSITIVE IF THEY ARE EXPOSED TO COLD. YES I HAVE MEDICALLY RULED OUT CIRCULATORY PROBLEMS AND CONTACT DERMATITIS. NO ONE HAS RULED OUT THE POSSIBILITY OF MY HAVING A SLIGHT ALLERGY TO COLD AS WELL AS HEAT. LUCKY ME!!
Title: Re: facial edema Post by: billysielu on October 10, 2008, 10:12:18 AM
I sometimes get covered in small dots, looks like measles, but they pass quite quickly. I currently have blotches on my inner elbow, which looks like I’ve been taking heroin (I haven’t). I can squeeze them and opaque white gel comes out, similar to a normal spot, but whiter and thicker. Maybe it’s histamine, -shrugs-.
Title: Re: facial edema Post by: Newear2006 on October 10, 2008, 06:30:32 PM
On a sidenote I think the caps-lock key on your keyboard is stuck (its on the left side; the one with the light) could you tap it a bit again! Maybe this time it goes off 🙂
Title: Re: facial edema Post by: bbroom on October 10, 2008, 08:18:57 PM
Title: Re: facial edema Post by: Newear2006 on October 11, 2008, 03:38:44 AM
Btw bb have you tried any other form of therapy like homeopathy, accupunture etc.? would love to know!
Title: Re: facial edema Post by: bbroom on October 11, 2008, 02:22:46 PM
As i have said, the use of Singulair with an antihistamine has provided the best response so far. But I am always looking for something that will halt this condition completely.
Title: Re: facial edema Post by: HivesGuy on October 11, 2008, 04:51:26 PM
As i have said, the use of Singulair with an antihistamine has provided the best response so far. But I am always looking for something that will halt this condition completely.
Yeah, I agree that it is best to try to find something that 100% eliminates this. That is what I want more than anything. I dream of being able to just run outside, or work out, or whatever and just sweat and never again feel the pain and discomfort of cholinergic urticaria.
By the way, you said you tried a gluten free diet, how long were you gluten free? I too am trying cutting out milk and gluten for a few months. I have already done it a couple of times, but only for a month once and a few weeks another time. But I did recently read about a different skin condition caused by gluten (dermatitis herpeteformis), and it will go away only after 6 months to a year of going completely and totally gluten free. So I am trying it for at least 3-6 months, and I will see if it has any impact at all on the hives.
Title: Re: facial edema Post by: bbroom on October 13, 2008, 04:47:21 AM
Title: Re: facial edema Post by: HivesGuy on October 13, 2008, 03:19:46 PM
I just hate this feeling/sensation so bad, I just wish it could be permanently cured or stoped without doing anything harmful to our bodies in the process. I literally hate cholinergic urticaria!
Also, I like the trial and error motto! Hopefully one day we can find a cause. If we find a cause, it increases our chance of finding a cure.
Title: Re: facial edema Post by: Newear2006 on October 14, 2008, 08:46:09 AM
What exactly does that mean? I have been taking homeopathy exclusively for that last 8 months it helped tremendously in the beginning, but alas, it came back! I have also tried ayurvedic remedies/acupuncture/bach flower remedies but it always makes a grand comeback!! Oh forgot to mention antihistamines/steroids as well, I will make a detailed post soon about my trials and tribulations. Hivesguy thanks for making this site! Sorry for my late comeback into this thread :-[
Title: Re: facial edema Post by: bbroom on October 14, 2008, 03:40:30 PM
Title: Re: facial edema Post by: Newear2006 on October 15, 2008, 07:01:00 PM
Thanks for your detailed and prompt replies bb, much appreciated!
Title: Re: facial edema Post by: bbroom on October 15, 2008, 09:00:02 PM