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Cholinergic Urticaria Forum (Chronic Heat Hives)
September 08, 2010, 05:09:11 AM *
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 1 
 on: Today at 03:03:20 AM 
Started by GenCruini - Last post by GenCruini
Hi ;-)
I am thinking about present for my dad. This must be a birthday present, he is 42 years old.

I was googling this for 5 hours. Today I found this:
Konica Minolta Bizhub 250 - http://www.ps2netdrivers.net/manual/konica.minolta.bizhub.250/

I don't know if it is good present for my 42 years old dad. What do you think?

 2 
 on: September 07, 2010, 05:21:41 PM 
Started by BlueFish - Last post by HivesGuy
Hey BlueFish,

Interesting post, and welcome to the forum!

So you have had this for nearly 23 years? Is that right? Wow.

You said in the last 10 years you haven't had major incidents--just curious--do you mean no major attacks but you still deal with it daily, or what? Do you take meds, or just manage it yourself? I'm interested to hear because these longer cases always fascinate me. I feel like I will probably have it for a long period of time too.

About the body temperature sensing thing--that is interesting. I remember reading how some people can control their blood pressure and/or heart rate simply by thinking about it. So maybe we can control our temperature in a similar way.

I definitely think I could break out in hives at will. Even in a cold setting--if I focused really hard, I am sure I could develop hives quickly. I have never tested your idea, but it seems logical. I don't think I can lower my temperature, but I am sure I could raise it by thinking about it. I don't have a temperature gauge, or I would test it.

 3 
 on: September 07, 2010, 03:45:15 PM 
Started by BlueFish - Last post by BlueFish
I was diagnosed with Cholinergic Urticaria in 1987 or so. The last 10 years have been better - no major incidents. However, one thing that I have noticed over the years is that I can adjust my body temperature. For example, I can cup my hands around a temperature senor. After 5 minutes, the temperature reading stays at about 91. Then, I replay in my mind the sensation I get just before a Cholinergic Urticaria incident, and I can raise the senors reading to about 97 in about 8 minutes. And then when I stop thinking about it, it drops down to 92 over 10 minutes. Is this a one-off, or can anyone else with Cholinergic Urticaria test this as well. It is repeatable, and best results are with full body heat - not hands. After lengthy research on Cholinergic Urticaria, I think there may be a connection.

 4 
 on: September 07, 2010, 12:53:18 PM 
Started by cyruschn - Last post by HivesGuy
Thanks for the info!

If it is working for you, and your doctor says it is safe, then stick with it!

I have recently tried a shot of steroids, which I am hoping will help decrease my intense flare over the next few weeks. I am also on a new antihistamine. So far it is too early to tell if they will help though.

Good luck with your treatment.

 5 
 on: September 07, 2010, 12:50:23 PM 
Started by Motion - Last post by HivesGuy
Thanks for the update Motion. I hope they stay manageable for you. Lately mine have been crazy.

 6 
 on: September 07, 2010, 12:48:00 PM 
Started by bethiemt - Last post by Snuff
i just got back from arkansas and humidity helped me. my hives cleared up wayyy longer and faster when i was there and since i got back my hives have remained calm. no hives in like 5 months. only a few stings i barely notice

 7 
 on: September 07, 2010, 12:42:35 PM 
Started by Snuff - Last post by Snuff
hey! srry my reply took so long. i am phoneless and now got computer. ok this is how i did it. soon as it got to the 80s outside i started excercising outside ad it sloooowly helped. it also helped that smebody made fun of me because of my hives so that made me push harder. it was a painful process but not too bad. ive kept them at bay since april or may and it is now september. i think they will come back full forcewhen the cold air does but for now im enjoying life. its been great. i even got married to my beautiful wife while my hives have gone on vacation:) but yeah you have to really want it to be hives free and it hurts at first but it was worth it. good luck and i hope you can enjoy the rest of the summer or next summer hives free as this summer is ending soon:(

 8 
 on: September 06, 2010, 09:26:58 PM 
Started by Motion - Last post by Motion
Since it's the end of summer I wanted to come back with an update. For most of this summer I've continued to be basically hives free even on the hottest days. I've continued to use the Dial soap and Sure deodorant for the whole summer. I can still feel some itching sometimes like in the shower but it's usually mild and doesn't breakout beyond that. Now I'am waiting to see how things go this winter.

 9 
 on: September 06, 2010, 09:04:49 PM 
Started by cyruschn - Last post by cyruschn
Lately i have been taking 5- htp and it has been making my hives 10x more manageable

1. First It relieves depression and anxiety so it improves my condition a lot. You also get tons of motivation to do things and it makes you very happy

2. second it promotes healthy sleep patterns and good sleep is good for your skin

3. Third it decreases appetite and makes you feel more satisfied(when you eat less it seems to make the condition better)

This stuff is amazing you can get it at health food stores like henry's and i highly suggest you buy it.

 10 
 on: September 06, 2010, 11:47:15 AM 
Started by Joeshep - Last post by Joeshep
I think with me it's because when I have a reaction, it takes so much more concentration just to do the most simplist of tasks, that I sort of transfer this hightened concentration even when I'm not having a reaction. Can anyone relate?

Because the reactions are impossible to control, it can become quite scary and intimidating in a sense because for those 10 minutes or so, you are so vunerable and suseptible to a whole host of out of control emotions. I sort of find myself protecting my self interests all the time.

I have so many routines now as well. I think I've developed a bit of OCD. I think I try to make up for the unpredictability of this condition by making sure the things that I can control never change.


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