Use this form to submit your hives question (or an article sharing your opinions, thoughts, or experiences) for the Cholinergic Urticaria community to read. Your question or article will appear on the cholinergic urticaria forum. As a rule of courtesy, if you ask a question, please try to answer someone else’s question, as this encourages a sense of community […]
Potential Cure: Try a Portable Sauna
Hi all, I have suffered from what I will refer to as “the itch” for about 2-3 months now. I don’t believe the itch is cholinergic urticaria because I get no rashes or visible spots on my body whatsoever. I believe the cause of this issue is mainly psychological. For example, if I think about […]
I might as well die than deal with this
I’m at a breaking point. I have been dealing with cholinergic urticaria for a year. I am only 16, and I don’t know how much longer I can deal with this condition. My life before I started experiencing these hives was so much easier. I want to go back to that point in my life […]
Hives, Urticaria Nightmare: My fight with it
Hives, Urticaria Nightmare I have been a patient of chronic idiopathic urticaria, what it means in a simple term is that you can get hives without any reason. I have suffered from this disease for almost 8 years. In the start it was just a pressure urticaria. That means I used to get hives on […]
CU and Body Temperature
For you guys with CU, has anyone been experiencing changes in body temperature? I’ve always had a hot body temp, which has caused trouble for me to sleep at night which I think is from working out a lot. But ever since CU kicked in for me, I feel like this issue has gotten out […]
My Cure For Cholinergic Urticaria :) !!!
Hello everyone. I am 20 years old, and I used to suffer from cholinergic urticaria. It started August 2016. Soon after I’ve came across this website to find that I was not the only one going through this. I don’t want to talk much about the pain I went through, more what I have done […]
Can cholinergic urticaria be infrequent?
I was wondering if its possible to only get this sometimes? I’ve had hives three times in the last three years. All three times occurred after I got out of a hot shower. Sometimes in the gym I get really itchy, but I refuse to scratch myself. And I know this happens sometimes when I’m […]
My urticaria might be cured!
As an 18-year-old I suffered terribly from urticaria in the form of horribly itchy hives when ever I overheated, whether it be through exercise or through embarrassment or any other reason I got hot. This continued for a few years and then reared its ugly head again about 30 years later, and I’ve been suffering […]
Joy has gone out of my life today
Hey, guys. So it’s been a while since I’ve been on this forum, my last thread was: “I am sweating again, no itching!!” Well basically my journey with cholinergic urticaria has started last ~autumn after using steroids, but it might be just a coincidence, maybe not the steroids started it. Anyways, it was horrible, and […]
Benadryl seems to work for cholinergic urticaria
So this itching problem started 3 years ago for me. It happens during the summer and lasts about 2-3 months. It resurfaces about every 3 years. I don’t know if what I have is cholinergic urticaria, but it sounds like it. Basically my skin feels prickly and itchy whenever I’m out in sunlight, when I’m […]
Cholinergic Urticaria with Eczema and Allergies?
Hello there, I’ll try and make this short. I’ve only recently been diagnosed with cholinergic urticaria, but believe I’ve had it majority of my life, believing my symptoms where involved with my eczema diagnosis. Before figuring out it was CU, I went through many different doctors and tried many different things: allergy testing (which was […]
Cholinergic Urticaria for months- Effectiveness of Gluten Free?
I’ve had CU symptoms for months now- red bumps (hives) from working out, and itching all over from sweating, showering, and going outside in the heat. I saw a doctor, who recommended an antihistamine, and after trying several, it has not done anything. With the itching becoming unbearable and getting in the way of my […]
Seemingly Incurable Hives
I’m 20 years old and have been getting heat-induced hives on and off for years, but the past year has really taken a toll on me. I was finally diagnosed with cholinergic urticaria earlier this year. My hives don’t tend to appear immediately, but they appear in the morning when I wake up either as […]
Further observations and my plan of action
Hi all, I posted a few weeks ago talking about geographically varying CU. I have become inspired to get rid of cholinergic urticaria once and for all after symptoms recently worsened and therefore spent the last week reading and researching extensively, keen to build up an understanding of what might be going on. Below is […]
Suggestions on how to deal with CU? Nothing has worked for me yet.
I’m an 18-year-old male, and I’ve had cholinergic urticaria for about a year and a half now. But it’s only been unbearable for the last 6 months or so. Around spring 2017 I started noticing that my skin would get itchy and irritated, but it was never unbearable and I could still live my normal […]
My cholinergic urticaria story and various questions
Hello everyone! I’ve had CU for 3 years now. I tried nearly EVERYTHING to get rid of my hives, and only one year ago did I discover that sweat therapy works for me. I go to the sauna at least four times a week and this keeps my CU at bay. Despite the fact that […]
Mold Theory! Lots of Info!
Hi fellow prickly people, my names Lukas, and I too break out in a terrible prickly feeling all over when I get hot or anxious. I started getting this very uncomfortable sensation in my late teens like many others did. I know that many of us understand that sweating has something to do with this […]
Alternative methods that have worked for anyone?
I’m 22, and I’ve had this dreadful cholinergic urticaria for almost a year now. Reading some of these posts about how people have had it for way longer (some for over a decade), it kills me to know that I might have to live this way for God knows how long too. I had tried […]
Geographically dependent variables affecting cholinergic urticaria
Hi all, I’m 22 years old, male, and have been suffering from cholinergic urticaria for around 7 years. Although it does not usually affect me on a day to day basis, I have had to adjust my life for this to be the case. I used to do a lot of exercise and hate leading […]
Cholinergic Urticaria In Remission, Hopefully Gone soon
My Story: It was September of 2017, and after three years of living in Nashville, TN, I opted to quit my job and move back to my parent’s house in Georgia. At this time my father was in New Mexico beginning his new job. My mother, who isn’t in the best of health, was all […]
6-year-old with cholinergic urticaria?
Hi everyone! My son recently began to complain of severe burning and itching every time we would step outside, the walk from the house to the hot car (we live in Florida), or even being inside but starting to jump around. He screams and cries and scratches all over his body. However, if he’s calm […]
Humidity – change of environment
I am a cholinergic urticaria sufferer for 8 years now, living on the Pacific west. It’s only been unbearable the past year or so. I’ve been taking Allegra for the past 6 years? Maybe the effects are wearing off? I recently took a trip to Thailand for vacation and the weather was low 80s, high […]
A Blessing and A Curse
Hello, my name is Alex, and I’m a 20-year-old male from Canada. I want to share my story and experience with cholinergic urticaria. I first noticed the itchy, stinging feeling when I first turned 17 (September). Like you all, I would feel an attack coming on when I would get nervous, hot, or exercise. I […]
Journey to get rid of cholinergic urticaria
Hello, I’m a 16-year-old girl who lives in California. It gets very hot where I live. Before I developed cholinergic urticaria, I used to take hot showers, and the only thing that happened was that my knees got very splotchy red, but I never thought about it. Suddenly, after I had an allergic reaction with […]
Cholinergic urticaria is probably getting better
Hello, everyone. (My English is not very good…sorry. Google translate will help me.) I’m a boy of 17 years who lives in southern France. I’ve suffered from cholinergic urticaria since November 2017. The first time I saw cholinergic urticaria was when I was running to catch my bus. I saw some little button on my […]
Anyone tried a low-histamine diet whilst taking a DAO supplement?
Just wanted to know if anyone’s tried a low-histamine diet whilst taking a DAO supplement, and if they’ve had any improvements on their cholinergic urticaria? -Ethan
How do I go about an allergy elimination diet as my last resort?
I’ve been dealing with cholinergic urticaria for around 5 years now, and it’s only been getting worse. This year, I started exhibiting more and more troubling symptoms such as constricted throat, wheezing and more hives. I pretty much have tried every single thing (medication, sweat therapy, lifestyle changes, exercise plans, etc) besides an allergy elimination […]
For those whose cholinergic urticaria went into remission and came back, when it came back was it better, worse or the same as before?
Just a brief background, from fall to winter 2015-16 I first got hives. It was very painful and made noticeable little red dots appear on my hands and arms whenever I got hot or nervous, and it was awful as I’m sure you all understand. That summer it went away totally, which I attributed to […]
Unbearable amount of cholinergic urticaria…how can I treat this?
Hello everyone. I have been suffering from cholinergic urticaria for years now, and this summer it has taken a turn for the worse. My symptoms have become worse (more hives, itching, wheezing), and I have a breakout at least once an hour every single day. As soon as my body gets a bit warm/hot, I […]
Cholinergic urticaria not getting better
Hello everyone. I’ve been suffering from cholinergic urticaria for over 4 years now, and my cholinergic urticaria has slowly gotten worse over time. Since it’s summer, I’m experiencing CU multiple times a day. I’ve tried sweat therapy a few times, but it doesn’t really help; and it’s close to unbearable for me. Recently, I have […]
New treatment method with fantastic success rates
I’m not sure if anyone has mentioned it yet, but pretty recently (about 150 days ago) a drug called Xolair (brand name) has become the guideline drug for what to give urticaria patients that don’t respond well to the normal antihistamine treatments (i.e. doesn’t help much). It’s an injection that you get at the doctor’s […]
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