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Update on Another Cholinergic Urticaria Sufferer

January 15, 2009 by Hivesguy

Hello Everyone!

A while back I had mentioned that my mom had a friend whose husband has had cholinergic urticaria on and off.  He has never been diagnosed with Cholinergic Urticaria, instead the diagnosis was “dry heat allergy.” But his symptoms are basically Cholinergic Urticaria symptoms so I assume that is what he has.

Anyways, in my last post I indicated how he had the condition for a few years, but then hasn’t been bothered by the hives in a while.

So I told my mom that next time she talked to her friend to get more info on his hives and ask him a few questions. She did finally talk to her friend again, and the guy said he recently had another outbreak of the hives. However, he hasn’t had them for a long time, and it seems as if it was only 1 isolated case.

So the good news is that his hives went away for a couple/few years. The bad news is that he did have another reaction. I think he has had this on/off for several years now. I am not sure when he first got the hives.

It will be interesting to see if they finally go away for good for us, or if this is going to be something that comes and goes throughout most of our lives. Sometimes I feel like it may come and go for years at a time, and it is something we will just have to live through when the symptoms flare up.

Most of us will at least have relief during the summer months.

Also, he said he thinks it is caused by too much Niacin in his diet. Apparently it is just a theory of his, and he doesn’t know for sure.

I have posted on this before, but I am not sure if Niacin has any real effect on cholinergic urticaria or not. It seems from what I can tell online, that Niacin only causes flushing and prickly feelings when someone is taking too much of the artificially made kind. It seems that if you take the natural kinds found in food that it doesn’t have an effect. And plus when  you stop taking it, the flushing/itching symptoms are supposed to stop fairly quickly (within a day I think).

But then again, who knows? I have no idea. Niacin is in almost all major foods, and foods rich in protein (rice, meats, etc.) almost always have Niacin in them. So I wonder if it would help trying to cut back on Niacin rich foods? Maybe, Maybe Not?

Anyways, I just wanted to give a quick update on his hives.

My FAVORITE show in the whole world is about to come on right now (SMALLVILLE), and it is the first episode since the fall break. So I am pumped up! I love that show (I have watched every single episode and season!). Superman is the greatest “story” as far as those things go in my opinion. But I do like the Spider-man/Batman movies as well.

Also, if any of you have anything to add, feel free to open a thread on the forum. I just wanted to give a quick update.

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