I’ve just found this forum and its a relief! I’m a 23 y/o female, and I’ve been suffering from cholinergic urticaria for 8 years now. The onset in the summer of 2010 was fast and extreme. I went from being symptomless to laying on the beach blind and covered in these hives. Let me explain.
I had gone body surfing in the Atlantic ocean, and during this I felt light headed and decided to head back to my family, at this point I had lost all my vision, and collapsed to the ground with hives covering my body. When the reaction went away and we were able to make it to a doctor, we were left with no answers. Through my 8 years it has only gotten worse, although I’ve never had a reaction like that since.
I severely react to what feels like everything: brisk walks, exercise, anxiety, showers, pools, you name it. I’ve tried a host of different medication which would aid in temporary relief but mostly just knock me out, resulting in a two year period where I needed 12 hours of sleep a day.
I’ve read a lot about sweat therapy, and although I’ve tried it’s just that painful to workout. I now not only have hives but become lightheaded, nauseous and blurry vision.
I am desperate for answers because I feel as though I’m living a hindered life.
Any suggestions please let me know,