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A bit of a breakthrough with my Cholinergic Urticaria!

February 26, 2015 by Forum Member

For 5 years I’ve struggled with this annoying as condition. I used moisturizer and Allegra/fexofenadine to combat it under the guidance of my doctor, but of course this is only a band-aid fix for the real problem. Among CU, I’ve struggled with IBS, depression, anxiety, sinusitis and hay fever and chronic fatigue (where I need at least 1 or 2 coffees just to make it through a day of college).

I heard a TV presenter on a health show say he doesn’t have wheat or dairy as it gives him sinus congestion, and I was thinking…you know what? Let’s try going completely and strictly gluten free. For the first 3 days I felt really good, my sinuses cleared up and I was in a good mood, then for the next 6 weeks I went through major withdrawal from gluten (it’s an actual thing, look it up!) my hives got worse, and my sinuses clogged up terribly.

I felt like I was going to faint from lack of energy it was so bad, luckily this was during my holidays!! It’s week 7 of GF diet and I can happily report my IBS is gone, my depression and anxiety is a lot better, my sinuses are gradually clearing up (some days are worse than others, but it’s getting there I’m letting my body heal!)

And last but not least, today I went to the gym with only a bit of moisturizer and NO ANTIHISTAMINE I was expecting the worst, but honestly only a tiny sensation of pin prick pain and I was SWEATING!!! Any normal person would’ve thought I was crazy smiling as I was working out because I was covered in sweat, but honestly my CU has been so bad at times I’ve almost had a crying break down from the pain, my CU is 90% better and totally manageable, I hope it’s 100% gone in a few weeks.

I honestly believe CU is related to some sort of food intolerance as it’s no coincidence people on this forum have reported depression as well. Gluten is the most likely culprit (protein in wheat, barley, rye) in fact I was tested for Coeliac disease 5 years ago when my health started to go downhill because I had symptoms that would suggest it, but the blood test came back negative.. and I was sent on my way without diagnosis.

So it turns out I have NCGS (non-coeliac gluten sensitivity) which isn’t as serious as coeliac disease, but it still causes immense discomfort and annoying symptoms. The other possibility if going GF (gluten free) doesn’t work is eliminating casein (a protein found in all dairy products), I haven’t eliminated this as I’m still on this GF diet and have success with it. (basically if I eliminate casein/dairy products now I won’t really be able to tell if it’s the GF diet or casein free diet so I’m just GF for the moment)

Research these two intolerance as they are the most common ones. I love Italian food and giving up gluten has been REALLY hard, but I value my own health and wellbeing higher than the convenience of feeling like crap and being able to eat anything.

And lastly, yes I was immensely skeptical of the GF trend (I study biomedical science) but this has changed my life!! I’m never going back to gluten. For years I’ve thought I’d had candida or something weird and there’s so much misinformation on the internet. At last I’ve found my cure!

-Edward21

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Comments

  1. Hivesguy says

    February 26, 2015 at 9:14 am

    Thanks for taking the time to share your story and experience! I’m glad to hear things are improving. Diet was definitely the biggest issue in my case. I also have those issues with gluten, and wheat/milk cause a lot of issues for me. However, it is also a lot more than those two foods. I think I just have a super sensitive immune system.

    I hope your hives go away 100%, and thanks again for sharing this! Stay positive and don’t give up.

  2. Ali Hamdar says

    February 28, 2015 at 3:40 pm

    I eat a lot of bread + milk, yogurt….
    So is this the actual problem? Do we have to stop eating bread and milk products?

    i’m also suffering from what you described above (depression, anxiety, sinusitis and chronic fatigue) why is that?
    This forum doesn’t allow us to share pics, I wanted to show you what I bought from the pharmacy:
    Vitamins
    Ions
    Iron
    Supplements
    And I still feel tired, and my skin (especially face) is tired as well !

    Do we have to completely cut off the dairy products? (Gluten free Diet)
    Thank you mate
    And get well soon, we’re all suffering.

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The information on this website is NOT intended to be medical advice. Rather, this site is a platform for people to share experiences on chronic hives. Never take or stop taking any drug, supplement, exercise or diet program, or other treatment unless your doctor approves it. Some treatments, such as sweat therapy, may not be safe for you. By accessing this website, you agree not to hold the owner liable for any use, misuse, or negligence resulting from your use of the site and/or its contents.

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