Hey everyone, it’s Edward from a couple articles down. Sorry for making a new article instead of commenting, I felt that it was not going to be as seen as just a comment and I want everyone to read this because I understand that not everyone lives in a country where most of your medical treatments are covered.
To start off, I unfortunately was not diagnosed with Cholinergic Urticaria because I was missing a symptom or two, but please take what I am writing into consideration. What I have also falls under the same category as Cholinergic Urticaria. To quote what he said, he told me that people with Cholinergic Urticaria have red spots and during summers, they most likely will suffer from the symptoms (E.g. hives/red spots) as well, where I did not. What I have is what he diagnosed me with, which was called “Spontaneous Urticaria” (that is the shortened term he gave me). A few tests were run through, which included bloodwork (after the appointment I went to a medical center), a breathing test (my results were perfect), and an allergy test to see if my condition was actual just an allergy or happening due to my immune system. The bloodwork has not come in yet, but our conclusion is that it is most likely not due to an allergy, and is an immune-related thing.
So the first thing we should all consider is whether or not we might be confusing Cholinergic Urticaria with a different type of urticaria, because it would really help out your doctor to be as detailed as possible. For example, I read about how Cold Urticaria can be confused with Cholinergic Urticaria a lot because Cold Urticaria happens when you go from cold to hot, and Cholinergic Urticaria generally happens when you sweat (which in many cases is when your body temperature also goes from cold to hot).
My specialist (immunologist/allergist) prescribed me an anti-histamine called Desloratadine. The first thing you need to know about this is that it is not the same as Loratadine. My specialist also stated that this has no side effects, while at the same time, it works as an anti-histamine. Definitely beats those drowsy side effects from some anti-histamines!
VERY IMPORTANT NOTE
I told my specialist how my general practitioner gave me 20mg Reactine pills, and how it was directed from my general practitioner that I would only take them maybe once every few days.
My specialist stated that this is chronic, and gave the example of high blood pressure. You wouldn’t take medicine for that just every few days, right? It doesn’t work like that. For those who don’t know too much about blood pressure, another example would be birth control pills. You those anti-histamine drugs balanced in your blood stream, just like how you would want to regularly take birth control.
My specialist told me to take one pill of Desloratadine everyday and to have a follow up appointment in a couple months to see him again. I’ll definitely have results for you guys about my bloodwork (which will state immunology/allergen related results), as well as my progress with Desloratadine (most likely after the follow-up appointment).
Even More Important Note
For those who are considering to try Desloratadine (which is also an over-the-counter anti-histamine), I should note that my take-one-everyday Desloratadine is 5mg per tablet. If the Desloratadine tablets offered at your local pharmacy is 10mg or more, you will want to remember to split up the pill or contact a doctor about wanting to take Desloratadine.
A couple final notes:
For those who may feel that they also have spontaneous urticaria, I have a photo of some hives on my leg that I took (this is the clearest photo I have, or I’d show you my arms as well)
Also, for those who think they have spontaneous urticaria, my specialist stated that this specific urticaria/condition lasts (on average) for 2 years.
Some final things:
Thanks Hivesguy for making this site! It was nice to find an online support group to read about conditions I (well, close enough anyways) have and read about others experiences/solutions to their problem.
I hope Desloratadine works out for me and as well as those who want to try it out! I’ve been dreading for almost 2 years now, trying to find a solution.
Finally, if you guys have any questions, I’d love to answer them over the next few days that I’ll be visiting the forum, and as said, I’ll have an article for when I finish my follow up appointment!
Thanks for reading!