For the past 6 years, my 16-year-old daughter has had episodes out of nowhere of what they are now saying is cholinergic urticaria. It comes on so quickly, and takes over her whole body with a “hot” feeling both inside her body and outside, leading to chest tightness.
We have been giving her the epipen for the anaphylaxis. Does anyone else suffer from anaphylaxis from these episodes? I’m not finding information where people go into anaphylaxis from Cholinergic Urticaria.
She had a reaction two nights ago while in the shower, and was rushed to the ER after receiving the epi pen. Her allergist wants to try Xolair. Any info would be greatly appreciated.