This page features a collection of posts focusing on the “cholinergic urticaria cure,” where people listed what has worked best for them to treat or cure their hives symptoms. You can also read my cholinergic urticaria cure story as well, which includes diet and exercise (but mostly diet).
Post Your Cholinergic Urticaria Cure: What Cured Your Hives?
Post by: ldiablosv2000 on April 19, 2009, 11:36:56 AM
Hey Everyone,
My hives have been gone for over 2 months. Here are some things I changed about the time I stopped getting attacks:
1. I switched bedrooms in my house
2. I bought a new bed, new bedsheets and a new blanket for my new room.
3. I realized one of the most concentrated areas of the pins and needles feeling during my attacks was my scalp, so I started to use strong anti-dandruff shampoo every day.
4. I started to eat yogurt with the live cultures in it everyday to get a more healthy snack and also in case Cholinergic Urticaria was caused by some kind of yeast (candida) unbalance. 5. As I posted before, I started to work out (lifting weights and running) heavily with a moisture wicking shirt that pulls the sweat out of you and also has anti-microbial elements in the fabric.
I don’t know if it was one of the above, a combination of all of them or nothing but luck, but somehow I went from feeling like I was laying under a waterfall of hot needles every time my body temp rose to now maybe 1 out of 10 or 20 times I get hot, I only feel a few little itchy feelings for like 2 seconds in one very small spot somewhere on my body and then thats it.
I didn’t want to post until I was pretty sure that I wasn’t going to get anymore attacks but now I’m pretty sure that I’m going to be fine until at least the beginning of next winter. My last debilitating attack was actually on the day that I was moving my things to my new room. So if I had to guess, I would think that moving rooms and getting a new bed was the most likely cure.
So in summary, my Cholinergic Urticaria started this past October when the weather started to get colder and dryer in Pennsylvania. I had multiple attacks daily that were nothing short of torture. I was afraid I was going to lose my job because it involves a lot of physical work that in turn makes you hot. I visited my primary care doc, an allergist and a neurologist. They were all pretty stumped but the allergist was the most helpful, she told me that I might have Exercise Induced Anaphylaxis which is basically when you are allergic to something but only show symptoms when you exercise. I noticed that I had worse Cholinergic Urticaria reactions when I ate wheat bread and eggs before I worked out so I stopped doing that. It seemed to lessen the intensity of attacks.
That is about all I can recall at the moment about my experiences with Cholinergic Urticaria. I just wanted to share with everyone to see if they can implement any of the same things I did to help themselves but mainly just to show that there are ways you can get rid of Cholinergic Urticaria, you just need to have patience and never give up hope. I have already gotten to the point where I take heating up and sweating for granted, forgetting that a mere 3 months ago, it would have been impossible to do so. I hope everyone on the board can get to this point sometime very soon.
That’s all I have, take it easy.
Steve
Title: Re: I’m over 2 months hive free
Post by: HivesGuy on April 19, 2009, 02:56:22 PM
Hello Idiablosv2000,
Wow, thanks so much for the inspirational & informative post! That is awesome that you have been able to keep the hives in control for the past 2 months!!
Wow, thanks so much for the inspirational & informative post! That is awesome that you have been able to keep the hives in control for the past 2 months!!
I will definitely take all of those things into consideration. I have been thinking about probiotics/cultures for a while now (I recently found out it also helps eczema which I get sometimes), I definitely plan on dustmite-proofing my house/rooms as much as possible in the near future, and more.
Thanks again so much for sharing it with all of us. I hope that you can completely forget about the hives, and they never again come back to bother you badly.
Thanks again so much for sharing it with all of us. I hope that you can completely forget about the hives, and they never again come back to bother you badly.
Update: Here’s a video on how I cured my hives:
Title: A Compiled List: What stops and/or decreases Cholinergic Urticaria symptoms (and what doesn’t)
Post by: StrongerThanHives on April 21, 2009, 04:33:28 PM
Short summary. Easy on the eyes. Hope this helps.
-Stopped Cholinergic Urticaria for a member on these forums- 1) Intense sunlight exposure (*consult your doctor*)
-Stopped Cholinergic Urticaria for a member on these forums- 1) Intense sunlight exposure (*consult your doctor*)
2) Dust mite removal
3) Completely new bedroom + Yogurt Cultures + Working out heavily (*Same advice, consult doctor*)
4) It just randomly goes away (Consensus of most doctors + allergists)
-Decreases symptoms- 1) Zyrtec 2) Sunlight exposure 3) Working out 4) Alcohol (*do not abuse*) (*causes increase symptoms from some the next day*)
-Decreases symptoms- 1) Zyrtec 2) Sunlight exposure 3) Working out 4) Alcohol (*do not abuse*) (*causes increase symptoms from some the next day*)
5) Certain diets
-What does not help- 1) Claritin***This is completely random…. but if you haven’t gotten an allergy test, I’d advise getting one. It eliminates a lot of potential issues.***
-What does not help- 1) Claritin***This is completely random…. but if you haven’t gotten an allergy test, I’d advise getting one. It eliminates a lot of potential issues.***
And here’s another, more in depth thread, on managing Cholinergic Urticaria by HivesGuy. Highly recommended. Anyone, feel free to add on to this list.
Also, I’d like to reiterate, I’m not a medical doctor, I’m just trying to help by compiling resources.
Title: Re: A Compiled List: What stops and/or decreases Cholinergic Urticaria symptoms (and what doesn’t)
Post by: HivesGuy on April 21, 2009, 06:07:11 PM
Thanks so much for the added information! I know a lot of new Cholinergic Urticaria people will really find that helpful.
Title: Post Your Cholinergic Urticaria Cure: What Cured Your Hives?
Post by: hivesblow on June 01, 2009, 05:36:29 PM
well im sitting here typing to you after a half hour hive free run on a treadmill, and i am DRENCHED with sweat. as nasty as it sounds but it never felt so good. over the past week or so ive noticed that i have been able to go about my daily activities without any hives. i would feel itchy, but it would pass. even if i took a hot shower, i would get itchy but never get any hives. for example, it was 80 degrees the other day and i was moving furniture outside, i felt a little itchy and it would pass within minutes and i would begin to slighty sweat. if you remember a few weeks ago, i posted about how i felt getting forced sunlight exposure was helping me build a tolerance. well, when i began to feel sweaty as i was moving furniture, i felt different, it felt like my skin could breathe. a month ago, i would never of been able to lift any heavy furniture without an itch fest. so i felt today it was time to take the ultimate test and run on the treadmill. last month, i tried running on the treadmill and it was the most painful itchey hive fest ever. well i got on the treadmill today, about 10 minutes in i began to feel a slight itch, but nothing that i could not handle, and a few minutes later I WAS SWEATING BULLETS. could this mean i am CURED? hopefully, as we all know the hives can come back. but now that i am sweating, i am going to exercise and get sun everyd day i can so that the hives never have a chance of coming back. what could of lead to this improvement? here are a few things i have been doing the past few weeks 1. i have been taking an antihistamine called doxepin, this probably did not cure anything but maybe helped lessen the severity of hives. 2. consistent sunlight exposure, i would try to sit out in the sun almost every day i could. (its been about 70-80 degrees here) . at first sitting in the sun was painful as all hell, but everyday it became easier. i suggest getting a water spray bottle and using it whenever u get itchy to help ease the attack) 3. i have been taking a multivitamin everyday. 4. i have NOT been eating a clean diet, i eat a fair amount of red meat, wheat, chocolate, etc. (anything that people have mentioned that they think as made their hives worse 5. school and finals ended for me 2 weeks ago, so i have been less stressed and have relaxed. 6. i began going about my life trying to not worry about hives. as we all know, hives can really hinder our active daily activites, but the more i felt my Cholinergic Urticaria improved, the less i began to worry. 7. the weather has been consistently warmer, some articiles have shown that Cholinergic Urticaria is worse in the winter.) 8. tried to be POSITIVE AS POSSIBLE ABOUT THE WHOLE THING *****so…….it is quite possible that one or a combination of these 8 things i have been doing led to my present cure of Cholinergic Urticaria(hopefully it does not come back, i will continue doing what i have been doing the past few weeks.) or maybe it is a coincidence and whatever my body was doing to cause Cholinergic Urticaria suddenly stopped and cured me. ****what i challenge you all to do—-try what i did and post results, maybe the ideas on this forum have stumbled upon a cure to Cholinergic Urticaria. I HAVE SEEN 3 DOCTORS AND THEY WERE ZERO HELP WITH THE EXCEPTION OF THEM PRESCRIBING ANTIHISTAMINES(you all should still see doctors if you can, i am just telling you my experience. . i swear that this post is sincere and i am not making any of the above up! as you all know, i have been posting on this forum for a while now. even though i can get back to living a hive free life, it does not mean that i am leaving this forum. i will check this forum every day to see what kind of results everyone can come up with. Cholinergic Urticaria really made my life difficult the past 7 months and now that i think it is gone i will do what i can to spread the word. if people start seeing results as i did, then maybe we have found a cure to this and everyone on this forum contributed to it. remember, my results got gradually better over a span of a few weeks, it did not magically get better all night. so dont be discouraged if trying what i did is painful (especially when out in the sun) . good luck to all!!
Title: Re: CURED…I THINK
Post by: hivesblow on June 01, 2009, 05:51:32 PM
just one thing i wanted to add, when i said that i have not been eating a clean diet, im not saying that eating poorly helped cure me. im saying that maybe my diet has not led to my improvement. but everyone may be different. also, feel free to ask me any questions on what i did, im glad to help.
Title: Re: CURED…I THINK
Post by: HivesGuy on June 02, 2009, 04:49:40 AM
Hello hivesblow,
First of all, congrats. I hope and pray that you are indeed cured, and never get this again. I know how awesome it must feel to be covered in the sweet release of sweat. That is my dream, to go and do something and just be drenched in sweat with no hives stabbing me.
I also want to thank you for sharing all of that. I also hope anyone who has visited this forum that finds a cure follows in your footsteps, and makes a post to share it with us all so that we can get some information (and hope) to help us all.
I know it hasn’t been too long since the hives went away, so there is still a small chance they can come back. Cholinergic Urticaria has a way of going away and then sneaking back up on us. If it does ever return, please let us know. If they are still gone for a long time, I hope you still pop back into the forum on occasion when you get a chance just to provide a quick update to let us know you are still hives free.
That is a great list you provided, and I think it definitely is what is helping your Cholinergic Urticaria. I can’t wait to get more sun, as I think that is a big factor. I also agree with what you say about the positive attitude, warmer weather, the antihistamine, etc. Again, that is just so awesome, and I am so glad you have been able to eliminate the hives recently.
Diet does play a role in my rashes, and does seem to affect the reactiveness of the Cholinergic Urticaria, but perhaps it is different for everyone, and the diet may only affect my digestion & rashes, and the hives could be a separate thing. I still don’t know if they are the cause of Cholinergic Urticaria or not. Plus, to complicate it even more, it could be different for all of us. For example, perhaps some of us have Cholinergic Urticaria due to food allergies, some envirnomental allergies, some it could be something completely different, etc. So it is really hard to say for sure about my diet stuff.
Anyway, thanks again so much for sharing. I think it is great and a lot of people will get inspired by your cure (even if it is temporary). Thanks again, and good luck.
First of all, congrats. I hope and pray that you are indeed cured, and never get this again. I know how awesome it must feel to be covered in the sweet release of sweat. That is my dream, to go and do something and just be drenched in sweat with no hives stabbing me.
I also want to thank you for sharing all of that. I also hope anyone who has visited this forum that finds a cure follows in your footsteps, and makes a post to share it with us all so that we can get some information (and hope) to help us all.
I know it hasn’t been too long since the hives went away, so there is still a small chance they can come back. Cholinergic Urticaria has a way of going away and then sneaking back up on us. If it does ever return, please let us know. If they are still gone for a long time, I hope you still pop back into the forum on occasion when you get a chance just to provide a quick update to let us know you are still hives free.
That is a great list you provided, and I think it definitely is what is helping your Cholinergic Urticaria. I can’t wait to get more sun, as I think that is a big factor. I also agree with what you say about the positive attitude, warmer weather, the antihistamine, etc. Again, that is just so awesome, and I am so glad you have been able to eliminate the hives recently.
Diet does play a role in my rashes, and does seem to affect the reactiveness of the Cholinergic Urticaria, but perhaps it is different for everyone, and the diet may only affect my digestion & rashes, and the hives could be a separate thing. I still don’t know if they are the cause of Cholinergic Urticaria or not. Plus, to complicate it even more, it could be different for all of us. For example, perhaps some of us have Cholinergic Urticaria due to food allergies, some envirnomental allergies, some it could be something completely different, etc. So it is really hard to say for sure about my diet stuff.
Anyway, thanks again so much for sharing. I think it is great and a lot of people will get inspired by your cure (even if it is temporary). Thanks again, and good luck.
Title: Post Your Cholinergic Urticaria Cure: What Cured Your Hives?
Post by: billysielu on June 19, 2009, 01:59:30 PM
I think I’ve been about a month or two without symptoms, so I’m gonna start the clock.
19th June 2009.
Lets see how long it lasts.
19th June 2009.
Lets see how long it lasts.
Title: Re: In “Remission”
Post by: billysielu on June 19, 2009, 02:06:16 PM
Some things I have done:
Diet I have followed this quite closely, as least for work days. 8am – glass of water 9am – glass of water 10am – can of coke 11am – coleslaw + potato salad 12am – strawbery and rasberry smoothie 3pm – can of coke 6pm – boiled potato, carrot, onion, peas, pasta, with some meat + sauce 7pm – 1 or 2 beers 11pm – glass of fruit juice + bed
Comb I have been combing my hair twice a day. The feeling seems to freshen up my scalp, feels like it helps.
Sun I haven’t spent much time in the sun, but I’ve tried to get out in it a bit. This weekend I spend two full days walking around Paris in the sun, plenty of sweat and no breakout.
Toilet I share a house, and the toilet has just been replaced. The water tank was leaking a bit, and there was some crazy blue stain on it. I don’t know whether that was giving off some kind of bacteria etc… but who knows. Thought it worth mentioning.
Sleep I haven’t been sleeping well at all. Some guy in the flat above wakes me up early every morning, so I’m almost always tired. I think that might have contributed because I’m too tired to get stressed out.
Diet I have followed this quite closely, as least for work days. 8am – glass of water 9am – glass of water 10am – can of coke 11am – coleslaw + potato salad 12am – strawbery and rasberry smoothie 3pm – can of coke 6pm – boiled potato, carrot, onion, peas, pasta, with some meat + sauce 7pm – 1 or 2 beers 11pm – glass of fruit juice + bed
Comb I have been combing my hair twice a day. The feeling seems to freshen up my scalp, feels like it helps.
Sun I haven’t spent much time in the sun, but I’ve tried to get out in it a bit. This weekend I spend two full days walking around Paris in the sun, plenty of sweat and no breakout.
Toilet I share a house, and the toilet has just been replaced. The water tank was leaking a bit, and there was some crazy blue stain on it. I don’t know whether that was giving off some kind of bacteria etc… but who knows. Thought it worth mentioning.
Sleep I haven’t been sleeping well at all. Some guy in the flat above wakes me up early every morning, so I’m almost always tired. I think that might have contributed because I’m too tired to get stressed out.
Title: Re: In “Remission”
Post by: HivesGuy on June 19, 2009, 03:47:07 PM
Oh wow, a month or two without any symptoms is AWESOME! My fingers are crossed for you that this goes away & stays away.
Also, thanks for sharing that info about your diet, sun, etc. Nothing really jumped out at me as being responsible for the “remission,” but who knows?? Maybe it was one of those things.
All I can say is, I hope this goes away and you never get it again. Keep us updated and let us know if it stays gone!
Also, thanks for sharing that info about your diet, sun, etc. Nothing really jumped out at me as being responsible for the “remission,” but who knows?? Maybe it was one of those things.
All I can say is, I hope this goes away and you never get it again. Keep us updated and let us know if it stays gone!
Title: Re: In “Remission”
Post by: StrongerThanHives on June 19, 2009, 05:56:51 PM
I’m teeming with jealousy.
Maybe I’ll try to drink more liquids…
Maybe I’ll try to drink more liquids…
Title: Post Your Cholinergic Urticaria Cure: What Cured Your Hives?
Post by: BGILL on June 23, 2009, 12:16:49 PM
Well it’s almost July! Starting in the middle of May I was outside in the hot sun gardening for many hours a day for about a week. I realized that I only had a slight breakout once. Barely even visible. I also noticed I was sweating…which with the hives I never sweated. It has been great this season so far. Ever since I was 14, I cut back on being active. I gained quite a bit of weight since then. Well, I now walk 6 laps around our 20 acre property a day. Even in the heat. I do start out walking fast. NOT slow!! I haven’t broke out once. After about 5 minutes of walking when I was younger, I would break out tremendously and get dizzy and ithy. Now I feel so great.
But, I have been on a liquid diet since June 1st. I have cut way back on my soda. I feel so great. I juice all my own veggies and fruits. I do not drink any of the store-bought. And I drink lots and lots of water. I haven’t felt dizzy due to the lack of food and actually feel more energized than ever. I have also lost 10 lbs. I feel that if I lose weight and keep up on the liquid diet for a little longer then I can determine if this will cleanse my body and get rid of the hives.
I will keep updating this and letting you all know if I have any breakouts.
But, I have been on a liquid diet since June 1st. I have cut way back on my soda. I feel so great. I juice all my own veggies and fruits. I do not drink any of the store-bought. And I drink lots and lots of water. I haven’t felt dizzy due to the lack of food and actually feel more energized than ever. I have also lost 10 lbs. I feel that if I lose weight and keep up on the liquid diet for a little longer then I can determine if this will cleanse my body and get rid of the hives.
I will keep updating this and letting you all know if I have any breakouts.
Title: Re: Hives free this summer
Post by: HivesGuy on June 23, 2009, 03:37:15 PM
Hello BGill,
It is nice to hear from you again, ;D.
I’m glad your hives have not been bothering so much lately. Your diet sounds very interesting, and I myself have been experimenting a bit lately.
It is definitely possible that the diet could have something to do with your hives “remission.” I also wonder if perhaps Vitamin D/Sun exposure isn’t having something to do with it. That is definitely something that seems like it has changed. If you are getting more sun exposure, that could have something to do with it too.
I was in the sun for a while today, and I got itchy, but then, I felt better later in the day. I honestly think that when I can get daily sun exposure (about 1 hour or so every day), that it will improve or eliminate my hives.
Thanks again for the update, and please let us know how the hives progress.
It is nice to hear from you again, ;D.
I’m glad your hives have not been bothering so much lately. Your diet sounds very interesting, and I myself have been experimenting a bit lately.
It is definitely possible that the diet could have something to do with your hives “remission.” I also wonder if perhaps Vitamin D/Sun exposure isn’t having something to do with it. That is definitely something that seems like it has changed. If you are getting more sun exposure, that could have something to do with it too.
I was in the sun for a while today, and I got itchy, but then, I felt better later in the day. I honestly think that when I can get daily sun exposure (about 1 hour or so every day), that it will improve or eliminate my hives.
Thanks again for the update, and please let us know how the hives progress.
Title: No Cholinergic Urticaria hives in a week or so!
Post by: coscass on June 28, 2009, 08:32:49 PM
I’ve been taking my singulair+cetrizine at night, and I’ve been outside almost every day (Swimming, helping mom with the garden, etc). No sweating yet, but no hives, either! Not even when I shower. Hope I don’t jynx myself! lol
Title: Re: No hives in a week or so!
Post by: HivesGuy on June 29, 2009, 04:18:05 PM
That is great news! I hope you continue to improve, and eventually they stay gone forever!
Just be careful outside and don’t get burned or have a heat stroke! Let us know if they stay gone. That would be great!
Just be careful outside and don’t get burned or have a heat stroke! Let us know if they stay gone. That would be great!
Title: 4 Months Cured of Cholinergic Urticaria!!!!!!!!
Post by: jamie2346 on June 30, 2009, 09:25:24 PM
;D Hi i have posted in this forum in the past so you can read my posts from before. Anyways its been 4 months since i have had a Hives attack after suffering from it for 6 months straight. My sunlight treatment really worked along with REGULAR exercise. Yes, when you first start it, it will be tough but if u plan on laying out in the sun, bring a bottle of water because one of the biggest problems you are probably facing is lack of sweating. Anyways i can sweat so easily now and i feel great. This is pretty funny, The last time i had a hives attack 4 months ago, it was the first time i ever had any physical hives. before that i would just get the itch attack but no physical rash. So i was shocked when i actually got a rash but it was the last time i ever had an attack. Zyrtec will definitely help the severeness of your hives. Ask me any other questions and i will be happy to answer. I definitely think it is related to our digestive and/or immune system. My stomach is giving me a lot of problems lately. I am taking protonox for acid reflux but i think it might be something else. Maybe Celiac disease or crohns. I dont have heartburn as much as i have nausea and stomach problems. If you have stomach problems, your hives might be a part of it. However, with regular exercise your hives will cured or close to cured. Of course it will be painful but bring an ipod to distract yourself. However if you cannot sweat after a long time and you are feeling faintish do not continue. I was taking multivitamins but now im taking b12 supplements because i was having trouble with fatigue. Anyways good luck guys.
Title: Re: 4 Months Cured!!!!!!!!
Post by: dice on July 01, 2009, 07:42:09 AM
I echo your comments, I’ve been exercising frequently and getting outdoors more often and that has helped considerably with my hives. I’ve also been taking Telfast since I started nearly 3 months ago and the hives more or less disappeared within two weeks. I cannot say which has had more of an effect on my hives.
Having said that you should stay realistic, the most likely reason for the reduction in hives is due to the air being more humid. In the winter periods I find it almost impossible NOT to have a break out. The above can help reduce the severity/frequency of attacks but not stop it all together. This won’t necessarily be the case for everyone but it has been with me for the last 5+ years now.
Having said that you should stay realistic, the most likely reason for the reduction in hives is due to the air being more humid. In the winter periods I find it almost impossible NOT to have a break out. The above can help reduce the severity/frequency of attacks but not stop it all together. This won’t necessarily be the case for everyone but it has been with me for the last 5+ years now.
Title: Re: 4 Months Cured!!!!!!!!
Post by: HivesGuy on July 02, 2009, 02:28:04 PM
Hello jamie,
That is awesome that the hives haven’t been bothering you in so long. I too think that the sun can help dramatically, as well as try to exercise or sweat as you have said.
Also, you may want to give some probiotics a shot for your stomach. I don’t know what your exact symptoms were, but I know that mine were terrible. I recently have been taking this stuff called digestive advantage, and it has worked wonders. I have blogged about my stomach symptoms on the home page of this site.
Anyway, thanks so much for the update. Please let us know if the hives come back, and if they stay gone during the winter also please let us know.
Thanks again!
That is awesome that the hives haven’t been bothering you in so long. I too think that the sun can help dramatically, as well as try to exercise or sweat as you have said.
Also, you may want to give some probiotics a shot for your stomach. I don’t know what your exact symptoms were, but I know that mine were terrible. I recently have been taking this stuff called digestive advantage, and it has worked wonders. I have blogged about my stomach symptoms on the home page of this site.
Anyway, thanks so much for the update. Please let us know if the hives come back, and if they stay gone during the winter also please let us know.
Thanks again!
Title: omg!!! guys success after dealing with Cholinergic Urticaria
Post by: charles1800 on July 03, 2009, 10:24:20 AM
hey guys, i’ve found new success, believe it folks, the heat that ur avoiding and running from is the same thing that can decrease and relieve ur symptoms. i usually get hives everyday but since i’ve started walking in the hot sun my ive seen less hives and wayyyy less stinging sometimes i dont sting at allll. I also lock myself in the bathroom n sit on the toilet seat while i let the hot shower run so the bathroom can be heated, n trust me it worrrkkksss!!!!
try it guys, u’ll be happy
try it guys, u’ll be happy
Title: Re: 4 Months Cured!!!!!!!!
Post by: billysielu on July 03, 2009, 10:52:06 AM
Paragraphs are good btw ๐
Title: Re: 4 Months Cured!!!!!!!!
Post by: MoshiMoshi on July 04, 2009, 09:04:02 AM
I mirror the origional poster’s comments also, i was so scared of being active and doing exercise because i thought the hives were just going to breakout everywhere. But as i tried it, i started to sweat and now the temperatures are mindblowingly hot in Britain, im surviving! ๐
I think there is a very common pattern here. We need to have more people experiment with this to be able to draw conclusions
I think there is a very common pattern here. We need to have more people experiment with this to be able to draw conclusions
Title: Re: omg!!! guys success
Post by: HivesGuy on July 04, 2009, 02:21:17 PM
That is great!
Many of us have also had great results with sun exposure/heat and sweating. I try to get out on these hot and muggy days as often as I can. I can usually go right into sweating with no hives. In fact, sometimes the sun exposure really seems to keep my hives at bay for several days.
Just always be careful to avoid sunburns, skin cancer, or a heat stroke! ๐
Many of us have also had great results with sun exposure/heat and sweating. I try to get out on these hot and muggy days as often as I can. I can usually go right into sweating with no hives. In fact, sometimes the sun exposure really seems to keep my hives at bay for several days.
Just always be careful to avoid sunburns, skin cancer, or a heat stroke! ๐
Title: Re: 4 Months Cured!!!!!!!!
Post by: billysielu on July 05, 2009, 04:20:55 AM
Yeah I think a lot of it is a mental trigger. If you do stuff and think “this is normal and fine”, then you feel better than “oh noes when will it start”.
Title: Re: CURED…I THINK
Post by: hivesblow on July 08, 2009, 01:21:17 PM
hey guys, been a while. glad to see more and more people starting to see some relief… just wanted to update you guys, i have been hives and itch free for over 5 weeks. my life is completely back to normal. ive been running and getting sun regularly. i also sweat more than ever. i will continue to get sun and exercise and pray that the hives stay away for good, i guess illl have to wait till the winter time to find out for sure. it feels so good, ill never take sweating for granted again! good luck to all, stay positive, this thing can be beaten!
Title: My Cholinergic Urticaria is Gone finally after a year
Post by: hex on July 20, 2009, 07:50:31 AM
Hello,
I registered here only to share my success story so someone else might benefit from it. I developed heat hives suddenly last year during the summer. I tried everything, change diet, lotions, creams, drinking more/less water, etc. Nothing made a difference until I finally decided to take an antibiotic. I was sort of experimenting. Well, it worked, I am two months clear and can endure even the greatest sweating now. It seems I picked up something while camping and it decided to plug my sweat glands. Now that’s it’s gone, the sweat is flowing freely and I haven’t got any problems with it. I was on a 10-day antibiotic treatment, and I could tell the big difference from day 3 onward.
Good luck
I registered here only to share my success story so someone else might benefit from it. I developed heat hives suddenly last year during the summer. I tried everything, change diet, lotions, creams, drinking more/less water, etc. Nothing made a difference until I finally decided to take an antibiotic. I was sort of experimenting. Well, it worked, I am two months clear and can endure even the greatest sweating now. It seems I picked up something while camping and it decided to plug my sweat glands. Now that’s it’s gone, the sweat is flowing freely and I haven’t got any problems with it. I was on a 10-day antibiotic treatment, and I could tell the big difference from day 3 onward.
Good luck
Title: Re: Gone finally after a year
Post by: HivesGuy on July 20, 2009, 12:05:12 PM
Hello Hex,
Excellent post and welcome to the forum. Thanks so much for sharing that information. That was really exciting to hear, as I have speculated that it could be something related to bacteria. I am glad that you have been hives free, and I hope they stay that way.
I was just wondering, do you remember anything about the name of the antibiotic, dosage, or anything like that? If so, please share that with us if you get the chance. I would LOVE to take an antibiotic treatment and be done with this.
Thanks again!
Excellent post and welcome to the forum. Thanks so much for sharing that information. That was really exciting to hear, as I have speculated that it could be something related to bacteria. I am glad that you have been hives free, and I hope they stay that way.
I was just wondering, do you remember anything about the name of the antibiotic, dosage, or anything like that? If so, please share that with us if you get the chance. I would LOVE to take an antibiotic treatment and be done with this.
Thanks again!
Title: Re: Gone finally after a year
Post by: hex on July 20, 2009, 11:49:27 PM
Quote
I am glad that you have been hives free, and I hope they stay that way.
Yeah me too. There was 35 C here yesterday and I actually moved some old furniture outside. It felt great to sweat it and not be irritated at all ๐
I actually used two antibiotics, although I would suggest using just one. I’ll explain why I had to switch. I started with topical Clindamycin. Very good stuff but unfortunately the only brand available in my country packages it with PEG (Polyethylene glycol) which stings as hell. It’s alcohol based so it’s bad to keep it for 24h on your skin for a longer period. So on day 3 I felt big improvement but because of all the irritation I ditched it and went out to find a replacement. I finally decided to continue with a topical that combined Neomycin and Bacitracin. They were packaged with paraffin (mineral oil) and vaseline which didn’t irritate my skin at all. I used it for 7 days.
As far as I can tell, any topical antibiotic that doesn’t contain alcohol-based products and attacks both Staphylococcus aureus and Staphylococcus epidermidis will work. I believe those two bacteria are the main cause. If not picked up somewhere, something triggers them to multiply and cause problems. I even had a bad experience with probiotics as suggested by one doctor. If you have a bacterial infection probiotics are the last thing you want around.
I don’t guarantee that this will work for everyone, but I wanted to share this info with you. It sucks to get heat hives, people cannot understand how bad that thing is. I almost lost a job because of it… Who can concentrate on work when you get heat hives all the time?
One more thing in case anyone was wondering. Heat hives aren’t caused by food at all, but something else. Food’s temperature. If you eat, for example, a hot soup or any hot meal your body will start to sweat to lower its temperature. Thus inducing the hives.
Title: Re: Gone finally after a year
Post by: HivesGuy on July 21, 2009, 08:07:36 AM
Hello Hex,
Thanks so much for the reply. I am definitely interested in this, and again, thansk so much for taking the time to reply. I did have a couple of questions:
1. Did you buy these over the counter, or did you have to get a prescription from a doctor? 2. Did you apply this cream just 1 time daily, and keep it on all day? Or 2 times? Did you do this after a shower? 3. Did you apply it over your entire body, or just a certain area? For example, did you place this on your upper body only (face, chest, neck, arms, etc,)? Or only on an isolated area?
Thanks so much for taking the time to reply.
Also, I agree 100% with you about the food. I can also totally relate about the hives causing trouble with things like working. It can really affect people’s daily lives.
Once again, thanks so much for all of the great info!
Thanks so much for the reply. I am definitely interested in this, and again, thansk so much for taking the time to reply. I did have a couple of questions:
1. Did you buy these over the counter, or did you have to get a prescription from a doctor? 2. Did you apply this cream just 1 time daily, and keep it on all day? Or 2 times? Did you do this after a shower? 3. Did you apply it over your entire body, or just a certain area? For example, did you place this on your upper body only (face, chest, neck, arms, etc,)? Or only on an isolated area?
Thanks so much for taking the time to reply.
Also, I agree 100% with you about the food. I can also totally relate about the hives causing trouble with things like working. It can really affect people’s daily lives.
Once again, thanks so much for all of the great info!
Title: Re: Gone finally after a year
Post by: hex on July 21, 2009, 10:45:43 AM
1. Did you buy these over the counter, or did you have to get a prescription from a doctor?
For Clindamycin, I had to get a prescription. For the other one I didn’t.
2. Did you apply this cream just 1 time daily, and keep it on all day? Or 2 times? Did you do this after a shower?
I applied it twice daily, in the morning and evening. Each time before, I cleaned the old antibiotic from skin. Yes, you have to keep it on all day, that’s how it works. Even after a shower. The problem is if you use it for too long or use it irregularly during the 7 day period, the bacteria can get resistant to it. That means you will have to find a different antibiotic.
3. Did you apply it over your entire body, or just a certain area? For example, did you place this on your upper body only (face, chest, neck, arms, etc,)? Or only on an isolated area?
I applied it topically on troublesome areas. You wouldn’t want to apply topical antibiotic to your whole body for the following reasons: Some antibiotics can be absorbed into blood (in larger quantities) if used on a more than 20% skin area. This could lead to problems since some antibiotics arenโt made to work internally. Second, you’ll spend your cream/tube very quickly that way. If you have problem on your whole body, you should resort to systemic therapy, e.g. antibiotic capsules for up to 7 days (10 maximum).
Before that, I would recommend a topical test first. Buy an OTC antibiotic and apply it for a couple of days to a troublesome, restricted part of the body to see what will happen.
One more thing, a bit off topic… I read a theory somewhere here about sweat allergy; I don’t believe people can be allergic to sweat because sweat is constantly being secreted to skin’s surface. All the time, even in microscopic amounts. That means you would get hives all the time. The problem is when larger and faster amounts of sweat start pouring out. That’s when the obstruction comes into play. Just something to think about.
For Clindamycin, I had to get a prescription. For the other one I didn’t.
2. Did you apply this cream just 1 time daily, and keep it on all day? Or 2 times? Did you do this after a shower?
I applied it twice daily, in the morning and evening. Each time before, I cleaned the old antibiotic from skin. Yes, you have to keep it on all day, that’s how it works. Even after a shower. The problem is if you use it for too long or use it irregularly during the 7 day period, the bacteria can get resistant to it. That means you will have to find a different antibiotic.
3. Did you apply it over your entire body, or just a certain area? For example, did you place this on your upper body only (face, chest, neck, arms, etc,)? Or only on an isolated area?
I applied it topically on troublesome areas. You wouldn’t want to apply topical antibiotic to your whole body for the following reasons: Some antibiotics can be absorbed into blood (in larger quantities) if used on a more than 20% skin area. This could lead to problems since some antibiotics arenโt made to work internally. Second, you’ll spend your cream/tube very quickly that way. If you have problem on your whole body, you should resort to systemic therapy, e.g. antibiotic capsules for up to 7 days (10 maximum).
Before that, I would recommend a topical test first. Buy an OTC antibiotic and apply it for a couple of days to a troublesome, restricted part of the body to see what will happen.
One more thing, a bit off topic… I read a theory somewhere here about sweat allergy; I don’t believe people can be allergic to sweat because sweat is constantly being secreted to skin’s surface. All the time, even in microscopic amounts. That means you would get hives all the time. The problem is when larger and faster amounts of sweat start pouring out. That’s when the obstruction comes into play. Just something to think about.
Title: Re: Gone finally after a year
Post by: HivesGuy on July 23, 2009, 11:09:51 AM
I just wanted to thank you again for all of your replies. I agree that it would probably be best to get an oral antibiotic, as the cream does say that it shouldn’t be applied to large areas of the skin.
I may try this in the future. I hope your hives stay gone, and thanks again.
I may try this in the future. I hope your hives stay gone, and thanks again.
Title: Re: Gone finally after a year
Post by: hex on July 24, 2009, 09:37:51 AM
No problem and good luck with the therapy. I hope it works out for you. Feel free to ask anything else and I’ll see if I can help.
Title: My Cholinergic Urticaria Symptoms Are Down
Post by: StrongerThanHives on August 16, 2009, 02:07:39 PM
For the past couple weeks my hives/itching has been very mild. I’ve been getting a lot of sun exposure and doing heavy lifting.
I can tell it’s still there, and I wonder how/if it will flare up when I stop getting that exposure and winter comes. For now I’ve been happy that I’ve been free of any major attacks.
I can tell it’s still there, and I wonder how/if it will flare up when I stop getting that exposure and winter comes. For now I’ve been happy that I’ve been free of any major attacks.
Title: Re: Symptoms Down
Post by: dice on August 19, 2009, 04:05:17 AM
Good for you mate, lets hope it lasts ๐
Title: Re: Symptoms Down
Post by: HivesGuy on August 19, 2009, 06:04:42 AM
Yeah, I’ll second that. I hope the results last!
Title: Re: Hives free this summer
Post by: BGILL on August 22, 2009, 08:51:51 AM
Okay…well just to let you all know (it’s been quite a while, sorry) that I am hives free, for now 8). I actually quit walking in early July due to me getting a job. I was working 12 hours a day and then went to 8 hours a day. Well, starting Monday we go back to 12 hour days. Well being outside and sitting in a car for all those hours…I was in the sun all day. I have always been in the sun..so I don’t think this has anything to do with it (for me anyway). But it was hot and got up to 111 degrees. And let me tell you I have never sweated so much since getting Cholinergic Urticaria. We had a major heat wave here and had those temperatures for a week. When I heard the hot weather was coming….I thought great I’ll be breaking out all the time. Boy was I wrong. Maybe the liquid diet helped me…I don’t know. But I’m so glad to be hives free this summer. It’s great being able to work in the garden, being outside with the family, and being able to work in such hot conditions without it even crossing my mind that I may break out. For me, it has always been worse in the summer months. When you all eventually get hives free…it’s so nice to do normal things and getting hot without it even crossing your mind. It makes life so much more enjoyable than you can imagine.
Anyway…I will still keep updating and hopefully hear that you all may get rid of Cholinergic Urticaria as well. Just remember that you all will be in my thoughts and prayers and that I know how you feel when you break out. It’s annoying, itchy, sometimes a burning sensation, and embarrasing. But I believe we will all overcome this and even maybe be able to find a cause and cure.
Anyway…I will still keep updating and hopefully hear that you all may get rid of Cholinergic Urticaria as well. Just remember that you all will be in my thoughts and prayers and that I know how you feel when you break out. It’s annoying, itchy, sometimes a burning sensation, and embarrasing. But I believe we will all overcome this and even maybe be able to find a cause and cure.
Title: Re: CURED…I THINK
Post by: HRC on September 07, 2009, 01:12:15 PM
Hey guys
I am 22 years of age and I feel I suffer from Cholinergic Urticaria, after reading all the posts, all the symptoms seems to relate to me.
It is a very annoying condition that has had huge impact on my life especially when it strikes at work as my job involves examining patients
I would just like people to know that I feel that ive partially cured my Cholinergic Urticaria by exercising regularly, when I saw my GP, he suggested i avoid sweating and wear loose clothing! but as I am a very active person this was unavoidable, its very difficult to AVOID sweating. I currently take antihistamines (cetrizine hydrochloride) and apply calamine lotion everyday which seems to reduce the intensity of the attacks and burning sensation I get when I try sweating. I now go gym everyday and try to sweat as much as possible, it is very difficult in the begining but becomes easier as the week goes on. if i become lazy and miss a few days of gym the Cholinergic Urticaria may come back, as the sweat pores seem to become blocked again. So i continue with my regime of trying to sweat. I recently went Spain in the blistering hot and because i sweated reguarly the pores were unable to become blocked and the hives did not come about. i think the answer to the cure is to try and keep your sweat pores open by sweating regularly and carrying out activites such as exercise.
I hope this helps as it is great to know and relate to other people with this condition. no one else really understands the impact of this condition.
I would just like to mention that I am British Indian aswell, so it seems this condtions occurs in different ethnicities……………
Thank you for reading HRC
I am 22 years of age and I feel I suffer from Cholinergic Urticaria, after reading all the posts, all the symptoms seems to relate to me.
It is a very annoying condition that has had huge impact on my life especially when it strikes at work as my job involves examining patients
I would just like people to know that I feel that ive partially cured my Cholinergic Urticaria by exercising regularly, when I saw my GP, he suggested i avoid sweating and wear loose clothing! but as I am a very active person this was unavoidable, its very difficult to AVOID sweating. I currently take antihistamines (cetrizine hydrochloride) and apply calamine lotion everyday which seems to reduce the intensity of the attacks and burning sensation I get when I try sweating. I now go gym everyday and try to sweat as much as possible, it is very difficult in the begining but becomes easier as the week goes on. if i become lazy and miss a few days of gym the Cholinergic Urticaria may come back, as the sweat pores seem to become blocked again. So i continue with my regime of trying to sweat. I recently went Spain in the blistering hot and because i sweated reguarly the pores were unable to become blocked and the hives did not come about. i think the answer to the cure is to try and keep your sweat pores open by sweating regularly and carrying out activites such as exercise.
I hope this helps as it is great to know and relate to other people with this condition. no one else really understands the impact of this condition.
I would just like to mention that I am British Indian aswell, so it seems this condtions occurs in different ethnicities……………
Thank you for reading HRC
Title: Re: CURED…I THINK
Post by: HivesGuy on September 07, 2009, 03:12:12 PM
Hello HRC,
Thanks for the great post and welcome to the forum!
I totally agree with you about keeping the sweat pores open. Unfortunately this is sometimes easier said than done, especially in cooler months. However, I do agree that once the sweat can come out of the pores, cholinergic urticaria will generally not occur.
It is very frustrating living with this condition. I don’t think anyone can even imagine how hard it can be sometimes. It is really painful and very frustrating.
I also agree about the ethnicity thing. This condition appears to happen in all geographic areas, to all skin colors/ethnicities, and both male and female. So I guess it can happen to anyone.
I wish you the best of luck, and I hope you keep the Cholinergic Urticaria at bay.
Thanks again,
HivesGuy
Thanks for the great post and welcome to the forum!
I totally agree with you about keeping the sweat pores open. Unfortunately this is sometimes easier said than done, especially in cooler months. However, I do agree that once the sweat can come out of the pores, cholinergic urticaria will generally not occur.
It is very frustrating living with this condition. I don’t think anyone can even imagine how hard it can be sometimes. It is really painful and very frustrating.
I also agree about the ethnicity thing. This condition appears to happen in all geographic areas, to all skin colors/ethnicities, and both male and female. So I guess it can happen to anyone.
I wish you the best of luck, and I hope you keep the Cholinergic Urticaria at bay.
Thanks again,
HivesGuy
Title: 7 months free of Cholinergic Urticaria symptoms!!!
Post by: jamie2346 on September 18, 2009, 02:23:42 AM
Yeah ive posted in the forum many times before so you can read my story. It pretty much went away when it felt like it. I have to say guys and im not being harsh, just being real, you have to stop thinking about it. Thats what ultimately changed for me. I know it seems hard at first but eventually the more and more you distract yourself the easier it is to deal with. As said many times before: Sunlight helps… I go tanning once in a while, exercise helps, zyrtec will relieve the severity of it. I took zyrtec for 28 days and then felt better so went off it. Here is one supplement to try. L-Lysine…. You can get it from just about anywhere.
It is only 3 or 4 bucks. They are basically for your immune system and helped tremendously. I dont take them anymore as i dont need them and it is not good for my acid reflux. Stress and a lifestlye changed made my hives so severe this year i wanted to cry. it became a 24/7 itch for me instead. It was horrible to deal with. Like i said the more u think about it the worse it will get.
Im happy this forum is here for you guys but please dont log on every day looking for answers as im telling u 99% it is idiopathic and it will go away when it wants to. If you think about itching, you will itch. Its a scientific fact. Im itching as im typing this and having itched in a long time. Its cause im thinking of my hives now but tomorrow and i will not and it will go away. Stress triggers underlying conditions that u already have. thats what happened to me this year. My acid reflux, Hives, and depression( I didnt know i was depressed) flared at the exact same time. Anyways i was finally diagnosed with a hiatal hernia and a weak les sphincter which is causing my acid reflux. But see it didnt bother for three straight years because i was working all the time and didnt have time to think so much and worry. hives are the same way. Im going to college full time again and i can walk on this hot butt campus in florida without having one itch attack lol. i know it might get annoying in winter but it will not take over my life again as i will distract myself.
If you cant sweat at the moment i understand. you just have to wait it out. I tried to exercise when i couldnt sweat and almost passed out when this first flared up. Tanning was the easiest to do as you surely sweat somewhere. Plus if you next to a pool even better. If the sun is too hot to handle at first for your hives, jump in the pool! You will notice certain hives will physically pop up. I otherwise never got visible hives just redness and extreme itching all over. the chlorine will make ur hives appear more. Then get out of the pool and tan some more. Make sure you wear suncreen and bring lots of water with u. Exercise when u think u are ready but dont force yourself. If its cold where u live just relax!!! It will go away!!! ๐
It is only 3 or 4 bucks. They are basically for your immune system and helped tremendously. I dont take them anymore as i dont need them and it is not good for my acid reflux. Stress and a lifestlye changed made my hives so severe this year i wanted to cry. it became a 24/7 itch for me instead. It was horrible to deal with. Like i said the more u think about it the worse it will get.
Im happy this forum is here for you guys but please dont log on every day looking for answers as im telling u 99% it is idiopathic and it will go away when it wants to. If you think about itching, you will itch. Its a scientific fact. Im itching as im typing this and having itched in a long time. Its cause im thinking of my hives now but tomorrow and i will not and it will go away. Stress triggers underlying conditions that u already have. thats what happened to me this year. My acid reflux, Hives, and depression( I didnt know i was depressed) flared at the exact same time. Anyways i was finally diagnosed with a hiatal hernia and a weak les sphincter which is causing my acid reflux. But see it didnt bother for three straight years because i was working all the time and didnt have time to think so much and worry. hives are the same way. Im going to college full time again and i can walk on this hot butt campus in florida without having one itch attack lol. i know it might get annoying in winter but it will not take over my life again as i will distract myself.
If you cant sweat at the moment i understand. you just have to wait it out. I tried to exercise when i couldnt sweat and almost passed out when this first flared up. Tanning was the easiest to do as you surely sweat somewhere. Plus if you next to a pool even better. If the sun is too hot to handle at first for your hives, jump in the pool! You will notice certain hives will physically pop up. I otherwise never got visible hives just redness and extreme itching all over. the chlorine will make ur hives appear more. Then get out of the pool and tan some more. Make sure you wear suncreen and bring lots of water with u. Exercise when u think u are ready but dont force yourself. If its cold where u live just relax!!! It will go away!!! ๐
Title: Re: 7 months free!!!
Post by: HivesGuy on September 19, 2009, 09:55:28 AM
Hello Jamie2346,
It is great to hear from you, and thanks for sharing all of that info. That is GREAT that you have enjoyed the past 7 months free of Cholinergic Urticaria. I am always so excited to hear when someone has had a remission or their hives completely went away.
Cholinergic urticaria does seem to have a mind of its own. While we can do some things to lessen symptoms, it ultimately seems to go away when it wants. It also seems to go up or down in intensity when it wants.
I also know what you mean about trying not to think about it. I agree that people should try and focus on other things, and forget about their hives if possible. The only problem is, sometimes they can get so reactive that it is impossible to ignore them, or to not think about them. Especially when they start to interfere with school, jobs, relationships, etc.
Anyway, thanks again so much, and I hope they stay gone! Let us know if anything changes, or if they come back. Thanks again,
Hivesguy
It is great to hear from you, and thanks for sharing all of that info. That is GREAT that you have enjoyed the past 7 months free of Cholinergic Urticaria. I am always so excited to hear when someone has had a remission or their hives completely went away.
Cholinergic urticaria does seem to have a mind of its own. While we can do some things to lessen symptoms, it ultimately seems to go away when it wants. It also seems to go up or down in intensity when it wants.
I also know what you mean about trying not to think about it. I agree that people should try and focus on other things, and forget about their hives if possible. The only problem is, sometimes they can get so reactive that it is impossible to ignore them, or to not think about them. Especially when they start to interfere with school, jobs, relationships, etc.
Anyway, thanks again so much, and I hope they stay gone! Let us know if anything changes, or if they come back. Thanks again,
Hivesguy
Title: Cholinergic Urticaria-An Indian success story with Thyroid problem
Post by: jamesmacin on November 07, 2009, 11:27:37 PM
Dear Friends,
I just came across this article of an Indian gentleman who has mentioned his success story in detail although I must caution you that he has had thyroid problem along with Cholinergic Urticaria. So please do not jump to a new treatment on your own or without any professional medical advice after reading this article, thanks. He has mentioned some medicines such as
Hydroxyzine Allegra Spectra Anbuta Sarna Lerafil Vermisol
Thanks a lot,
James
I just came across this article of an Indian gentleman who has mentioned his success story in detail although I must caution you that he has had thyroid problem along with Cholinergic Urticaria. So please do not jump to a new treatment on your own or without any professional medical advice after reading this article, thanks. He has mentioned some medicines such as
Hydroxyzine Allegra Spectra Anbuta Sarna Lerafil Vermisol
Thanks a lot,
James
Title: Re: An Indian success story with Thyroid problem
Post by: jamesmacin on November 07, 2009, 11:33:56 PM
Here is another Australian gentleman who has mentioned that he got rid of Cholinergic Urticaria just within 3 days. I was curious so sent him an e-mail asking for the treatment etc. But he has still not replied to my e-mail.
Here is the link and the statements by him are given below in quotes and bold letters. You need to scroll down to the very bottom of the page to read his comments.
I tried leaving you my complete Hat Write-up on how I cured my hives in 3 days, but it was too long for you blog (2 pages).
I have been 10 years hive free, it was real easy. read my story, if it works for you let me know.
I also posted it on Oprah.com
If you email me I will send it to you.
All the best. Aussie Greg kingdonco@yahoo.com.au
Here is the link and the statements by him are given below in quotes and bold letters. You need to scroll down to the very bottom of the page to read his comments.
Quote
I tried leaving you my complete Hat Write-up on how I cured my hives in 3 days, but it was too long for you blog (2 pages).
I have been 10 years hive free, it was real easy. read my story, if it works for you let me know.
I also posted it on Oprah.com
If you email me I will send it to you.
All the best. Aussie Greg kingdonco@yahoo.com.au
Thanks a lot,
James
Title: Re: An Indian success story with Thyroid problem
Post by: jamesmacin on November 07, 2009, 11:42:17 PM
Here is another success story concerning a military woman treated by a doctor successfully. He used a combination of cetirizine, montelukast, and propanolol.
Quote
A 22-year-old African American U.S. sailor presented with an intermittent pruritic eruption precipitated by mild activity for the last 2 years. She developed an extremely pruritic papular rash that would quickly coalesce into larger wheals following any exercise, light activity such as vacuuming, or taking hot showers. This condition had been getting progressively worse, preventing her from successfully completing her physical readiness test and other required physical training for the last 2 years. Previous treatment with antihistamines and steroids had failed to control her symptoms. She was diagnosed with cholinergic urticaria, successfully controlled with a combination of cetirizine, montelukast, and propanolol. She has since been returned to full military duty and is able to exercise regularly.
Thanks a lot,
James
Title: Re: In “Remission”
Post by: billysielu on January 31, 2010, 02:10:31 PM
31 Jan 2010
I’m still okay. I still have Cholinergic Urticaria, I’m aware of it – but I don’t get breakouts anymore.
I’ve been through more stress lately, I’m surprised that didn’t cause my Cholinergic Urticaria to come back.
I still try and drink water regularly, but haven’t been keeping it up as well as when I first started.
I still comb my hair twice a day, which I find relaxes me – kinda odd sounding I know. I comb quite hard against my scalp, I think it helps.
I also think I get headaches due to my teeth, I have some dodgy teeth – so I’ve been brushing 3 times a day instead of 2, and that seems to ease the headaches.
My diet has reverted from healthy to normal, and that hasn’t seemed to make much difference. Except I’m a bit fatter coz I don’t excercise lol.
I also expected my Cholinergic Urticaria to come back during winter, because it was winter when it first started, but it didn’t.
When my Cholinergic Urticaria started I was using my car every day to get to work, now I have a different job and I walk to work. I haven’t been using my car much at all. My car is old, and when it’s cold it’ll freeze on the inside of the windows. Makes me wonder if there’s something in the car that might have caused it.
My skin is very oily. I sweat lots on my palms and groin. I absolutely have to shower every day, sometimes twice.
I’m still okay. I still have Cholinergic Urticaria, I’m aware of it – but I don’t get breakouts anymore.
I’ve been through more stress lately, I’m surprised that didn’t cause my Cholinergic Urticaria to come back.
I still try and drink water regularly, but haven’t been keeping it up as well as when I first started.
I still comb my hair twice a day, which I find relaxes me – kinda odd sounding I know. I comb quite hard against my scalp, I think it helps.
I also think I get headaches due to my teeth, I have some dodgy teeth – so I’ve been brushing 3 times a day instead of 2, and that seems to ease the headaches.
My diet has reverted from healthy to normal, and that hasn’t seemed to make much difference. Except I’m a bit fatter coz I don’t excercise lol.
I also expected my Cholinergic Urticaria to come back during winter, because it was winter when it first started, but it didn’t.
When my Cholinergic Urticaria started I was using my car every day to get to work, now I have a different job and I walk to work. I haven’t been using my car much at all. My car is old, and when it’s cold it’ll freeze on the inside of the windows. Makes me wonder if there’s something in the car that might have caused it.
My skin is very oily. I sweat lots on my palms and groin. I absolutely have to shower every day, sometimes twice.
Title: Re: In “Remission”
Post by: HivesGuy on January 31, 2010, 02:38:06 PM
Thanks for the follow-up Billysielu. It is great hearing from you again.
That’s great to hear that at least you aren’t having bad attacks.
As for me, I am about the same. My wife has been doing a lot of the shopping and so forth, so I haven’t had to deal with the hives as much. But anytime I get hot, I know I will get an attack. Oh well.
But anyway, that is awesome and thanks for popping in to let us know how everything is going.
Hivesguy
That’s great to hear that at least you aren’t having bad attacks.
As for me, I am about the same. My wife has been doing a lot of the shopping and so forth, so I haven’t had to deal with the hives as much. But anytime I get hot, I know I will get an attack. Oh well.
But anyway, that is awesome and thanks for popping in to let us know how everything is going.
Hivesguy
Title: Re: An Indian success story with Thyroid problem
Post by: silvertones on February 04, 2010, 07:15:30 AM
Here is another Australian gentleman who has mentioned that he got rid of Cholinergic Urticaria just within 3 days. I was curious so sent him an e-mail asking for the treatment etc. But he has still not replied to my e-mail.
Here is the link and the statements by him are given below in quotes and bold letters. You need to scroll down to the very bottom of the page to read his comments.Thanks a lot,
James
Here is the link and the statements by him are given below in quotes and bold letters. You need to scroll down to the very bottom of the page to read his comments.Thanks a lot,
James
Title: Re: An Indian success story with Thyroid problem
Post by: HivesGuy on February 07, 2010, 11:50:52 AM
Hey silvertones,
Thanks for posting that, but actually I have already encountered “aussie greg” on this forum before, and I have deleted his posts of his magical cure.
First of all, the guy says he is in australia, but his IP address said otherwise. Second, his story is rather suspicious to me. I don’t buy into the parasite zapper scam at all. People have tried to pass off these quack “cures” for hundreds of years. If you want to know why this is a nonsense idea, I actually even took the time to write a post about it:
Thanks for posting that, but actually I have already encountered “aussie greg” on this forum before, and I have deleted his posts of his magical cure.
First of all, the guy says he is in australia, but his IP address said otherwise. Second, his story is rather suspicious to me. I don’t buy into the parasite zapper scam at all. People have tried to pass off these quack “cures” for hundreds of years. If you want to know why this is a nonsense idea, I actually even took the time to write a post about it:
Anyway, thanks for posting that because I am sure you had no idea that he used to be a member here until I deleted him. I wouldn’t waste the time or money on his “cure” personally.
Title: Re: An Indian success story with Thyroid problem
Post by: silvertones on February 08, 2010, 06:33:54 AM
Yea I was suspicious when I read it but figured some one had asked for it. Just delete it.
Title: Im now feeling 90% better with my Cholinergic Urticaria! Maybe a solution for yourself????
Post by: burr_ger on February 08, 2010, 02:43:03 PM
Hi people,
Over the last few months i had been feeling what seemed like the symtoms for Cholinergic Urticaria. Please see my original post:
The symptoms seemed to be get worse and worse as days went by and was becoming unbearably uncomfortable.
What would happen is when my body heated up I would get tiny red spots around my body especially my upper body and arms. These very uncomfortable as if there were a thousand pins jabbed into me. It felt like the thousands of sweat glands around my body were all blocked by dead skin cells and were unable to produce the sweat to cool the body down.
The only solution would be to cool the body down myself by either finding a cold drink or a place with extreme air conditioning. Once the body cooled it was a huge relief. The increase in body heat would be caused by simply walking to work and it would start to feel uncomfortable about 15mins into the walk. Worst times were at work when you would be just talking to someone and you blushed. This would cause a chain reaction and my face would fill with red spots. As you can imagine it was starting to effect my work quite badly. I can feel it come on and need to make a quick escape to the toilet to calm down cutting the person off in the middle of a conversation.
If you experience similar to what I do then this is what I have done to feel a HUGE amount better. Its based on the fact that once you sweat you feel better as this cools your body down. You need to think of it as stimulating your sweat glands. To do this I bought myself a used cross trainer and started using it every morning for 30mins. The key is to use a program which slowly increases your heart rate (stimulates the sweat glands), sustain this peak heart rate (get the sweat out โ surprisingly this is where you feel good) and then the program brings your heart rate back down (sweating eases off but still continues).
For me, I started feeling better after two days on the cross trainer, this is how quick I felt better. After a week it was just incredible, it was like my sweat glands have kicked into gear have started working again and it feels great. No more uncomfortable situations and running off in the middle of conversations.
I hope that people give this a shot, you will know within a few days if this works for you. You could go to the gym, or even go for a jog. The key is the train the body to slowly sweat, no need to be intense, just enough to get your heart rate up. If you tried it and it doesnโt work for you then at least its good exercise ๐ so surely it is worth a shot.
Please feel free to post your experiences whether its successful or not, if you have any questions please message me and I will gladly answer them.
Over the last few months i had been feeling what seemed like the symtoms for Cholinergic Urticaria. Please see my original post:
The symptoms seemed to be get worse and worse as days went by and was becoming unbearably uncomfortable.
What would happen is when my body heated up I would get tiny red spots around my body especially my upper body and arms. These very uncomfortable as if there were a thousand pins jabbed into me. It felt like the thousands of sweat glands around my body were all blocked by dead skin cells and were unable to produce the sweat to cool the body down.
The only solution would be to cool the body down myself by either finding a cold drink or a place with extreme air conditioning. Once the body cooled it was a huge relief. The increase in body heat would be caused by simply walking to work and it would start to feel uncomfortable about 15mins into the walk. Worst times were at work when you would be just talking to someone and you blushed. This would cause a chain reaction and my face would fill with red spots. As you can imagine it was starting to effect my work quite badly. I can feel it come on and need to make a quick escape to the toilet to calm down cutting the person off in the middle of a conversation.
If you experience similar to what I do then this is what I have done to feel a HUGE amount better. Its based on the fact that once you sweat you feel better as this cools your body down. You need to think of it as stimulating your sweat glands. To do this I bought myself a used cross trainer and started using it every morning for 30mins. The key is to use a program which slowly increases your heart rate (stimulates the sweat glands), sustain this peak heart rate (get the sweat out โ surprisingly this is where you feel good) and then the program brings your heart rate back down (sweating eases off but still continues).
For me, I started feeling better after two days on the cross trainer, this is how quick I felt better. After a week it was just incredible, it was like my sweat glands have kicked into gear have started working again and it feels great. No more uncomfortable situations and running off in the middle of conversations.
I hope that people give this a shot, you will know within a few days if this works for you. You could go to the gym, or even go for a jog. The key is the train the body to slowly sweat, no need to be intense, just enough to get your heart rate up. If you tried it and it doesnโt work for you then at least its good exercise ๐ so surely it is worth a shot.
Please feel free to post your experiences whether its successful or not, if you have any questions please message me and I will gladly answer them.
Title: Re: Im now feeling 90% better! Maybe a solution for yourself????
Post by: HivesGuy on February 09, 2010, 01:18:48 PM
Excellent post, and thanks for sharing.
I think that is a great idea. I really and planning on trying to increase my workout regimines until the sweat starts to come out. I have a hard time sweating. I can usually workout for an hour without a drop.
But I agree, it is almost as if our sweat glands have forgetten how to work right, and we must “retrain” our bodies as you put it.
Great tip.
Just one caution: to those with Cholinergic Urticaria who also go into anyphalactic shock during exercise, this option may not be for them. But for the rest, sounds like a good plan if we can do it.
I think that is a great idea. I really and planning on trying to increase my workout regimines until the sweat starts to come out. I have a hard time sweating. I can usually workout for an hour without a drop.
But I agree, it is almost as if our sweat glands have forgetten how to work right, and we must “retrain” our bodies as you put it.
Great tip.
Just one caution: to those with Cholinergic Urticaria who also go into anyphalactic shock during exercise, this option may not be for them. But for the rest, sounds like a good plan if we can do it.
Title: Re: Gone finally after a year
Post by: Motion on February 16, 2010, 11:48:00 AM
I finally decided to continue with a topical that combined Neomycin and Bacitracin. They were packaged with paraffin (mineral oil) and vaseline which didn’t irritate my skin at all. I used it for 7 days.
What exactly was the name of the second product you tried? I’ve found various products that included Neomycin and Bacitracin in them. Which one did you use?
Title: Re: Gone finally after a year
Post by: Motion on February 18, 2010, 02:09:32 PM
As far as I can tell, any topical antibiotic that doesn’t contain alcohol-based products and attacks both Staphylococcus aureus and Staphylococcus epidermidis will work. I believe those two bacteria are the main cause. If not picked up somewhere, something triggers them to multiply and cause problems.
As far as those two bacteria. Do you or anyone else know some common sources for them? Maybe identifying some of their sources and avoiding them could be helpful assuming they are connected with Cholinergic Urticaria.
Title: Re: Gone finally after a year
Post by: HivesGuy on February 20, 2010, 01:47:08 PM
Hey Motion,
Those bacteria usually appear naturally on the skin. Sometimes they become overgrown and lead to an infection. If you ever do try an antibiotic treatment, just be sure to use something that is safe. As Hex said in this thread, he only used this cream on a very isolated area on the skin. Most creams are not made to cover entire surfaces.
It is certainly possible bacteria could play a role, however, we must also keep in mind that sometimes Cholinergic Urticaria can come and go. So sometimes it can seem as if a particular treatment made it go away, when in reality, it was just coincidental and the Cholinergic Urticaria was going away on its own.
Those bacteria usually appear naturally on the skin. Sometimes they become overgrown and lead to an infection. If you ever do try an antibiotic treatment, just be sure to use something that is safe. As Hex said in this thread, he only used this cream on a very isolated area on the skin. Most creams are not made to cover entire surfaces.
It is certainly possible bacteria could play a role, however, we must also keep in mind that sometimes Cholinergic Urticaria can come and go. So sometimes it can seem as if a particular treatment made it go away, when in reality, it was just coincidental and the Cholinergic Urticaria was going away on its own.
Title: Re: Im now feeling 90% better with my Cholinergic Urticaria! Maybe a solution for yourself????
Post by: MoshiMoshi on February 27, 2010, 08:15:11 AM
Exercise does work, but a speak with my consultant recently brought up the theory that Cholinergic Urticaria is more potent in winter because of the dry and cold air, which can cause problems with the skins defenses. However in humid and hotter environments, Cholinergic Urticaria can be ‘worked off’ with relatively little suffering over time, sometimes called ‘sweating it out’.
So my search has led me to maybe accepting that Cholinergic Urticaria is a permanent thing, like the colour of our eyes. Its just finding ways around it that is the challenge.
So my search has led me to maybe accepting that Cholinergic Urticaria is a permanent thing, like the colour of our eyes. Its just finding ways around it that is the challenge.
Title: Re: CURED of Cholinergic Urticaria…I THINK
Post by: ginette on March 11, 2010, 04:02:05 PM
Hello I read all the messages and see that everyone is stuck in the same dilemma, no doctor can help and antihistamine is the only way to help reduce the symptoms. I started this urticaria last winter 2009 same time as my menopause symptoms, my life was hell, pure hell on top of the itching and stinging I had hot flashes or volcano. Hormone therapy took care of the flashes but the urticaria stayed from march till end of June. I assume it was a part of my hormone, which by the way can still be, for my case. I had a good summer and no itching or tingling, because of the humidity,heat and sun, I assume. This winter 2010 it started again around february I recognised the signs and oh boy I am not happy about it. I am looking into maybe my hormone needs replacement but not sure. I think that I do have cholinergic urticaria and that winter brings it on, like a lot of us. The hypothalmus gland in our brain is responsible for the malfunction of our sweat, from what I can read about it. I am trying to see if there is a way to boost the gland to work properly, with vitamins, food, or other. I tried accupuncture did not work, homeopathic neither. I am changing my diet to more raw food, fruits and veggie less warm food, hot food etc… It is very difficult to function when I just want to rip the skin of my arms, neck and face…sorry somedays are just unbearable. I take antihistamine and sometimes a little piece of my anti anxiety pill, very small amount to calm myself. I am trying to let my body do its thing, but somedays……. I go out in the sun as much as I can. I am a runner and cant wait to shed clothes to be able to let my body sweat and absorb the sun. I am venting and thank you for listening to me, I felt alone with this and now glad to find that I am not abnormal. Thank you and I will write if I find something new. Thank you,
Title: Re: CURED of Cholinergic Urticaria…I THINK
Post by: HivesGuy on March 11, 2010, 04:16:13 PM
Hey ginette,
Excellent post and welcome to the forum!
I can certainly relate to all of your frustrations. This is a very difficult disorder to manage. The stinging and itching can almost be unbearable at times. Cholinergic Urticaria is practically disabling in many cases.
That was interesting how your Cholinergic Urticaria came and went like that. I have also experienced periods of “remission,” only to have the hives come back with equal or stronger intensity. I am confident that we will find a solution though.
I am glad you found this site so you can know that you aren’t alone, and you can share your experience, look at tips, and more. It is a really scary and frustrating experience for most of us when we try to find out what is causing those uncomfortable symptoms.
Thanks again for the great post, and welcome to the forum. If you have any questions, or would like to open a new thread on any board, please feel free. ๐
Excellent post and welcome to the forum!
I can certainly relate to all of your frustrations. This is a very difficult disorder to manage. The stinging and itching can almost be unbearable at times. Cholinergic Urticaria is practically disabling in many cases.
That was interesting how your Cholinergic Urticaria came and went like that. I have also experienced periods of “remission,” only to have the hives come back with equal or stronger intensity. I am confident that we will find a solution though.
I am glad you found this site so you can know that you aren’t alone, and you can share your experience, look at tips, and more. It is a really scary and frustrating experience for most of us when we try to find out what is causing those uncomfortable symptoms.
Thanks again for the great post, and welcome to the forum. If you have any questions, or would like to open a new thread on any board, please feel free. ๐
Title: 4 Months Cured of Cholinergic Urticaria
Post by: OlgaShtain on July 02, 2010, 07:23:16 PM
And i know i probably should have made a journal ill get on it asap, im buying some creatine tomorrow like 1000g for 20 so ill see how that goes. One thing i need to defiantly work on is my water intake.
Title: Cholinergic Urticaria free for a YEAR and 4 Months
Post by: jamie2346 on July 18, 2010, 04:11:30 AM
Hey guys i have posted before and my last post was june,30 2009….. anyways after all this time iam still free from chronic hives. My last attack was maybe april or may of last year. I went all this time without the horrible itching. I know many people thought it would come back once winter came but it didnt. I was fine all winter and spring!!! Do you want to know what the difference was?
Once i stopped thinking about it, it went away completely. Thats right!! The more you think about it, the worse it gets. At one point last year i had a 24/7 itch because thats all i could think about. It was so severe and i was so frustrated and scared to even go outside out of fear of this crazy itch attack lol. I definitely agree that it is a physical stimulus (Dust, allergies, e.t.c.) but you can help yourself greatly by distracting your mind. I dont take any medicines for it but sometimes when i do feel like im getting itchy ill take a non drowsy zyrtec. Funny thing during last year when i suffered from it zyrtec didnt even work. Neither did xanax or hydroxine aka atarax. My doctor prescribed those last two to help with the itching but all they did was put me to sleep.
I know it can be a psychological thing because as i am typing this thinking about it i am starting to itch again all of a sudden lol. You guys just need to distract your mind somehow. In my experience sun therapy does work well. Anything that can force you to sweat. Just be careful and bring some water to drink as you might have trouble sweating like i did when i was suffering from it. Now i sweat so easily i love it. My dad and grandfather suffered from it too when they were my age. They said it was due to stress and anxiety that caused their’s.
Just know that inactivity only makes it worse so you need to do some type of exercise so your body is conditioned to face the rise in body temperature without itching. It is torture at first but it will get much better. I dont mean to promote anything illegal but in my experience marijuana helped out considerably. Alcohol just seemed to make it worse the day after drinking. Just keep your mind off it and you will forget all about this condition and you will be able to walk into a grocery store without having a full blown itch attack while choosing a shopping cart lol. Anyways good luck guys. If you have any questions ask me. Its been almost a YEAR AND A HALF without an itch attack. God bless you all. ๐
Once i stopped thinking about it, it went away completely. Thats right!! The more you think about it, the worse it gets. At one point last year i had a 24/7 itch because thats all i could think about. It was so severe and i was so frustrated and scared to even go outside out of fear of this crazy itch attack lol. I definitely agree that it is a physical stimulus (Dust, allergies, e.t.c.) but you can help yourself greatly by distracting your mind. I dont take any medicines for it but sometimes when i do feel like im getting itchy ill take a non drowsy zyrtec. Funny thing during last year when i suffered from it zyrtec didnt even work. Neither did xanax or hydroxine aka atarax. My doctor prescribed those last two to help with the itching but all they did was put me to sleep.
I know it can be a psychological thing because as i am typing this thinking about it i am starting to itch again all of a sudden lol. You guys just need to distract your mind somehow. In my experience sun therapy does work well. Anything that can force you to sweat. Just be careful and bring some water to drink as you might have trouble sweating like i did when i was suffering from it. Now i sweat so easily i love it. My dad and grandfather suffered from it too when they were my age. They said it was due to stress and anxiety that caused their’s.
Just know that inactivity only makes it worse so you need to do some type of exercise so your body is conditioned to face the rise in body temperature without itching. It is torture at first but it will get much better. I dont mean to promote anything illegal but in my experience marijuana helped out considerably. Alcohol just seemed to make it worse the day after drinking. Just keep your mind off it and you will forget all about this condition and you will be able to walk into a grocery store without having a full blown itch attack while choosing a shopping cart lol. Anyways good luck guys. If you have any questions ask me. Its been almost a YEAR AND A HALF without an itch attack. God bless you all. ๐
Title: I have been cured for a YEAR AND A HALF
Post by: jamie2346 on July 18, 2010, 04:14:01 AM
Hey guys i have posted before and my last post was june,30 2009….. anyways after all this time iam still free from chronic hives. My last attack was maybe april or may of last year. I went all this time without the horrible itching. I know many people thought it would come back once winter came but it didnt. I was fine all winter and spring!!! Do you want to know what the difference was?
Once i stopped thinking about it, it went away completely. Thats right!! The more you think about it, the worse it gets. At one point last year i had a 24/7 itch because thats all i could think about. It was so severe and i was so frustrated and scared to even go outside out of fear of this crazy itch attack lol. I definitely agree that it is a physical stimulus (Dust, allergies, e.t.c.) but you can help yourself greatly by distracting your mind. I dont take any medicines for it but sometimes when i do feel like im getting itchy ill take a non drowsy zyrtec. Funny thing during last year when i suffered from it zyrtec didnt even work. Neither did xanax or hydroxine aka atarax. My doctor prescribed those last two to help with the itching but all they did was put me to sleep.
I know it can be a psychological thing because as i am typing this thinking about it i am starting to itch again all of a sudden lol. You guys just need to distract your mind somehow. In my experience sun therapy does work well. Anything that can force you to sweat. Just be careful and bring some water to drink as you might have trouble sweating like i did when i was suffering from it. Now i sweat so easily i love it. My dad and grandfather suffered from it too when they were my age. They said it was due to stress and anxiety that caused their’s.
Just know that inactivity only makes it worse so you need to do some type of exercise so your body is conditioned to face the rise in body temperature without itching. It is torture at first but it will get much better. I dont mean to promote anything illegal but in my experience marijuana helped out considerably. Alcohol just seemed to make it worse the day after drinking. Just keep your mind off it and you will forget all about this condition and you will be able to walk into a grocery store without having a full blown itch attack while choosing a shopping cart lol. Anyways good luck guys. If you have any questions ask me. Its been almost a YEAR AND A HALF without an itch attack. God bless you all. Smiley
Once i stopped thinking about it, it went away completely. Thats right!! The more you think about it, the worse it gets. At one point last year i had a 24/7 itch because thats all i could think about. It was so severe and i was so frustrated and scared to even go outside out of fear of this crazy itch attack lol. I definitely agree that it is a physical stimulus (Dust, allergies, e.t.c.) but you can help yourself greatly by distracting your mind. I dont take any medicines for it but sometimes when i do feel like im getting itchy ill take a non drowsy zyrtec. Funny thing during last year when i suffered from it zyrtec didnt even work. Neither did xanax or hydroxine aka atarax. My doctor prescribed those last two to help with the itching but all they did was put me to sleep.
I know it can be a psychological thing because as i am typing this thinking about it i am starting to itch again all of a sudden lol. You guys just need to distract your mind somehow. In my experience sun therapy does work well. Anything that can force you to sweat. Just be careful and bring some water to drink as you might have trouble sweating like i did when i was suffering from it. Now i sweat so easily i love it. My dad and grandfather suffered from it too when they were my age. They said it was due to stress and anxiety that caused their’s.
Just know that inactivity only makes it worse so you need to do some type of exercise so your body is conditioned to face the rise in body temperature without itching. It is torture at first but it will get much better. I dont mean to promote anything illegal but in my experience marijuana helped out considerably. Alcohol just seemed to make it worse the day after drinking. Just keep your mind off it and you will forget all about this condition and you will be able to walk into a grocery store without having a full blown itch attack while choosing a shopping cart lol. Anyways good luck guys. If you have any questions ask me. Its been almost a YEAR AND A HALF without an itch attack. God bless you all. Smiley
Title: Re: I have been cured for a YEAR AND A HALF
Post by: HivesGuy on July 20, 2010, 12:29:21 PM
Thanks for the update Jamie.
That is great that your hives have been doing well lately. Unfortunately, mine seem to be getting worse for some unknown reason.
I have tried to not think about them, but unfortunately that is easier said than done. Sometimes they have a mind of their own! Plus managing a site about it makes it hard for me to forget too, lol.
Anyway, I hope they stay gone, and best of luck to you. If anything changes, let us know.
That is great that your hives have been doing well lately. Unfortunately, mine seem to be getting worse for some unknown reason.
I have tried to not think about them, but unfortunately that is easier said than done. Sometimes they have a mind of their own! Plus managing a site about it makes it hard for me to forget too, lol.
Anyway, I hope they stay gone, and best of luck to you. If anything changes, let us know.
Title: No itch and can sweat again – over 4 months now!
Post by: beerhound on July 20, 2010, 02:41:30 PM
Hi,
This is my first post but I hope it may be of help to someone. I have suffered from the same condition for years, really as far back as early high school, that’s 25 years now! The searing unbearable itchiness, redness and little itchy bumps all over, can’t sweat a drop, even when exercising, sudden hot flashes when exercising, going from cold room to warm, in and out of buildings, just being outside on a hot day or various kinds of stress all triggering an attack. Incredibly difficult to live with.
Well, maybe this has been discussed before but what worked for me has been simply drinking loads of water! I know this seems very simple but I’ve tried tablets and creams and all sorts. The doctors couldn’t give me anything that really helped at all but now I drink at least 3 litres of water a day and I haven’t had a single attack in the past 4 months.
I thought of trying this because I was travelling a while back for 6 months and in hot places which was horrible at times with the itchyness but because of the heat I was drinking loads of water and noticed after a while the itchiness started to get less and less until it stopped and I started sweating again. I couldn’t believe the difference in myself, it was such freedom but then when I came home the itchy attacks came back and were as bad as ever.
It took a while for the penny to drop but when I figured it might have to do with the volume of water I was drinking I started to drink loads of it. It’s not easy drinking that much at first but you get into a routine, a pint at breakfast, a couple of litres during the day, another litre or so over the evening.
The first few weeks I saw no real change but slowly the frequency and intensity of the itchy attacks got less and less until now it’s been about 4 months since my last attack. I even go to the gym now which I couldn’t have faced before and when I’m working out I can actually sweat quite a lot which for me is a great feeling!
Maybe this won’t be of use for most people or even anyone but I have found this worked great for me and the best thing is it won’t cost you anything but some time to try. It really has helped me a lot and so I wanted to find somewhere to post this info in the hope it might help someone else. ๐
This is my first post but I hope it may be of help to someone. I have suffered from the same condition for years, really as far back as early high school, that’s 25 years now! The searing unbearable itchiness, redness and little itchy bumps all over, can’t sweat a drop, even when exercising, sudden hot flashes when exercising, going from cold room to warm, in and out of buildings, just being outside on a hot day or various kinds of stress all triggering an attack. Incredibly difficult to live with.
Well, maybe this has been discussed before but what worked for me has been simply drinking loads of water! I know this seems very simple but I’ve tried tablets and creams and all sorts. The doctors couldn’t give me anything that really helped at all but now I drink at least 3 litres of water a day and I haven’t had a single attack in the past 4 months.
I thought of trying this because I was travelling a while back for 6 months and in hot places which was horrible at times with the itchyness but because of the heat I was drinking loads of water and noticed after a while the itchiness started to get less and less until it stopped and I started sweating again. I couldn’t believe the difference in myself, it was such freedom but then when I came home the itchy attacks came back and were as bad as ever.
It took a while for the penny to drop but when I figured it might have to do with the volume of water I was drinking I started to drink loads of it. It’s not easy drinking that much at first but you get into a routine, a pint at breakfast, a couple of litres during the day, another litre or so over the evening.
The first few weeks I saw no real change but slowly the frequency and intensity of the itchy attacks got less and less until now it’s been about 4 months since my last attack. I even go to the gym now which I couldn’t have faced before and when I’m working out I can actually sweat quite a lot which for me is a great feeling!
Maybe this won’t be of use for most people or even anyone but I have found this worked great for me and the best thing is it won’t cost you anything but some time to try. It really has helped me a lot and so I wanted to find somewhere to post this info in the hope it might help someone else. ๐
Title: Re: No itch and can sweat again – over 4 months now!
Post by: HivesGuy on July 22, 2010, 09:12:45 AM
Hey beerhound,
Great post and welcome to the forum!
That is interesting that drinking more water has helped. It has been mentioned before about drinking plenty of fluids/water, but I have never seen anyone suggest that it has helped as much as you recommend.
I used to drink several cold glasses of water per day, and I can’t say that it really helped me. But hey, if it seems to be working for you then stick with it.
I hope the hives stay away, and let us know if anything changes.
Thanks again for sharing that tip, and once again welcome =).
Great post and welcome to the forum!
That is interesting that drinking more water has helped. It has been mentioned before about drinking plenty of fluids/water, but I have never seen anyone suggest that it has helped as much as you recommend.
I used to drink several cold glasses of water per day, and I can’t say that it really helped me. But hey, if it seems to be working for you then stick with it.
I hope the hives stay away, and let us know if anything changes.
Thanks again for sharing that tip, and once again welcome =).
Title: Re: No itch and can sweat again – over 4 months now!
Post by: MoshiMoshi on July 30, 2010, 09:29:27 AM
Definitely interesting, as in the hot summer months (when people usually report they are free from Cholinergic Urticaria) people drink more water than in the winter months (when this forum is alive with Cholinergic Urticaria accounts). I’ll give your theory a go actually to see if my Cholinergic Urticaria stays at bay during the cold winter.
Title: Post Your Cholinergic Urticaria Cure: What Cured Your Hives?
Post by: insomnic on August 07, 2010, 04:45:48 PM
Guys, I just want to share with you real quick my experience with red Ginseng(Chinese herb also known by other names) I took it for a couple days and I started feeling 70% better after first day Trust me, if you havenโt tried it Iโm begging you to try it I tried everything in the book( Atarax, Elavil, Doxepin, Zyrtec, Claritin, and all of them combined doesnโt give me 5% of the benefit of red ginseng) It helped with mood and sleep and my tolerance of Cholinergic Urticaria attacks I doubled up my performance at the gym it gave me a lot of energy, plus there are no side effects I found another post online that person drank ginseng tea for two weeks and cured his Cholinergic Urticaria completely here is the link
Please read instructions carefully, do not take it if you take antidepressants or any other medications Good luck for all of us Serge
ps i give this remedy 5 of 5 stars
ps i give this remedy 5 of 5 stars
Title: Re: omg!!! guys success after dealing with Cholinergic Urticaria
Post by: stacey on August 07, 2010, 09:14:36 PM
I was broke out pretty bad with the hives 3 days ago. I had been taking cold baths which seemed to make it worse. So, I decided to take a hot bath(not scalding) until the bathroom mirrors fogged up and stayed in it for about 20 mins. The hives went away in about an hour after the bath and have not come back since. I would not necessarily recommend this to everybody, since the hot bath may trigger an outbreak in others but it did work for me. There may be some truth in “sweating it out”.
Title: Re: omg!!! guys success after dealing with Cholinergic Urticaria
Post by: No I Got Hives on August 08, 2010, 12:10:28 AM
I was broke out pretty bad with the hives 3 days ago. I had been taking cold baths which seemed to make it worse. So, I decided to take a hot bath(not scalding) until the bathroom mirrors fogged up and stayed in it for about 20 mins. The hives went away in about an hour after the bath and have not come back since. I would not necessarily recommend this to everybody, since the hot bath may trigger an outbreak in others but it did work for me. There may be some truth in “sweating it out”.
I’ve taken hot baths nearly all my life, well my first time I had these “heat hives” was mid June so I took cooler/warm baths instead.
Some reason, I can’t really work with heat. I live in San Francisco, I walked 2 blocks wearing jeans and a black t shirt and I get to itching, not severe but itches with flushing. Today I had my worst, I’ve been telling my parents about my hives, but I don’t know how to explain in chinese until I pretty much hit the worst break out I ever had, I showed them, pretty much from my belly button and up, front and back, I was completely red due to flushing, I probably made it worst by sort of scratching myself with my balled up beater. I guess friction, anger and anxiety makes Cholinergic Urticaria a lot worse if you get a break out.
Nice to hear your successful therapy to Cholinergic Urticaria.
Title: Re: No itch and can sweat again – over 4 months now!
Post by: No I Got Hives on August 08, 2010, 12:13:01 AM
I would like to know how you went through highschool with Cholinergic Urticaria. I just got them mid June, I can not imagine going back to school as a senior and have them break out in class, all I think about is my popularity, what my friends think, what the teachers think, what the whole school would think. I hope I can like supress the symptoms in a week before school starts or dropping out would be the only thing on my mind next to getting rid of my Cholinergic Urticaria. :'(
Title: Re: Unbelievable what Ginseng did for me
Post by: akilpatrick on August 11, 2010, 03:08:30 PM
You said this built up your tolerance for Cholinergic Urticaria, but if you will add simple liquid saint johns wort daily, you will find that the Cholinergic Urticaria stops. I thought it was just me, but I have found others it did the same thing for. After three days, the hives and stinging will GO AWAY!
NOTE: This medication can have serious interactions with other medications such as antihistamines, antidepressants, and others. Do not take this medication before consulting a doctor.
NOTE: This medication can have serious interactions with other medications such as antihistamines, antidepressants, and others. Do not take this medication before consulting a doctor.
Title: I know there are alot of things listed here to try, but….
Post by: akilpatrick on August 11, 2010, 03:27:41 PM
So many of them amount to things to help you endure Cholinergic Urticaria, and some tell you to try things that will help over time. All are good ideas, but I will tell you this, when I tried the liquid Saint Johns Wort, I didnt have to build up to it, I didnt have to endure anything. I took one dose one day, took another dose the second day, and noticed a big difference the second day. On the second day I had stinging, but no hives. Then I took the third dose, and no hives, no stinging, nothing! Now, I had one of the horror cases you read about on here. I had this for 10 years. I had practically stopped living. I even had a big picture window in my home so I could set in the air conditioning and watch my husband and our horses from a cool location. I would get the hives and burning on a daily basic, and at times, nearly go out of my mind with it. I could not function normally. Nothing any doctor or anyone else tried would work for me. So we are talking about a severa case that lasted 10 years, and it was gone in under 3 days. I only take the SJW once a day, in the mornings. I take 4 dropperfuls in juice, and yet a 10 year battle ended in 2-3 days! And it is cheap and easy to get.
3 bottles are $9.99. This isnt an expensive task, nor is it a difficult one. This isnt a gemmick obviously, because I am not going to profit from telling you this. But my 10 year battle was a nightmare that brought me to tears many times, and prevented me from doing alot of things in life, and if I can help someone so they dont have to live like that, then please, let me do so. Try this. What do you have to loose? You will know if it works for you in just a few days. If it does, I would love to know. My name is Angie.
NOTE: This medication can have serious interactions with other medications such as antihistamines, antidepressants, and others. Do not take this medication before consulting a doctor.
3 bottles are $9.99. This isnt an expensive task, nor is it a difficult one. This isnt a gemmick obviously, because I am not going to profit from telling you this. But my 10 year battle was a nightmare that brought me to tears many times, and prevented me from doing alot of things in life, and if I can help someone so they dont have to live like that, then please, let me do so. Try this. What do you have to loose? You will know if it works for you in just a few days. If it does, I would love to know. My name is Angie.
NOTE: This medication can have serious interactions with other medications such as antihistamines, antidepressants, and others. Do not take this medication before consulting a doctor.
Title: Re: I know there are alot of things listed here to try, but….
Post by: HivesGuy on August 11, 2010, 04:39:16 PM
Hello akilpatrick,
Thanks for sharing your experience, and I would definitely be interested in hearing others experience with this. I did edit your post to add a disclaimer, because I did read that this product can have some serious side effects for some people taking antihistamines, etc. (and many on this forum do).
I think they sell this at my local Walmart, but I am not sure if I want to try it or not. It does mess with the serotonin in the brain, and works like an antidepressant. So I have a few reservations about trying it. But I do appreciate your experience and if I try it, I will make a post about it.
Thanks again!
Thanks for sharing your experience, and I would definitely be interested in hearing others experience with this. I did edit your post to add a disclaimer, because I did read that this product can have some serious side effects for some people taking antihistamines, etc. (and many on this forum do).
I think they sell this at my local Walmart, but I am not sure if I want to try it or not. It does mess with the serotonin in the brain, and works like an antidepressant. So I have a few reservations about trying it. But I do appreciate your experience and if I try it, I will make a post about it.
Thanks again!
Title: Re: Unbelievable what Ginseng did for me
Post by: insomnic on August 12, 2010, 07:15:52 PM
Thanks a lot for your reply Angie I am real happy you got rid of Cholinergic Urticaria I never heard about St Johns Wort but I definitely will try it First I am going to stop using ginseng and then try SJW, I dont want to mix anything with ginseng I will update my post soon
Title: Re: Unbelievable what Ginseng did for me
Post by: demonsblood on August 13, 2010, 04:54:16 PM
hey guys keep me posted! I wonder if there could be anything similar between ginseng and SJW since they helped both of you, maybe a common chemical!
Title: Re: Unbelievable what Ginseng did for me
Post by: K236841 on August 18, 2010, 08:45:58 AM
WHOA! you guys seem pretty sure. Does this actually work!?!
Title: Re: Unbelievable what Ginseng did for me
Post by: insomnic on August 19, 2010, 12:11:05 AM
It did for me and some other people I odered St Jons wort and should get it at the end of the week cant wait to try it,,,, After Gensing I have a big hope for StJ I will update ASAP
Title: A prescription that worked and finally, I don’t live in fear.
Post by: PainfulItching on August 19, 2010, 11:24:44 AM
Hey guys,
I perused this site for over a year, reading regularly to find out if anyone had an success and I often wondered, “If someone does get relief, would they bother to come back and let the rest of us know? Or would they forget?” I made a promise that if I ever got relief, I would definitely come back. So here I am.
I worked with a dermatologist who at first put me thru a slew of allergy medications (and high dosages of them) to see if I would have any relief. None of it did anything. I finally decided that what I would do was just do intense exercise (sweat therapy) to get through upcoming big events like my wedding. I lived in dread that I would break out while I was at the altar and have to run away.
Finally, the doctor said he would try one more med as his last ditch effort. After that, he said, he’d have to give up. We tried glycopyrrolate at a relatively high dosage, 3 times a day. (I believe it was 10mg, but please check with your doctor– I don’t have my prescription bottle on me.)
The side effects are… wonky, to say the least. Dry mouth, nausea, and the inability to sweat easily being the big ones. In essence, my doctor explained, what this medication does it soothes the nerves; makes them not as hyperactive or sensitive to stimuli. (Hence why sweating decreases, etc.)
But I did notice relief from that wretched painful itching. And not just relief for a day or two like I would with other medications, but TRUE relief. I… wow. I never realized how frightened I had gotten to go outside. To just be in the sun. To just walk around on a warm day. And here I was.. and while it was warm on my wedding day both outside and at the church, I got through just fine with 3 pills. Last night, I even went for a walk with my wife, and held her hand without fear that just her own warmth wouldn’t instigate a flareup.
Today, I take the medication on an as needed basis. Basically, if I know that I’ll be walking outside, I’ll take a pill about 20-30 mins beforehand. That usually does it and since I’m not on 3 pills a day, the side effects are minimal as well. I don’t have to do sweat therapy every day, and I don’t take allergy medications either. It does sound a bit ‘silver-bullet-ish’, but that’s been how it has been for me.
I hope this helps many of you, because I truly truly understand the misery that this is.
I perused this site for over a year, reading regularly to find out if anyone had an success and I often wondered, “If someone does get relief, would they bother to come back and let the rest of us know? Or would they forget?” I made a promise that if I ever got relief, I would definitely come back. So here I am.
I worked with a dermatologist who at first put me thru a slew of allergy medications (and high dosages of them) to see if I would have any relief. None of it did anything. I finally decided that what I would do was just do intense exercise (sweat therapy) to get through upcoming big events like my wedding. I lived in dread that I would break out while I was at the altar and have to run away.
Finally, the doctor said he would try one more med as his last ditch effort. After that, he said, he’d have to give up. We tried glycopyrrolate at a relatively high dosage, 3 times a day. (I believe it was 10mg, but please check with your doctor– I don’t have my prescription bottle on me.)
The side effects are… wonky, to say the least. Dry mouth, nausea, and the inability to sweat easily being the big ones. In essence, my doctor explained, what this medication does it soothes the nerves; makes them not as hyperactive or sensitive to stimuli. (Hence why sweating decreases, etc.)
But I did notice relief from that wretched painful itching. And not just relief for a day or two like I would with other medications, but TRUE relief. I… wow. I never realized how frightened I had gotten to go outside. To just be in the sun. To just walk around on a warm day. And here I was.. and while it was warm on my wedding day both outside and at the church, I got through just fine with 3 pills. Last night, I even went for a walk with my wife, and held her hand without fear that just her own warmth wouldn’t instigate a flareup.
Today, I take the medication on an as needed basis. Basically, if I know that I’ll be walking outside, I’ll take a pill about 20-30 mins beforehand. That usually does it and since I’m not on 3 pills a day, the side effects are minimal as well. I don’t have to do sweat therapy every day, and I don’t take allergy medications either. It does sound a bit ‘silver-bullet-ish’, but that’s been how it has been for me.
I hope this helps many of you, because I truly truly understand the misery that this is.
Title: Re: Unbelievable what Ginseng did for me
Post by: K236841 on August 19, 2010, 08:36:47 PM
thank you all so much! your guys’ enthusiasm is really making me feel good about this.
I’ve been fine and breakout-free most of the summer, but now I’m feeling it come back and I’m loosing my mind!
I’ve been fine and breakout-free most of the summer, but now I’m feeling it come back and I’m loosing my mind!
Title: Re: A prescription that worked and finally, I don’t live in fear.
Post by: K236841 on August 19, 2010, 08:44:39 PM
Thank you so much for your post. I’m gonna try some other things first, but if that doesn’t work then this is next on the list.
I’m 19 years old and I planned to enlist in the military after I graduated, needless to say I can’t now. I’m just stuck at home all day. I run and sweat every other day, but the itch has never fully gone away….. :'(
I’m 19 years old and I planned to enlist in the military after I graduated, needless to say I can’t now. I’m just stuck at home all day. I run and sweat every other day, but the itch has never fully gone away….. :'(
Title: Re: Unbelievable what Ginseng did for me
Post by: insomnic on August 20, 2010, 12:11:13 AM
Good news you (k286341) didnt have it during summer, mine all year around and get worse in winter you posted a thread about ripping your scin off- I KNOW THAT FEELING It took me 18 months to get diagnosed until than I faught I am the only one in a planet with this I am glad we Have internet and Google I dont know whAT i WOULD DO OTHERWISE
PS i Digged internet in Russia for Cholinergic Urticaria and seems like I will have lot a different approaches for teatment that I wanna share wich you guys all herbs mild modersd Cholinergic Urticaria cured We’ll see
PS i Digged internet in Russia for Cholinergic Urticaria and seems like I will have lot a different approaches for teatment that I wanna share wich you guys all herbs mild modersd Cholinergic Urticaria cured We’ll see
Title: Re: Unbelievable what Ginseng did for me
Post by: K236841 on August 20, 2010, 09:36:24 AM
Wait, so Akilpatrick are you saying add the liquid St. Johns into the red ginseng tea?
Title: Re: A prescription that worked and finally, I don’t live in fear.
Post by: PainfulItching on August 20, 2010, 02:10:51 PM
Hey man, I totally agree with you. I’m not a fan of pills at all, and a reliance on them is not what I condone. And to be fair, this worked for me– but really, people should check with their doctor first to see if it’s an option.
What’s funny is that my doctor has worked with number of Cholinergic Urticaria patients before, and he said it’s always tricky to get any kind of relief. When I thanked him for this solution he said, “No, thank you! You were my guinea pig. I actually prescribe this medication for my patients who have extreme sweat problems. Since it’s an anti-cholinergic I figured I’d try it on you, but I’ve never used this medication in this capacity. I’m glad to hear it works– I’m going to try it on my other Cholinergic Urticaria patients now.”
I do hope that the other therapies work for you before heading for this. Good luck!
What’s funny is that my doctor has worked with number of Cholinergic Urticaria patients before, and he said it’s always tricky to get any kind of relief. When I thanked him for this solution he said, “No, thank you! You were my guinea pig. I actually prescribe this medication for my patients who have extreme sweat problems. Since it’s an anti-cholinergic I figured I’d try it on you, but I’ve never used this medication in this capacity. I’m glad to hear it works– I’m going to try it on my other Cholinergic Urticaria patients now.”
I do hope that the other therapies work for you before heading for this. Good luck!
Title: Re: Unbelievable what Ginseng did for me
Post by: insomnic on August 21, 2010, 12:21:23 AM
St Wort is a plant called Hypericum, when I goolet it some of the products allredy mixed with Ginesing Just loook at the ingridient befor you buy at least you know that they can be mixed
Good luck
Good luck
Title: Re: Unbelievable what Ginseng did for me
Post by: K236841 on August 21, 2010, 09:09:53 PM
Thanks ๐ I just got some today. I’ll let you guys know in 3 days time if it worked for me…
I just had a thought… What if the cure varies upon the cause?
Like for me I’m pretty sure antiboitics started this whole thing, but I don’t know I’m just typing my mind.
What do you guys think?
I just had a thought… What if the cure varies upon the cause?
Like for me I’m pretty sure antiboitics started this whole thing, but I don’t know I’m just typing my mind.
What do you guys think?
Title: Re: A prescription that worked and finally, I don’t live in fear.
Post by: K236841 on August 21, 2010, 09:13:36 PM
Thank you! ๐
Title: Re: A prescription that worked and finally, I don’t live in fear.
August 23, 2010, 05:17:13 PM
im glad you have found something that works for you. im 17 and have this condition very bad and am limited to so much , i have a few questions about sweat thearpy do you think i could contact you somehow ?
Title: Re: Unbelievable what Ginseng did for me
Post by: K236841 on August 24, 2010, 11:05:20 AM
well I’ve been taking st johns worts for 3 days now but I’m still feeling a little itch especially when I get nervous or into kind of a deep sudden sweat.
haven’t really tried the ginseng.
haven’t really tried the ginseng.
Title: Re: Unbelievable what Ginseng did for me
Post by: HivesGuy on August 24, 2010, 11:13:01 AM
Thanks for sharing K236841,
I think it could have been one of those situations where maybe their hives went away spontaneously, and they thought it was because of the medicine. Or, maybe it just worked for them. Or, maybe they were a spammer. Who knows.
There are a few posts on this forum of people being “cured.” One person took vitamin d, others take other medicines, some take replacement hormones, etc. In all honesty, I have about given up hope on being cured. I don’t think anything out there is going to cure me, only if my body somehow figures out a way to rid it.
Many medical articles suggest it does eventually go away on its own (or at least, tends to flare down for years at a time). I am really hoping and praying that mine does that. My hives have been particularly bothersome the past month or so. I just hope and pray they go away for good one day (and the sooner, the better).
Thanks again for sharing, and best of luck to you all in your journey.
I think it could have been one of those situations where maybe their hives went away spontaneously, and they thought it was because of the medicine. Or, maybe it just worked for them. Or, maybe they were a spammer. Who knows.
There are a few posts on this forum of people being “cured.” One person took vitamin d, others take other medicines, some take replacement hormones, etc. In all honesty, I have about given up hope on being cured. I don’t think anything out there is going to cure me, only if my body somehow figures out a way to rid it.
Many medical articles suggest it does eventually go away on its own (or at least, tends to flare down for years at a time). I am really hoping and praying that mine does that. My hives have been particularly bothersome the past month or so. I just hope and pray they go away for good one day (and the sooner, the better).
Thanks again for sharing, and best of luck to you all in your journey.
Title: Re: Unbelievable what Ginseng did for me
Post by: K236841 on August 24, 2010, 03:54:20 PM
You’re whale report! ๐
how long have you had Cholinergic Urticaria hives guy?
how long have you had Cholinergic Urticaria hives guy?
Title: Re: Unbelievable what Ginseng did for me
Post by: HivesGuy on August 24, 2010, 04:57:11 PM
I’ve had it for 10 years now. I first got it for about 6 months. It went away for about 2 1/2 years. Then it came back and I have had it since. So 10 years total (minus the 2 1/2 years remission).
Title: Re: Unbelievable what Ginseng did for me
Post by: insomnic on August 25, 2010, 02:40:51 AM
HIVESGUY you really surprised me man
I never wrote that Ginseng cured my Cholinergic Urticaria, it just helped me get through the day and tolerated it I do agree witch you it my help some and not others The only reason I posted it I found another guy (I dropped link in first post that guy is in Hong Cong) that GS helped, I am not a pharmacist or a sales man I just donโt get it how somebody could fink that it my be spam I am just trying to share my experience get some help and help others During this 2 years every doctor tried to tell me that this is my nerves and ect Until I got diagnosed with Cholinergic Urticaria now websites like this it more like a family Buy the way I been taking ST Wart 3 days I havenโt noticed a lot of difference
Ps Nothing personal , Thanks a lot for
I never wrote that Ginseng cured my Cholinergic Urticaria, it just helped me get through the day and tolerated it I do agree witch you it my help some and not others The only reason I posted it I found another guy (I dropped link in first post that guy is in Hong Cong) that GS helped, I am not a pharmacist or a sales man I just donโt get it how somebody could fink that it my be spam I am just trying to share my experience get some help and help others During this 2 years every doctor tried to tell me that this is my nerves and ect Until I got diagnosed with Cholinergic Urticaria now websites like this it more like a family Buy the way I been taking ST Wart 3 days I havenโt noticed a lot of difference
Ps Nothing personal , Thanks a lot for
Title: Re: Unbelievable what Ginseng did for me
Post by: HivesGuy on August 25, 2010, 03:27:14 AM
Dude—chill out.
I was talking about the St. Johns Wort person. When they originally posted, they included a link to a website on where to buy it. I removed the link. I suspected they might be spamming, but I kept the post anyway just in case.
I wasn’t talking about you–just the St. Johns wort thing. I guess I should have made that more clear—my bad.
I was talking about the St. Johns Wort person. When they originally posted, they included a link to a website on where to buy it. I removed the link. I suspected they might be spamming, but I kept the post anyway just in case.
I wasn’t talking about you–just the St. Johns wort thing. I guess I should have made that more clear—my bad.
Title: Re: Unbelievable what Ginseng did for me
Post by: K236841 on August 25, 2010, 02:35:51 PM
oh boy!
I hope it goes away for good soon.
well, maybe because its still summer, but my breakouts haven’t been as bad as last winter.
I hope it goes away for good soon.
well, maybe because its still summer, but my breakouts haven’t been as bad as last winter.
Title: Re: Unbelievable what Ginseng did for me
Post by: insomnic on August 26, 2010, 02:32:31 AM
Now I see whatโs happening ,,, Since you can delete things I never had a clue what was original post about SJW My bad Although believe it or not I did found out it does been used with combination with other remedies to treat Cholinergic Urticaria abroad I will get the reliable links posted asap after I fly out of the country in a 2 weeks
Ps Thanks for this website
Ps Thanks for this website
Title: Re: Unbelievable what Ginseng did for me
Post by: K236841 on August 31, 2010, 08:15:53 PM
quick question, Hives Guy and everyone else whos has Cholinergic Urticaria Does anyone have any tips to help mentally? because aside from this Cholinergic Urticaria I’ve also been depressed for a while and if my Cholinergic Urticaria gets any worse it could cause me to loose my mind.
I mean I’m not suicidal or anything like that, but as you all know it gets extreamly unbearable at times.
I mean I’m not suicidal or anything like that, but as you all know it gets extreamly unbearable at times.
Title: Re: Unbelievable what Ginseng did for me
Post by: K236841 on August 31, 2010, 08:23:30 PM
and thanks everyone for all these post and this website. it really means a lot to have somewhere to go to about this.
When doctors don’t have answers for you it doesn’t leave you many options
so thank you all very very much. I really mean it. ๐
When doctors don’t have answers for you it doesn’t leave you many options
so thank you all very very much. I really mean it. ๐
Title: Re: Unbelievable what Ginseng did for me
Post by: HivesGuy on September 01, 2010, 05:54:10 AM
Yes I agree K23,
I too really appreciate each and every person’s contribution to this site. I have learned a lot, and it has brought me a lot of pleasure being able to talk to others with this.
I too really appreciate each and every person’s contribution to this site. I have learned a lot, and it has brought me a lot of pleasure being able to talk to others with this.
Title: Re: I know there are alot of things listed here to try, but….
Post by: tohey on September 24, 2010, 04:35:18 AM
Hello,
I would be interested in trying this but I cannot find it. I know the plant exists as a noxious weed in Australia, but I cannot seem to find this available in liquid form for herbal/medicinal use.
I would be interested in trying this but I cannot find it. I know the plant exists as a noxious weed in Australia, but I cannot seem to find this available in liquid form for herbal/medicinal use.
Title: Re: I know there are alot of things listed here to try, but….
Post by: HivesGuy on September 24, 2010, 04:44:49 AM
Hey Tohey,
Some have tried it on here and didn’t see any benefits so far. This is available at most homeopath stores, and online. It really doesn’t matter if it is the pill form or liquid form. If the stuff works at all, it should work regardless of the form it is in. But I am thinking it may have been a coincidence on it going away for this person. Even if it wasn’t a coincidence, it apparently doesn’t work for everyone, as at least a couple of people have tried it with no benefit.
But if you do find it and try it, please be safe and follow doctors orders. Let us know if it did or didn’t work for you, and good luck.
Some have tried it on here and didn’t see any benefits so far. This is available at most homeopath stores, and online. It really doesn’t matter if it is the pill form or liquid form. If the stuff works at all, it should work regardless of the form it is in. But I am thinking it may have been a coincidence on it going away for this person. Even if it wasn’t a coincidence, it apparently doesn’t work for everyone, as at least a couple of people have tried it with no benefit.
But if you do find it and try it, please be safe and follow doctors orders. Let us know if it did or didn’t work for you, and good luck.
Title: Re: My Cholinergic Urticaria is Currently In “Remission”
Post by: billysielu on October 16, 2010, 12:32:07 PM
Quick update: 16 October 2010
I’m still okay, no breakouts this year at all. If I get hot I tend to get drowsy instead, fail to concentrate at work etc.
I’m still combing my hair religiously and vigorously – I don’t know why this helps, but it does seem to keep me calmer.
I’m forcing myself to drink 2l water every day.
Wisdom teeth are done growing – headaches are gone.
Have got my weight under control, just from watching what I eat. Have replaced all my clothes, for looser fitting, relaxing, more comfortable choices. Was in between Medium and Large (UK), so just made the step to just Large instead of trying to fit into Medium. That has had an impact on my relaxation. I’m much more comfortable.
About to move to a new office, so will be using the car again – so if I start getting breakouts I’ll know that contributed, I’ve got savings ready to replace the car at a moment’s notice. ๐
I’m also suspecting mould within the home as a cause. Assuming I don’t have to spend my deposit on a car I could be buying a house in the next year or two – so that would remove that as an irritant.
I’m still okay, no breakouts this year at all. If I get hot I tend to get drowsy instead, fail to concentrate at work etc.
I’m still combing my hair religiously and vigorously – I don’t know why this helps, but it does seem to keep me calmer.
I’m forcing myself to drink 2l water every day.
Wisdom teeth are done growing – headaches are gone.
Have got my weight under control, just from watching what I eat. Have replaced all my clothes, for looser fitting, relaxing, more comfortable choices. Was in between Medium and Large (UK), so just made the step to just Large instead of trying to fit into Medium. That has had an impact on my relaxation. I’m much more comfortable.
About to move to a new office, so will be using the car again – so if I start getting breakouts I’ll know that contributed, I’ve got savings ready to replace the car at a moment’s notice. ๐
I’m also suspecting mould within the home as a cause. Assuming I don’t have to spend my deposit on a car I could be buying a house in the next year or two – so that would remove that as an irritant.
Title: Re: My Cholinergic Urticaria is Currently In “Remission”
Post by: HivesGuy on October 20, 2010, 04:23:19 AM
Thanks for the update billydielu!
I am glad to hear that you are managing the hives well with no current symptoms. I hope everything goes well with the transition for you. Good luck.
Keep us posted if anything changes.
I am glad to hear that you are managing the hives well with no current symptoms. I hope everything goes well with the transition for you. Good luck.
Keep us posted if anything changes.
Title: Six months Hive Free
Post by: bbroom on November 08, 2010, 01:14:54 AM
It’s been a year and a half since I posted. As many of you know, I have suffered with Cholinergic Urticaria for 30 years now. Well, for the second time in 30 years my hives are gone. I noticed their disappearance in May of this year. At the time, I was taking Singulair and Hydroxyzine daily. These had been the only meds that provided any relief. Well, I challanged thier disappearance by quitting the meds completely. I am happy to report that I survived the hot steamy New Orleans summer with no outbreaks. The last time my Cholinergic Urticaria went into remission, it lasted for 5 years. I am hoping for a lifetime remission this go round. My doctor and pharmacist feel that the meds may have a cumulative effect and that I should continue taking them. I have decided to take their advice. Since I have no side effects from either of them, what could it hurt?
Title: Re: My Cholinergic Urticaria is Currently In “Remission”
Post by: bbroom on November 08, 2010, 01:18:12 AM
So glad to hear of your remission ;D. I am currently experiencing the same euphoria. God Speed. bbroom
Title: Re: Six months Hive Free
Post by: HivesGuy on November 08, 2010, 05:07:35 AM
Oh my goodness bbroom,
That is wonderful, wonderful, wonderful news. I am so glad to hear that you are doing better and the hives are in remission. I, too, hope this is the last time you are ever affected by Cholinergic Urticaria. I hope you live hives free for the rest of your life.
Last night I was breaking out in hives during my sleep again, and didn’t sleep good at all. Then, I woke up and checked the forum, and I seen your post. I have to say it made me feel much better and gave me a bit of hope.
My hives were usually more of an annoyance than anything, and I could usually manage them without any meds. However, they continue to get more and more severe. I am considering trying more heavy duty treatments (perhaps trying yours first), if they don’t go away soon.
Thanks again so much for the update. If anything new changes, please stop in to let us know.
Best of luck to you, and God bless.
That is wonderful, wonderful, wonderful news. I am so glad to hear that you are doing better and the hives are in remission. I, too, hope this is the last time you are ever affected by Cholinergic Urticaria. I hope you live hives free for the rest of your life.
Last night I was breaking out in hives during my sleep again, and didn’t sleep good at all. Then, I woke up and checked the forum, and I seen your post. I have to say it made me feel much better and gave me a bit of hope.
My hives were usually more of an annoyance than anything, and I could usually manage them without any meds. However, they continue to get more and more severe. I am considering trying more heavy duty treatments (perhaps trying yours first), if they don’t go away soon.
Thanks again so much for the update. If anything new changes, please stop in to let us know.
Best of luck to you, and God bless.
Title: Re: Six months Hive Free
Post by: bbroom on November 08, 2010, 12:28:59 PM
I was hoping to see success stories when I logged on. Seeing as many posts as there were about “remissions” was hopeful. Going through this once before, I am ever mindful that they may return at any given moment. I still find my self checking for spots and starting to stress if I begin to itch…A mosqito bite can send me off the deep end until I realize it’s not a hive…LOL I could only wish that my course of meds could be the cure all for everyone. I still believe on the most basic level that Stress in a major contributing factor( if not the primary factor) of this condition. I considered their remission a sign that my mind was coming to terms with my husband’s death and that I would survive.(Maybe God had figured I had endured enough~smile~) I certainly hope they are gone for good. But I also know how to live with them if they return. I will continue to check in and see how things are going and to keep all informed of my status. Your forum is a positive venue for those suffering from this condition, and I for one am glad to have found itโฅ Prayers for success are sent to all.
bbroom
bbroom
Title: Re: A prescription that worked and finally, I don’t live in fear.
Post by: Rogerq23 on December 05, 2010, 02:54:15 AM
Nice thread, The thing about the guinea pig almost kill me hahaha it was funny. I really appreciate you for coming back here to tell us the what had cured your Cholinergic U. It made my happy because I asked the same question several time, if people will really come back and help the others stuck in the same thing.
So it means that you are taking medication every day? I actually dont want to rely on pill and medications. I want something that cures it, but well, at least it gets reliefs. I was also wondering, people that suffer from Cholinergic U. cant sweat, then why did he prescribe you something that will make you sweat even less than you could sweat before? That is kinda contradicting the problem. I am just taking benadryl and loratadine, that is all. I usually dont take them. just when i know i will more likely to have a break out or something, but i dont take it when i go to walk or whatever. I want to go to your doctor, where are you from? most doctors even know what C.U. is.
So it means that you are taking medication every day? I actually dont want to rely on pill and medications. I want something that cures it, but well, at least it gets reliefs. I was also wondering, people that suffer from Cholinergic U. cant sweat, then why did he prescribe you something that will make you sweat even less than you could sweat before? That is kinda contradicting the problem. I am just taking benadryl and loratadine, that is all. I usually dont take them. just when i know i will more likely to have a break out or something, but i dont take it when i go to walk or whatever. I want to go to your doctor, where are you from? most doctors even know what C.U. is.
Title: Re: omg!!! guys success after dealing with Cholinergic Urticaria
Post by: Rogerq23 on December 05, 2010, 03:02:32 AM
@ No I Got Hive and everyone else: I have C.U. and i live in SF bay area as well. I dont know how to explain this to my parents, even though they are not with me. They know i get itchy but they dont know exactly how it is. I still really believe it is something in the environment, since i dont get it when i am back in my tropical home country. even though it is hot 365 days a year. I have never heard any dark skin color person suffering about this illness, oh yeah i guess just once.
I have heard people from: USA UK AUSTRALIA South Korea Philipines
White and many asians like myself.
I have heard people from: USA UK AUSTRALIA South Korea Philipines
White and many asians like myself.
Title: Re: No itch and can sweat again – over 4 months now!
Post by: White Rice on January 24, 2011, 12:54:52 PM
I’ve started this as well. Being American I’m trying quarts instead of liters ๐ . Same thing though, I’m trying 3 quarts a day – one with each meal. It’s only been a couple days so I’ll let you know what happens once I’m more into it….figure I’ll give it a good 2 weeks before I render a verdict for me.
Title: Fexofenadine, Zyrtec, Vitamin B complex, Vitamin C and Methionine
Post by: HypoHives on February 11, 2011, 07:43:13 AM
My Symptoms Heat Hives Constipation Rectal problems( if anyone else experience this let me know) Stress and Aggression, depression anxiety etc
What is HypoHives on now?
Fexofenadine 180mg 2x in the mornining Zyrtec 1 x 10mg 2x Vitamin C morning and afternoon 2X vitamin B complex ” 2x L-Methonine ”
What Diet is HypoHIves on?
Gluten-free Avoid Gluten carbs if you can Reduce them greatly, If not go wheat free Avoid dairy this is a must as it makes HYpohives very sick but It mut be avoided
How is HypoHives Feeling?
My heat hive are undercontrol by 89%, Hypo still has bowel problems but is going to see a hydro colonic expert to see if he can break the tangled guts from too much histamine in the body, Hypo thinks alot of hives is to do with stress as I have been to its due to over exposure to adrenaline in the blood chemical imbalance, so Hypohives is going to see doc to help him with stress to see psychiatrist as ive seen in a few post that anti-depressants or muscle relaxants are help greatly. I will report in after I done my colonic treatment and seen the doc and make a report..
HypoHives recommends everyone to try this routine, I hope i have provided good help..
What is HypoHives on now?
Fexofenadine 180mg 2x in the mornining Zyrtec 1 x 10mg 2x Vitamin C morning and afternoon 2X vitamin B complex ” 2x L-Methonine ”
What Diet is HypoHIves on?
Gluten-free Avoid Gluten carbs if you can Reduce them greatly, If not go wheat free Avoid dairy this is a must as it makes HYpohives very sick but It mut be avoided
How is HypoHives Feeling?
My heat hive are undercontrol by 89%, Hypo still has bowel problems but is going to see a hydro colonic expert to see if he can break the tangled guts from too much histamine in the body, Hypo thinks alot of hives is to do with stress as I have been to its due to over exposure to adrenaline in the blood chemical imbalance, so Hypohives is going to see doc to help him with stress to see psychiatrist as ive seen in a few post that anti-depressants or muscle relaxants are help greatly. I will report in after I done my colonic treatment and seen the doc and make a report..
HypoHives recommends everyone to try this routine, I hope i have provided good help..
Title: Re: Fexofenadine, Zyrtec, Vitamin B complex, Vitamin C and Methionine
Post by: HivesGuy on February 11, 2011, 07:50:28 AM
Thanks for the post and welcome to the forum Hypo!
Interesting med combinations! I am excited to try th e fexofenadine myself here in a few weeks. I have had wheat and dairy issues myself. I eat gluten free and dairy free right now, and it helps my stomach issues.
I don’t have a constipation problem though. I am pretty regular right now. It could be the antihistamines causing it, because they can mess with your stomach and cause pain, diarrhea/constipation. So that could be the problem–it may just be a side effect of your meds.
Maybe eating prunes or something would help??
Anyway,thanks again for the post and welcome.
Interesting med combinations! I am excited to try th e fexofenadine myself here in a few weeks. I have had wheat and dairy issues myself. I eat gluten free and dairy free right now, and it helps my stomach issues.
I don’t have a constipation problem though. I am pretty regular right now. It could be the antihistamines causing it, because they can mess with your stomach and cause pain, diarrhea/constipation. So that could be the problem–it may just be a side effect of your meds.
Maybe eating prunes or something would help??
Anyway,thanks again for the post and welcome.
Title: Re: Fexofenadine, Zyrtec, Vitamin B complex, Vitamin C and Methionine
Post by: HypoHives on February 11, 2011, 06:00:45 PM
I saw 100% improvement to stomach on anti-histamine and hyper activity of the bowels, I was told my hives where due to over exposure to adrenaline :S who knows..
Title: Post Your Cholinergic Urticaria Cure: What Cured Your Hives?
Post by: mozartthekat on February 17, 2011, 12:36:16 AM
YOU! Yes…you there on the other side of the screen!
Hi there! My name is Kimmy. If you’d like you can call me mozartthekat or Kimmy. Go with which ever you like. I do not prefer one over the other. ;D
Now that we have gotten acquainted, I would like to tell you about yourself.
I know I don’t know you personally. But what I do know is that you are here on this website just like me. You are on this forum looking for answers. And I am doing the same thing. Unfortunately, these answers are not given to us. We have a condition that has been unjustly given to us without our asking…without even some kind of notice! Like a warning would have been nice.
“Don’t do A or you’ll get B…you really don’t want to get B.” I hate having B! B can go take itself outside and beat itself with a bat for all I care ๐
It’s okay to laugh! Take a moment to laugh. I thought it was funny!
Yes, I know. Having hives isn’t a laughing matter. I do not think it is at all. It is something very serious in nature. It’s painful, embarrassing, and disruptive. Cholinergic Urticaria has changed my life COMPLETELY. >:( I’ve experienced many ups and downs. I think maybe more downs and ups actually. However, it is a goal of mine with great effort to change it to the opposite. It hasn’t been easy for any single person on this forum, nor will it be until medical research comes out with a cure! (I’m still hoping for it ๐ I really am!) And what I can say about you, me, and all the others is that we all have hope. That is something no one can take away from us. We have hope for our future…medically, physically, emotionally, spiritually…you name it! There is hope. And one day all those hopes, prayers, and dreams will come true. How so? Read the posts! Cholinergic Urticaria can go away…but I guess it happens when it feels like it has finished messing with us. Almost like it gave up because it couldn’t break down that person.
I dunno? Maybe not as fast as a friend you know with the same condition or someone who you’ve seen actively post on this forum, but that’s okay. We are here and in this together! We are strong, confident, and amazing people!
We are not like other people. WE ARE BETTER! Why? How? Because we are examples of success! We do more than the average Joe or Jane because of our condition. We take time to plan our activities day in and day out. Is it a burden? Hell yeah! (Excuse my vulgarity) But, we make it each day and carry on with our lives building positive relationships with friends, family,…even strangers. Hello Kimmy! ::Waving::
AND IF THAT ISN’T A SUCCESS STORY, THEN I DON’T KNOW WHAT IS. HIVESGUY -You got something really special about you. You have helped me so much with this site along with many many other people. Thank you so much for all that you do. You may have not overcome this condition, but you have educated and brought together a community where we all can feel safe and comfortable. There aren’t very many places like that out there. YOU ARE ONE OF BEST EXAMPLES OF, IF NOT THE BEST Cholinergic Urticaria SUCCESS STORY! You with your wisdom and most of all your heart for another survivor like me. Thank you…
Title: Re: SUCCESS STORY RIGHT HERE!!!
Post by: HivesGuy on February 17, 2011, 07:21:23 AM
Hey Kimmy,
Thanks for all of your awesome posts (you have blown up the forum lol), and welcome to the forum!
I can definitely tell you are a very “high energy/optimistic” person, and that is great! I think you have a wonderful outlook on life, and I agree with so much of what you said. I also appreciate the kind words you wrote :).
I am glad you aren’t letting this get you down. I try not to either, although I do have my down days for sure every once in a while.
But you are right, things could be worse, and we need to laugh a little, be happy, and hold on to the hope that one day we will be better (which is probably what will happen eventually).
Thanks again for all of your entertaining posts, and welcome!
Thanks for all of your awesome posts (you have blown up the forum lol), and welcome to the forum!
I can definitely tell you are a very “high energy/optimistic” person, and that is great! I think you have a wonderful outlook on life, and I agree with so much of what you said. I also appreciate the kind words you wrote :).
I am glad you aren’t letting this get you down. I try not to either, although I do have my down days for sure every once in a while.
But you are right, things could be worse, and we need to laugh a little, be happy, and hold on to the hope that one day we will be better (which is probably what will happen eventually).
Thanks again for all of your entertaining posts, and welcome!
Title: Progress. Finally?
Post by: Duper on February 17, 2011, 09:48:28 AM
Hey guys, a couple weeks back I posted that I was finally getting dust mite proof bed sheets and pillow cases. I’ve been sleeping with these and my hives have decreased dramatically. I will post a more detailed entry tomorrow regarding what I’ve been doing. As someone who’s been through hell (like the rest of you) for the past five years, I’ll make sure to include as much detail regarding what I’ve tried, what’s worked and what hasn’t, and what you can do. Stay strong, guys.
Title: Re: Progress. Finally?
Post by: Duper on February 18, 2011, 08:11:34 AM
Ok, so about 2 weeks ago I started sleeping with dust mite proof bedsheets and pillow case. However, I’ve been moving around (stayed at 3 different places in the past three weeks), so I haven’t been able to fully dust-mite proof my living conditions, but I’ve been trying the best I can and I can honestly say that is the best thing I’ve ever done for my Cholinergic Urticaria. I recently moved from NY to Beijing and my hives have actually gotten better and the only thing I can attribute it to are the new sheets (Beijing is way worse for Cholinergic Urticaria sufferers than NY; it’s dry, dusty, and polluted). My allergy test showed I have an insane sensitivity to dust mites (level 5, the maximum level), so I’m quite that’s what’s been causing it all these years.
I recommend everybody get tested for allergies, since I’m convinced my Cholinergic Urticaria was a manifestation of my immune system going nuts from the exposure to something I was severely allergic to (every night for several years). However, you guys may have different allergies and it’s somehow causing your Cholinergic Urticaria, even if it’s from a different source.
So I’ll report back in a couple of weeks to tell you guys of any progress. In the mean time, I can share with you some of the methods I have used to combat Cholinergic Urticaria these past 5 years in order of effectiveness.
1) Vitamin B complex tablets. It will make you sweat. I’ve also taken tablets, but I recommend getting liquid vitamin b drops so that you can drop them in your water bottle in the morning and drink it throughout the day. Vitamin B literally changed my Cholinergic Urticaria.
2) Exercise. Something I’ve talked extensively about in the past. If you do not suffer from exercise induced anaphylaxis, please go out and exercise. You will turn red, your skin will burn like hell, people will look at you weird. But YOU MUST. Once you start exercising, your Cholinergic Urticaria will get better and better if you stay consistent. It used to take a very long time to break a sweat, but now I will be drenched after 30 mins on a treadmill. Exercise is also simply one of the best things you can do for your health, please get out there and be active. Do not let this disease beat you, you have a life to live, and you should look darn good while you’re still kicking. I recommend exercising early in the morning because once you break a heavy sweat, you will sweat NO PROBLEM for the rest of the day. It is the easiest way to handling living with this disease.
3) Meditation: stress increases cortisol, cortisol forces your immune system to kick it up a notch to survive, a ridiculously active immune system -> worse breakouts. Meditation will relax you, I promise. Do things to relax and take your mind off the difficult parts of life. You may not think it, but the physiological benefits of positive thinking have been documented in psychological research again and again…and again. It’s very easy to learn some basic meditation moves online and I highly recommend everyone give it a shot.
These are the things that have helped me. I have been researching Cholinergic Urticaria since I was 15 an I’m nearly 21 now. Here’s a list of things that didn’t help.
1) Homeopathic medicine: tried it, liver cleanser, stomach cleanser, candida cleanser, etc. Nothing worked. I experienced the lovely placebo effect at first, but ultimately got me nowhere. Homeopathic medicine is something I wouldn’t bother with…
2) Antihistamines: depending on your tolerance, antihistamines may or may not work for you. In my experience, antihistamines tended to make my hives really red, although they reduced the swelling of my hives. However, my skin tended to stay red for a really long time after a breakout. However, I can definitely see why you would want to take anti-histamines considering how much the pricking hurts. I mostly do not take them for the aforementioned reason, and the fact I would get very drowsy (and antisocial) when I took them. If you do take an antihistamine, I recommend you take zyrtec since it seems to be the least drowsiness-inducing one (I’ve tried a lot). DO NOT TAKE HYDROXYZINE, that stuff can literally put an elephant to sleep.
Anyway, please get out here, exercise a little, live, and be happy. I’m still dealing with Cholinergic Urticaria, although it’s been mitigated quite a bit these past few weeks. I know many of you used to be active, but stopped because of this condition, but you CAN beat it. I sometimes spend over 20hours/week doing physical activity and sweating becomes SO EASY. I walk outside shirtless all day and I feel fine
Here’s a picture of the results I’ve gotten from a strict exercise regimen. Would you ever have thought someone with Cholinergic Urticaria could tolerate the pain and still continue to exercise? You can too. Please get active, stay positive, and live your lives.
You will be happier, healthier, and look better. I promise.
This was quite a run on, but yeah. In my years of combating this illness, I have found these to be the most effective. I know exactly how all of you feel, embarrassed in public, scared to discuss it with others, feeling as though you’re the unluckiest person in the world, asking “why me?”.
It gets better.
I’ll update you guys in a few weeks on my progress. Best of luck everyone!
I recommend everybody get tested for allergies, since I’m convinced my Cholinergic Urticaria was a manifestation of my immune system going nuts from the exposure to something I was severely allergic to (every night for several years). However, you guys may have different allergies and it’s somehow causing your Cholinergic Urticaria, even if it’s from a different source.
So I’ll report back in a couple of weeks to tell you guys of any progress. In the mean time, I can share with you some of the methods I have used to combat Cholinergic Urticaria these past 5 years in order of effectiveness.
1) Vitamin B complex tablets. It will make you sweat. I’ve also taken tablets, but I recommend getting liquid vitamin b drops so that you can drop them in your water bottle in the morning and drink it throughout the day. Vitamin B literally changed my Cholinergic Urticaria.
2) Exercise. Something I’ve talked extensively about in the past. If you do not suffer from exercise induced anaphylaxis, please go out and exercise. You will turn red, your skin will burn like hell, people will look at you weird. But YOU MUST. Once you start exercising, your Cholinergic Urticaria will get better and better if you stay consistent. It used to take a very long time to break a sweat, but now I will be drenched after 30 mins on a treadmill. Exercise is also simply one of the best things you can do for your health, please get out there and be active. Do not let this disease beat you, you have a life to live, and you should look darn good while you’re still kicking. I recommend exercising early in the morning because once you break a heavy sweat, you will sweat NO PROBLEM for the rest of the day. It is the easiest way to handling living with this disease.
3) Meditation: stress increases cortisol, cortisol forces your immune system to kick it up a notch to survive, a ridiculously active immune system -> worse breakouts. Meditation will relax you, I promise. Do things to relax and take your mind off the difficult parts of life. You may not think it, but the physiological benefits of positive thinking have been documented in psychological research again and again…and again. It’s very easy to learn some basic meditation moves online and I highly recommend everyone give it a shot.
These are the things that have helped me. I have been researching Cholinergic Urticaria since I was 15 an I’m nearly 21 now. Here’s a list of things that didn’t help.
1) Homeopathic medicine: tried it, liver cleanser, stomach cleanser, candida cleanser, etc. Nothing worked. I experienced the lovely placebo effect at first, but ultimately got me nowhere. Homeopathic medicine is something I wouldn’t bother with…
2) Antihistamines: depending on your tolerance, antihistamines may or may not work for you. In my experience, antihistamines tended to make my hives really red, although they reduced the swelling of my hives. However, my skin tended to stay red for a really long time after a breakout. However, I can definitely see why you would want to take anti-histamines considering how much the pricking hurts. I mostly do not take them for the aforementioned reason, and the fact I would get very drowsy (and antisocial) when I took them. If you do take an antihistamine, I recommend you take zyrtec since it seems to be the least drowsiness-inducing one (I’ve tried a lot). DO NOT TAKE HYDROXYZINE, that stuff can literally put an elephant to sleep.
Anyway, please get out here, exercise a little, live, and be happy. I’m still dealing with Cholinergic Urticaria, although it’s been mitigated quite a bit these past few weeks. I know many of you used to be active, but stopped because of this condition, but you CAN beat it. I sometimes spend over 20hours/week doing physical activity and sweating becomes SO EASY. I walk outside shirtless all day and I feel fine
Here’s a picture of the results I’ve gotten from a strict exercise regimen. Would you ever have thought someone with Cholinergic Urticaria could tolerate the pain and still continue to exercise? You can too. Please get active, stay positive, and live your lives.
You will be happier, healthier, and look better. I promise.
This was quite a run on, but yeah. In my years of combating this illness, I have found these to be the most effective. I know exactly how all of you feel, embarrassed in public, scared to discuss it with others, feeling as though you’re the unluckiest person in the world, asking “why me?”.
It gets better.
I’ll update you guys in a few weeks on my progress. Best of luck everyone!
Title: Re: Progress. Finally?
Post by: Henrik on February 18, 2011, 02:02:48 PM
Thank you for your post, Duper. It’s really great to hear that your precautions against dust mites seem to help, and your hives are in remission. I can relate to everything you write, also about excercise and frequent sweating being pivotal in the battle against cholinergic urticaria.
Your post gives me hope that I might also one day get rid of this painful condition. It’s very interesting that dust mites could possibly be the cause of your urticaria. I remember several other people on this forum reporting that they got got cured from heat hives after eliminating dust mites. I don’t believe that dust mites are the cause of my symptoms though, since I’ve been through several allergy checks since my heat hives started nine years ago. None of them have come up positive for dust mites (or anything else).
Congratulations with your progress! Please keep us updated on your condition. I find reports from other sufferers about their experiments extremely helpful – both about what worked and what didn’t work in mitigating cholinergic urticaria.
Regards, Henrik
Your post gives me hope that I might also one day get rid of this painful condition. It’s very interesting that dust mites could possibly be the cause of your urticaria. I remember several other people on this forum reporting that they got got cured from heat hives after eliminating dust mites. I don’t believe that dust mites are the cause of my symptoms though, since I’ve been through several allergy checks since my heat hives started nine years ago. None of them have come up positive for dust mites (or anything else).
Congratulations with your progress! Please keep us updated on your condition. I find reports from other sufferers about their experiments extremely helpful – both about what worked and what didn’t work in mitigating cholinergic urticaria.
Regards, Henrik
Title: Re: SUCCESS STORY RIGHT HERE!!!
Post by: ellenbee on February 18, 2011, 11:39:28 PM
Hi, I just joined and cannot figure out how to make a post of my own. Help?? Thanks so much!
This site made me cry when I found it, after 2 years of tests, dermatologists, allergists, and failure, this website matches what has been happening to me PERFECTLY. Doctors thought I was weird, crazy, or imagining things when I described what was happening but this website has given me a name for this terrible disease. Thanks! Hopefully now I can learn how to post and start mentally healing with all the other members on here… Ellen
This site made me cry when I found it, after 2 years of tests, dermatologists, allergists, and failure, this website matches what has been happening to me PERFECTLY. Doctors thought I was weird, crazy, or imagining things when I described what was happening but this website has given me a name for this terrible disease. Thanks! Hopefully now I can learn how to post and start mentally healing with all the other members on here… Ellen
Title: Re: Progress. Finally?
Post by: HivesGuy on February 22, 2011, 02:36:53 PM
Hey Duper,
Whoa, thanks for that awesome write-up and for the great update. I am really glad to hear that you are managing this well, and the new dust-mite proof stuff has helped. Definitely let us know how things progress.
One of the first things I plan on doing once I can finally get sweat to come out again is to start working out. I used to love hard workout routines and I was bulking up myself quite a bit before my Cholinergic Urticaria came back.
Whoa, thanks for that awesome write-up and for the great update. I am really glad to hear that you are managing this well, and the new dust-mite proof stuff has helped. Definitely let us know how things progress.
One of the first things I plan on doing once I can finally get sweat to come out again is to start working out. I used to love hard workout routines and I was bulking up myself quite a bit before my Cholinergic Urticaria came back.
Title: So, yah. ๐
Post by: Cain0 on February 24, 2011, 03:21:19 PM
Hi again everyone, it has been quite a while since I last posted here and the is a reason for that. Since November, I have been exercising twice a day in order to get this thing under control and it has worked remarkably well. I can now do everything I love once more and remain relatively hive free.
So… this is what I do. I wake up at about 7am on a morning and run in my living room with the fire on full blast for a good 15 minutes. i am normally fine for the first 5 minutes then I start feeling the prickles and nips (note: This 5 minutes of pain is not easy and can be very tough, but I always seem able to make it through it). This lasts until around the 10 minute mark, and after that, the pain stops and I start to sweat well. I carry on to 15 minutes to get a good sweat on and to make sure all of the histamine is out of my body. I then take a very hot shower, this is when the hives normally come out, however, there is never anyone there to see them so I just try not to look at them. In 3 mounths of doing this, I have not once had a random attack during the day.
At around 4/5 o clock, I can sort of feel it very slightly, but it has never affected me so far and I dont get a rash at this point. At around 7pm, I repeat the above exercise and take a shower again. The hives are not nearly as bad at this point however, I found that doing the exercise at 7pm relieves the hives the next morning a little and completely for the rest of the night.
By doing this, I have retaken control of this and have got my life back. I can now do everything I love again. This method has helped me so much and I really want everyone here to try it and let me know how it goes because I believe this is the key to controlling this condition.
So… this is what I do. I wake up at about 7am on a morning and run in my living room with the fire on full blast for a good 15 minutes. i am normally fine for the first 5 minutes then I start feeling the prickles and nips (note: This 5 minutes of pain is not easy and can be very tough, but I always seem able to make it through it). This lasts until around the 10 minute mark, and after that, the pain stops and I start to sweat well. I carry on to 15 minutes to get a good sweat on and to make sure all of the histamine is out of my body. I then take a very hot shower, this is when the hives normally come out, however, there is never anyone there to see them so I just try not to look at them. In 3 mounths of doing this, I have not once had a random attack during the day.
At around 4/5 o clock, I can sort of feel it very slightly, but it has never affected me so far and I dont get a rash at this point. At around 7pm, I repeat the above exercise and take a shower again. The hives are not nearly as bad at this point however, I found that doing the exercise at 7pm relieves the hives the next morning a little and completely for the rest of the night.
By doing this, I have retaken control of this and have got my life back. I can now do everything I love again. This method has helped me so much and I really want everyone here to try it and let me know how it goes because I believe this is the key to controlling this condition.
Title: Re: So, yah. ๐
Post by: ken8lk on February 25, 2011, 02:55:40 PM
That was very interesting. Thanks for the tips ๐
Title: Re: So, yah. ๐
Post by: Duper on February 26, 2011, 04:22:22 AM
Great post. I’m glad you are encouraging exercise. I think it is the single greatest thing anyone with Cholinergic Urticaria can do to improve their condition.
To be brutally honest, I get very angry when I see posts on here that read “if I could sweat easier, I’ll start exercising.” Yeah, well, if you exercised, you’d sweat easier. It’s not like some of us with Cholinergic Urticaria don’t feel like there are fire ants biting us everywhere when we engage in physical activity, or have their skin turn so red and develop so many welts that people around them start looking at them and asking if they’re ok. If you exercise, it will hurt, and it will be extremely difficult to handle mentally, but once you get past that initial barrier, you’ll be fine.
To be brutally honest, I get very angry when I see posts on here that read “if I could sweat easier, I’ll start exercising.” Yeah, well, if you exercised, you’d sweat easier. It’s not like some of us with Cholinergic Urticaria don’t feel like there are fire ants biting us everywhere when we engage in physical activity, or have their skin turn so red and develop so many welts that people around them start looking at them and asking if they’re ok. If you exercise, it will hurt, and it will be extremely difficult to handle mentally, but once you get past that initial barrier, you’ll be fine.
Title: Re: So, yah. ๐
Post by: Cain0 on February 26, 2011, 05:50:43 AM
Great post. I’m glad you are encouraging exercise. I think it is the single greatest thing anyone with Cholinergic Urticaria can do to improve their condition.
To be brutally honest, I get very angry when I see posts on here that read “if I could sweat easier, I’ll start exercising.” Yeah, well, if you exercised, you’d sweat easier. It’s not like some of us with Cholinergic Urticaria don’t feel like there are fire ants biting us everywhere when we engage in physical activity, or have their skin turn so red and develop so many welts that people around them start looking at them and asking if they’re ok. If you exercise, it will hurt, and it will be extremely difficult to handle mentally, but once you get past that initial barrier, you’ll be fine.
To be brutally honest, I get very angry when I see posts on here that read “if I could sweat easier, I’ll start exercising.” Yeah, well, if you exercised, you’d sweat easier. It’s not like some of us with Cholinergic Urticaria don’t feel like there are fire ants biting us everywhere when we engage in physical activity, or have their skin turn so red and develop so many welts that people around them start looking at them and asking if they’re ok. If you exercise, it will hurt, and it will be extremely difficult to handle mentally, but once you get past that initial barrier, you’ll be fine.
Exactly, and the more you exercise, the easier it gets. People with this just need to admit that it will come out at some point during the day (either when you get nervous or a bit hot), the trick is to control when it comes out. Once you can control it, it becomes SO much easier.
Title: Re: SUCCESS STORY RIGHT HERE!!!
Post by: willdev on February 26, 2011, 05:13:21 PM
Hi, I just joined and cannot figure out how to make a post of my own. Help?? Thanks so much!
This site made me cry when I found it, after 2 years of tests, dermatologists, allergists, and failure, this website matches what has been happening to me PERFECTLY. Doctors thought I was weird, crazy, or imagining things when I described what was happening but this website has given me a name for this terrible disease. Thanks! Hopefully now I can learn how to post and start mentally healing with all the other members on here… Ellen
This site made me cry when I found it, after 2 years of tests, dermatologists, allergists, and failure, this website matches what has been happening to me PERFECTLY. Doctors thought I was weird, crazy, or imagining things when I described what was happening but this website has given me a name for this terrible disease. Thanks! Hopefully now I can learn how to post and start mentally healing with all the other members on here… Ellen
To the op: I love how enthusiastic you are about the future cure of ChU, you have given me hope that maybe their is hope at the end of the tunnel. Cholinergic Urticaria is horrible to live with, I often walk around with people staring at me. I find it difficult to ask about things in shops because of anxiety about whether I will get an attack. And I can totally relate to ChU changing your life with many ups and down!
Title: Relief
Post by: Brazen on February 28, 2011, 04:31:22 AM
So Saturday morning I was very hot in bed and couldn’t feel the hives, then I had a shower and only had a light tingly feeling on my back, so I immediately started lifting weights (which I’ve avoided because of the hives) and although I still got itchy, it was very mild. I had no hives on my arms like I usually do, and my forehead wasn’t itchy. I think I may be one of the semi-lucky ones whose condition goes away with the summer months. It’s been three days now and I’m nowhere near as bad as i used to be. I’ve noticed the emotional effects have almost gone, it’ll be good to laugh or get embarrassed or even angry without breaking into a rash. I’m so happy. And after a horrible winter the sun has finally come out, hopefully I’ll be seeing more of big yellow face up there in the sky.
No doubt come next October I’ll be back on the forum all miserable again……
No doubt come next October I’ll be back on the forum all miserable again……
Title: Re: Relief
Post by: Rogerq23 on March 08, 2011, 01:00:11 AM
Glad to hear that you are better. Hopefully you come soon to help us and not to because you got Cholinergic Urticaria back.
Title: A small victory (maybe…)
Post by: ken8lk on March 08, 2011, 09:17:03 PM
So yesterday, I finally got my braces off, after two years of having them on. Unfortunately, I have to wear retainers, which are much more painful.
I always suspected that my braces had something to do with my urticaria (I dont like calling it that, since I get no visible symptoms). I might have an allergic reaction to the metal. I have heard that people who suffer from a metal allergy suffer similar symptoms. Now that it’s been two days since it came off, I went inside a sauna. I expected to break out like usual (again, I dont like calling it breaking out, since I only get itchy), but my back and feet tingled and very pathetically, but my scalp was really itchy. This might be a placebo, so I do not know. My back starts to itch crazily most of the time when Im in a sauna, but it wasnt so bad today (my fingers also itch the most, I didnt feel it there in the sauna, but I felt it throughout the day).
I am planning on getting an allergy test to make sure it’s not from dust mites and/or fleas.
What do you reckon? Did I win the battle? Or are they regrouping and planning another attack on me tomorrow?
I always suspected that my braces had something to do with my urticaria (I dont like calling it that, since I get no visible symptoms). I might have an allergic reaction to the metal. I have heard that people who suffer from a metal allergy suffer similar symptoms. Now that it’s been two days since it came off, I went inside a sauna. I expected to break out like usual (again, I dont like calling it breaking out, since I only get itchy), but my back and feet tingled and very pathetically, but my scalp was really itchy. This might be a placebo, so I do not know. My back starts to itch crazily most of the time when Im in a sauna, but it wasnt so bad today (my fingers also itch the most, I didnt feel it there in the sauna, but I felt it throughout the day).
I am planning on getting an allergy test to make sure it’s not from dust mites and/or fleas.
What do you reckon? Did I win the battle? Or are they regrouping and planning another attack on me tomorrow?
Title: Re: Relief
Post by: Snuff on March 09, 2011, 02:11:35 AM
Thats awesome. I actually got mine last winter and when summer came mine went away and came back november but not nearly as bad. I can actually excercise and sweat and i excercised alot and the sweat returned to my back thighs and armpits. But i got lazy and stoped excercising but imma start again soon when i need too. And when i do break out(sometimes while playing world of warcraft) i can sit thru it and and then when it stops i notice i have alot of sweat in armpits and i would be just sitting there not doing anything physical. So ever since they returned after last summer they been alot better:) i can do stuff like go out after excercise hang out its nice<3. Congrats
Title: Something’s that helped me recently
Post by: Duper on March 13, 2011, 01:04:16 AM
Hey guys, I hope things are going well.
If youโve read many of my posts, you have probably figured out that I am big advocate of exercise as a means of mitigating Cholinergic Urticaria (at least temporarily). You guys also probably know that Iโve taken a lot of supplements to help deal with Cholinergic Urticaria, the most useful being vitamin B-complex formulas.
Recently however, I inadvertently discovered something that has worked great for my Cholinergic Urticaria. Iโve long believed that stress is a major cause of Cholinergic Urticaria and thereโs a lot of science suggesting that skin disorders in general can be traced to stress disorders (thereโs an entire field called psychodermatology emanating from this school of thought).
So anyway, Iโve been trying to lose some bodyfat to get ripped for the summer and I started using a new product called Lean Xtreme. The key ingredient in this product is 7-OH (3b,7b-dihydroxy5-Etioallocholen-17-one), which helps control your bodyโs cortisol (stress hormone) levels. High levels of stress increase cortisol, which causes to you store fat (for optimizing survival), but it also does funky things with your immune system, making it overreactive. So Iโve been taking this product, one tablet at night before I go to sleep, and the next day, I’ve noticed I can sweat very easily during my exercises.
So thatโs just my experience with the product so now. It’s been a great aid for my exercise and my Cholinergic Urticaria, what more could a guy could ask for?
The product is available on lots of sites online (including amazon.com), and I’ve noticed no negative side effects; but I did a lot of research before starting it and other people have reported sore joints/joint pain.
I’ll update later on my condition, but IF YOU DO INTEND TO START, BE CAREFUL. YOUR ENDOCRINE SYSTEM SHOULD NOT BE MESSED AROUND WITH RECKLESSLY. Consult your doctor or make sure to do a lot of research beforehand.
If youโve read many of my posts, you have probably figured out that I am big advocate of exercise as a means of mitigating Cholinergic Urticaria (at least temporarily). You guys also probably know that Iโve taken a lot of supplements to help deal with Cholinergic Urticaria, the most useful being vitamin B-complex formulas.
Recently however, I inadvertently discovered something that has worked great for my Cholinergic Urticaria. Iโve long believed that stress is a major cause of Cholinergic Urticaria and thereโs a lot of science suggesting that skin disorders in general can be traced to stress disorders (thereโs an entire field called psychodermatology emanating from this school of thought).
So anyway, Iโve been trying to lose some bodyfat to get ripped for the summer and I started using a new product called Lean Xtreme. The key ingredient in this product is 7-OH (3b,7b-dihydroxy5-Etioallocholen-17-one), which helps control your bodyโs cortisol (stress hormone) levels. High levels of stress increase cortisol, which causes to you store fat (for optimizing survival), but it also does funky things with your immune system, making it overreactive. So Iโve been taking this product, one tablet at night before I go to sleep, and the next day, I’ve noticed I can sweat very easily during my exercises.
So thatโs just my experience with the product so now. It’s been a great aid for my exercise and my Cholinergic Urticaria, what more could a guy could ask for?
The product is available on lots of sites online (including amazon.com), and I’ve noticed no negative side effects; but I did a lot of research before starting it and other people have reported sore joints/joint pain.
I’ll update later on my condition, but IF YOU DO INTEND TO START, BE CAREFUL. YOUR ENDOCRINE SYSTEM SHOULD NOT BE MESSED AROUND WITH RECKLESSLY. Consult your doctor or make sure to do a lot of research beforehand.
Title: How Do You Know….
Post by: White Rice on March 14, 2011, 11:41:55 AM
when your hives are getting better/going away?
With the weather change I am starting to be able to sweat, but still getting pretty good pain at the same time…but it’s an improvement because I wasn’t able to sweat over the winter at all. It seems to take longer before you actually see my hives too. Any thoughts? Just trying to figure out if this means I’m getting better or not?
With the weather change I am starting to be able to sweat, but still getting pretty good pain at the same time…but it’s an improvement because I wasn’t able to sweat over the winter at all. It seems to take longer before you actually see my hives too. Any thoughts? Just trying to figure out if this means I’m getting better or not?
Title: Re: A small victory (maybe…)
Post by: ken8lk on March 15, 2011, 10:03:59 PM
False alarm. It was a placebo.
Well, at least I can scratch that off the list. I forgot to mention that I now drink a lot of water and take vitamin Ds, which actually kind of worked.
Well, at least I can scratch that off the list. I forgot to mention that I now drink a lot of water and take vitamin Ds, which actually kind of worked.
Title: Re: A small victory (maybe…)
Post by: AdamM on March 15, 2011, 11:49:52 PM
You didn’t get them taken off just because you thought it would help did you?
Title: Re: A small victory (maybe…)
Post by: Duper on March 15, 2011, 11:56:53 PM
You didn’t get them taken off just because you thought it would help did you?
Probably not if he had them on for two years. While on the subject, I got dental work done to remove mercury amalgam fillings from my mouth just because I thought they were causing my Cholinergic Urticaria; it was like living knowing you had poison in your mouth.
$2,000+ later, nothing changed. Although I don’t regret it at all; better to be safe than sorry. Money comes and goes, but you’ve only got one life. Eliminating possible causes is a big part to finding your cure.
Title: Re: A small victory (maybe…)
Post by: ken8lk on March 16, 2011, 04:12:23 PM
Nah, I waited until my treatment was done. But I still have to wear retainers though.
I now think that not drinking enough water is the problem. Mine started right after I stopped doing cross country running, and during my season I would drink lots of water.
I now think that not drinking enough water is the problem. Mine started right after I stopped doing cross country running, and during my season I would drink lots of water.
Title: I’m winning the battle.
Post by: AdamM on March 18, 2011, 12:59:39 PM
So last week I woke up tired of hives.
I told myself its my body dammit and I will call the shots.
I took some Allegra for a few days and started to do sweat therapy at the gym. The Allegra eased the pain during this beginning process within 3 days I was able to stop taking Allegra completely. I then decided to stop taking Allegra and noticed that my hives are less painful by the day and start later and end quicker. I continue to do this every day and finally feel like I have my body back.
I have vowed to run every day rain or shine whether I go to the gym or run outside.
I recommend this treatment to anyone it hurts at first but take your most effective anti-histamine combination and use sweat therapy and eventually wean yourself off the medication. You can either have pain every day or you can have 5 – 10 minutes of severe pain for a few days and have your hives go away or reduce greatly.
Take a epi-pen if you have to.
I will also continue to stay regular on this site and find more information about this condition I also hope that I can one day start a research fund. I’m just so happy because assuming I get blessing from the surgeon general office I can get another ship date from the Air Force.
Wish me luck on that last bit.
I told myself its my body dammit and I will call the shots.
I took some Allegra for a few days and started to do sweat therapy at the gym. The Allegra eased the pain during this beginning process within 3 days I was able to stop taking Allegra completely. I then decided to stop taking Allegra and noticed that my hives are less painful by the day and start later and end quicker. I continue to do this every day and finally feel like I have my body back.
I have vowed to run every day rain or shine whether I go to the gym or run outside.
I recommend this treatment to anyone it hurts at first but take your most effective anti-histamine combination and use sweat therapy and eventually wean yourself off the medication. You can either have pain every day or you can have 5 – 10 minutes of severe pain for a few days and have your hives go away or reduce greatly.
Take a epi-pen if you have to.
I will also continue to stay regular on this site and find more information about this condition I also hope that I can one day start a research fund. I’m just so happy because assuming I get blessing from the surgeon general office I can get another ship date from the Air Force.
Wish me luck on that last bit.
Title: Re: So, yah. ๐
Post by: Cain0 on March 25, 2011, 10:52:02 AM
Hi, Id thought i’d update.
The exercise is still helping a lot and I have stopped taking my anti-histamines, but I still get my hive attack once a day, every day.
The exercise is still helping a lot and I have stopped taking my anti-histamines, but I still get my hive attack once a day, every day.
Title: Re: So, yah. ๐
Post by: ken8lk on March 25, 2011, 05:38:46 PM
How bad are the attacks? Can you completely ignore them with the sweat therapy? How bad are they compared to the ones before your sweat therapy?
Title: Re: So, yah. ๐
Post by: LookMaNoHives on March 29, 2011, 08:34:08 PM
Hey Guys! I just want to say that 5 days ago I started this sweat therapy and it is working! When I was only on an antihistamine there was no way for me to do this. Since I started taking Pepcid along with Cyproheptadine I felt soo much better. I have been walking 2 miles everyday on the treadmill. The first time was kind of rough. I was itchy and prickly and hivey, but every day since my hives and itchiness has gone down dramatically! After 5 days (4 days of walking 2 miles) I sweated more than I have in the last 7 months! Also Day 5 (today) I had no hives or itchiness (except on my head because my sweat was running down it!! Gross I know, but its a huge victory!) I understand how other people simply can’t do this therapy. It can be very dangerous and I was in that group up until I started taking Pepcid. As I do not like taking more than one antihistamine, I am trying Allegra very soon and hope for even better results! Tomorrow is my first day of cardio… Hope I live to tell about it!
Title: Cured… Maybe?!
Post by: LookMaNoHives on March 31, 2011, 07:48:57 PM
Hey guys! This is a little early but I just had to share! So I have been completely hive free for 3 days! And when I say completely I mean completely. I can exercise and sweat without itching, tingling, or hives and it is amazing! I’ve tried so many things over the last 7 months and I think I finally found something that is working. I know it is starting to warm up so I may relapse in the winter months, but all of my problems started in the summer so here is to positive thinking!
First I’m going to say what I have tried and didn’t work to let everyone know where I am coming from. I was already taking Zyrtec regularly before I moved into college where my problems stared. I’m pretty sure the house I moved into is full of dust and dust mites which triggered my Cholinergic Urticaria. So obviously Zyrtec didn’t do a thing. I tried Benadryl and Claritan also before I went to the allergist. They did nothing. I was miserable. I had to run to my car and blast the air conditioning if I went anywhere. I finally got into the allergist a month later and they prescribed me Xyzal (purer form of Zyrtec) and it helped a bit. I could stand to go outside for a little bit but I couldn’t exercise at all. It eventually stopped working and I was changed to Cyproheptadine (first generation anti-histamine like Benadryl). This worked even better but I could not exercise still. Winter was setting in by this time and I would break out everytime I went into a heated building and didn’t get my coat off fast enough. This was very unpleasant. I cried all the time because I just felt so hopeless. My allergist told me I was no longer obligated to call anymore because I would have this the rest of my life and will just have to control it as much as I can. This made me cry even more. My fiance told someone about it and he had a hive problem also (not Cholinergic Urticaria) and his specialist recommended Pepcid. Its an H2 antagonist which is different than my other antihistamine so I gave it a try. It made me feel soo much better! When I would normally break out before was reduced a ton now with both medications. I’ve tried this for a couple weeks and finally got the courage to try this sweat therapy that every one recommends because I could stand my break outs.
I’ve been walking 2 miles on the treadmill everyday. The first day I broke out a little, but not super bad. The second day I broke out even less, the third day I didn’t break out at all. I had to take a break the next day because I had to work and go to school. The 5th day I was nervous since I had taken a break but still no hives and went even faster! The 6th day I decided to be brave and test my limits and went to a cardio step class. NO HIVES! It felt amazing! I just bought some Allegra that I might try and see if it works enough so I don’t have to take 2 antihistamines because it is really hard on my eyes and I ended up with an ulcer from my contacts. Anyway, that is my story so far! I will keep you updated on what happens!
First I’m going to say what I have tried and didn’t work to let everyone know where I am coming from. I was already taking Zyrtec regularly before I moved into college where my problems stared. I’m pretty sure the house I moved into is full of dust and dust mites which triggered my Cholinergic Urticaria. So obviously Zyrtec didn’t do a thing. I tried Benadryl and Claritan also before I went to the allergist. They did nothing. I was miserable. I had to run to my car and blast the air conditioning if I went anywhere. I finally got into the allergist a month later and they prescribed me Xyzal (purer form of Zyrtec) and it helped a bit. I could stand to go outside for a little bit but I couldn’t exercise at all. It eventually stopped working and I was changed to Cyproheptadine (first generation anti-histamine like Benadryl). This worked even better but I could not exercise still. Winter was setting in by this time and I would break out everytime I went into a heated building and didn’t get my coat off fast enough. This was very unpleasant. I cried all the time because I just felt so hopeless. My allergist told me I was no longer obligated to call anymore because I would have this the rest of my life and will just have to control it as much as I can. This made me cry even more. My fiance told someone about it and he had a hive problem also (not Cholinergic Urticaria) and his specialist recommended Pepcid. Its an H2 antagonist which is different than my other antihistamine so I gave it a try. It made me feel soo much better! When I would normally break out before was reduced a ton now with both medications. I’ve tried this for a couple weeks and finally got the courage to try this sweat therapy that every one recommends because I could stand my break outs.
I’ve been walking 2 miles on the treadmill everyday. The first day I broke out a little, but not super bad. The second day I broke out even less, the third day I didn’t break out at all. I had to take a break the next day because I had to work and go to school. The 5th day I was nervous since I had taken a break but still no hives and went even faster! The 6th day I decided to be brave and test my limits and went to a cardio step class. NO HIVES! It felt amazing! I just bought some Allegra that I might try and see if it works enough so I don’t have to take 2 antihistamines because it is really hard on my eyes and I ended up with an ulcer from my contacts. Anyway, that is my story so far! I will keep you updated on what happens!
Title: Read this if you take daily medications or over the counter drugs each day
Post by: deeskay on April 01, 2011, 12:21:38 PM
Starting in Jan-10โ I broke out in my first hives attack which progressed to chronic hives (2-4 times per week) and medically diagnosed at a Major SoCal University Medical Center as โChronic Hivesโ. I self-determined in addition that I also had pressure hives, (pushed on my lips at a board of directors meeting in Los Angeles, while being bored to death, and to my amazement my lip puffed up to the size of my thumb in 20 minutes in front of the board. Slightly embarrassing! and didnโt do that again) I have now been hives free for 60 days and here is my story. I am a young bypass patient (first bypass at age 51) with a family history of heart disease. After my bypass surgery I was put on a regiment of 6 different prescriptions every day since 2001 without any side effects and feeling great. I have no other medical conditions to speak of other than an occasional bout of asthma. My allergist suggested I stop taking several of my pills for a 30 day period to see if any of them might be causing the โChronic Hivesโ, he did a conference with my cardiologist to set up a plan and monitoring process while I was not taking these important pills, and then had me come back each week for a follow-up. We went through all 6 prescriptions with no success and then I started with the internet much like everyone after you figure out no one really has the answer and you better see about alternative options. By the way, my outbreaks are severe but no worse than anything I am reading on this blog. They are simply a โpain itch in my a__โ. Several of my pills on blog sites had suspicious possibilities but I went off them for 50 days and still had the hives. This past November I had my regular heart checkup and asked the cardiologist to find me alternative drugs, one at a time for all my heart medications. First the โLipitorโ (after 60 days still had the hives) and my second pill โaccuprilโ. Went off it in November and my last Chronic hives attack was in late Feb-2011. My suggestion is, under medical supervision only, if you are on different prescriptions each day, or take over the counter anything like aspirin, vitamins, and fish oils. Anythingโฆeliminate them for more than 60 days (the longer the better) each prescription to evaluate its reaction concerning your hives. Work with your different doctors that are treating you for your various conditions and get them to communicate so you donโt end up dying from your original disease while curing your hives. Research shows that medications (prescription or over-the-counter) take different times to get out of your system but the factor that the doctors did not tell me is that although the medication is out of your system and maybe not detectible, your โmast cells and their receptorsโ are still sensitive because of the original medication (reagent) to their surroundings and have a knee jerk reaction to other reagents and thus keep telling the immune system to fight thus producing hives until they finally calm down. My theory only is the original reagent no longer makes โThe Mast Cellsโ hyper-sensitive when they are out of your system completely. My allergist originally told me that โChronic Hivesโ can stop as fast as they started so that is also iis in the back of my mind as the โwhyโ.
Title: Re: So, yah. ๐
Post by: ken8lk on April 01, 2011, 02:13:03 PM
I’m happy to hear that another innocent sufferer defeated Chu ๐
How long does the sweat therapy last, though? If you were to do that for a month, would you be hive-free for that whole month?
How long does the sweat therapy last, though? If you were to do that for a month, would you be hive-free for that whole month?
Title: Re: Read this if you take daily medications or over the counter drugs each day
Post by: nowash on April 01, 2011, 03:14:47 PM
ACE inhibitors supposedly inhibit bradykinin degradation, which would cause angioedema.
Sucks you got it at a BoD meeting; glad you figured it out!
Sucks you got it at a BoD meeting; glad you figured it out!
Title: I have not had an attack for 6mths
Post by: Newear2006 on April 05, 2011, 02:16:34 AM
I had posted a long time ago that I am starting homeopathic treatment for cholinegic urticaria. It has been a complete success as I have not got an attack for 6 months now. I do feel slightly itchy before I start sweating, but this too is becoming rare. I can say I am finally cured!
It was a harrowing 6 years and I am glad it’s over for now.
It was a harrowing 6 years and I am glad it’s over for now.
Title: Re: I have not had an attack for 6mths
Post by: Darkhorse on April 05, 2011, 05:17:22 PM
Elaborate on your homeopathic treatment
Title: Re: Something’s that helped me recently
Post by: Darkhorse on April 05, 2011, 05:29:25 PM
Found some possible evidence of it’s immune regulation effects
“A larger dose of 7ฮฒ-hydroxy-DHEA (50 mg/kg) was necessary for a similar effect. These results suggest that in tissues where immune response takes place, the locally-produced 7-hydroxy metabolites of PREG and DHEA are involved in a process which may participate in the physiological regulation of the body’s immune response.”
Source:
The Journal of Steroid Biochemistry and Molecular Biology Volume 50, Issues 1-2, July 1994, Pages 91-100 Pregnenolone and dehydroepiandrosterone as precursors of native 7-hydroxylated metabolites which increase the immune response in mice
7-OH along with hundreds of others can help to regulate the immune system, I might order some raw 7-OH to experiment with at a later date.
“A larger dose of 7ฮฒ-hydroxy-DHEA (50 mg/kg) was necessary for a similar effect. These results suggest that in tissues where immune response takes place, the locally-produced 7-hydroxy metabolites of PREG and DHEA are involved in a process which may participate in the physiological regulation of the body’s immune response.”
Source:
The Journal of Steroid Biochemistry and Molecular Biology Volume 50, Issues 1-2, July 1994, Pages 91-100 Pregnenolone and dehydroepiandrosterone as precursors of native 7-hydroxylated metabolites which increase the immune response in mice
7-OH along with hundreds of others can help to regulate the immune system, I might order some raw 7-OH to experiment with at a later date.
Title: Re: I have not had an attack for 6mths
Post by: Newear2006 on April 06, 2011, 03:02:23 AM
I have no clue on the remedy that I was given. My Homeopath is an old school weird guy who refuses to tell me anything about the treatment. It was the usual 4 white sugar pills 3 times a day affair. I had this regime for about six months during which I had very very gradual cessation of symptoms. On a side note – I fall sick like everyone else now, cough cold fever type of sick a couple of times a year, this is significant as I had stopped falling sick when I was getting Cholinergic Urticaria.
Title: Re: I have not had an attack for 6mths
Post by: Darkhorse on April 06, 2011, 07:29:42 AM
That’s crazy ๐ฎ but hey, you can’t agrue with results ! ;D
Title: Re: Read this if you take daily medications or over the counter drugs each day
Post by: Darkhorse on April 09, 2011, 11:11:10 AM
Drug type 1 hypersensitive reactions is one of the main causes of rashes and hives so it’s completely understandable
I would love to see any studies if you can quote that show drugs can stay in your system after the half life of the drugs have in theory been eliminated from the body.
I am aware that some toxins can get stored in adipose tissue and when you exercise or eat under maintenance of calories your body needs, you can start to break down to storage fat and cause the release of the drugs into the bloodstream that otherwise have been stored away from a reaction receptor, so to say.
Drugs can have so many different pathways in which they can effect the body and be stored..
Unlimited possibilities!
Defiantly something to consider when you first get hives
To look back on all drugs administered with a time frame of 12 or so months previous
I would love to see any studies if you can quote that show drugs can stay in your system after the half life of the drugs have in theory been eliminated from the body.
I am aware that some toxins can get stored in adipose tissue and when you exercise or eat under maintenance of calories your body needs, you can start to break down to storage fat and cause the release of the drugs into the bloodstream that otherwise have been stored away from a reaction receptor, so to say.
Drugs can have so many different pathways in which they can effect the body and be stored..
Unlimited possibilities!
Defiantly something to consider when you first get hives
To look back on all drugs administered with a time frame of 12 or so months previous
Title: FINALLY ๐ย
April 10, 2011, 12:50:21 PM
april 7th 2011 , I finally sweated , it was like winning the lottery , i have had this condition for a year and a half very bad , and for the last couple weeks i went to the gym twice a day for 10-20 min and just worked out with alot of pain and no sweat and just let my body get use to the heat , everyday it got easier and easier untill finally i sweat . i beleive this would really work for alot of ppl . what drove me to do this were people on this site telling there stories and taking tips from everyone , so thank you so much @ HIVESGUY you have gave me back my life!
Title: Re: FINALLY ๐
Post by: HivesGuy on April 10, 2011, 01:07:17 PM
That is great news. I hope you are able to continue in keeping your symptoms down, and that this works for you for a long time. Thanks for sharing, and thanks to you and all who have contributed to this forum.
Title: Re: I have not had an attack for 6mths
Post by: Newear2006 on April 13, 2011, 07:47:27 AM
Some new information. I had an Cholinergic Urticaria attack last night for the first time in six months or so. On the previous day I had a severe back spasm (upper back) triggered by some powerkiting on the beach and a friend gave me a pain med which I later realised was an opiod (opium based). I have not had an attack yet. Pretty much back to normal with sweating and everything today{fingers crossed}. So no opiates for me in the future, not that I am particularly fond of them.
Title: Re: My Cholinergic Urticaria is Currently In “Remission”
Post by: billysielu on April 18, 2011, 09:21:38 AM
Quick update: 18 April 2011
I’m still having a normal life – no breakouts since my last update. I do get occasional tingling, enough to keep me aware that Cholinergic Urticaria isn’t completely gone.
I spent a few hours sunbathing last weekend, got sunburn and everything, without a trace of Cholinergic Urticaria. ๐
I’m particularly careful to get my temperature under control when I get out of the shower. This is my routine immediately after getting out the shower: – Apply cooling after-shave gel (cools skin) – Comb hair (calming) – Brush teeth (refreshing) – Clear nose (for easier breathing) – Drink water (cools inside the body)
Through continued diet modifications – I’ve lost roughly 1 stone in weight since I last posted. I don’t believe that has much bearing on Cholinergic Urticaria. I plan on losing a further stone by the end of the year.
I did replace the car – which also made no difference – so I don’t think that had anything to do with Cholinergic Urticaria either.
I’m still living in the same place, which I suspect as the cause, but can’t afford to move until next year.
I’m aware that I’m almost at 2 years of “remission”, which we defined as starting after having 1 symptom-free month. We also defined “gone” as 3 years symptom-free. I think this is going to need an update in a year’s time, because I think I’ll be 3 years without symptoms, but still have awareness that Cholinergic Urticaria is not strictly “gone”.
I’m still having a normal life – no breakouts since my last update. I do get occasional tingling, enough to keep me aware that Cholinergic Urticaria isn’t completely gone.
I spent a few hours sunbathing last weekend, got sunburn and everything, without a trace of Cholinergic Urticaria. ๐
I’m particularly careful to get my temperature under control when I get out of the shower. This is my routine immediately after getting out the shower: – Apply cooling after-shave gel (cools skin) – Comb hair (calming) – Brush teeth (refreshing) – Clear nose (for easier breathing) – Drink water (cools inside the body)
Through continued diet modifications – I’ve lost roughly 1 stone in weight since I last posted. I don’t believe that has much bearing on Cholinergic Urticaria. I plan on losing a further stone by the end of the year.
I did replace the car – which also made no difference – so I don’t think that had anything to do with Cholinergic Urticaria either.
I’m still living in the same place, which I suspect as the cause, but can’t afford to move until next year.
I’m aware that I’m almost at 2 years of “remission”, which we defined as starting after having 1 symptom-free month. We also defined “gone” as 3 years symptom-free. I think this is going to need an update in a year’s time, because I think I’ll be 3 years without symptoms, but still have awareness that Cholinergic Urticaria is not strictly “gone”.
Title: Re: My Cholinergic Urticaria is Currently In “Remission”
Post by: ken8lk on April 18, 2011, 06:19:09 PM
I am very glad to hear that another sufferer is having a normal life ๐
I heard that not drinking enough water has something to do with it…what do you reckon?
I heard that not drinking enough water has something to do with it…what do you reckon?
Title: Re: My Cholinergic Urticaria is Currently In “Remission”
Post by: billysielu on April 19, 2011, 02:29:21 AM
I wouldn’t rule it out-
I used to drink mostly coke; now I drink a lot of water and not much else.
I used to drink mostly coke; now I drink a lot of water and not much else.
Title: Re: My Cholinergic Urticaria is Currently In “Remission”
Post by: HivesGuy on April 19, 2011, 08:12:07 AM
Thanks for the update! I am really glad to hear that you are still managing your hives, and they are not bothering you. That is always inspiring to hear for the rest of us who need a little hope from time to time.
Title: My Cholinergic Urticaria symptoms have disappeared
Post by: NimNims on April 23, 2011, 02:57:06 PM
Okay,
It’s been a good 2 months and I have not felt Cholinergic Urticaria attacks! It’s so amazing to finally have a bath or shower without being scared of having an attack, or exercise too!
This is good like, but it can mean it’s seasonal, like summer is approaching, I am spending loads of time in the sun and I have not had any attacks, if it is seasonal, I know I’ll be going to live in a hot country when I am older…
I’ve also fallen crazily in love like, and it’s like since I fell in love it disappeared but like, it’s probably nothing to do with it, though haha!
It’s been a while since I have come on here, and I am starting to have a more comfortable life, I just hope it won’t ever come back… and I wish this would go away for everyone as it’s the most irritating thing ever.
Ryan
It’s been a good 2 months and I have not felt Cholinergic Urticaria attacks! It’s so amazing to finally have a bath or shower without being scared of having an attack, or exercise too!
This is good like, but it can mean it’s seasonal, like summer is approaching, I am spending loads of time in the sun and I have not had any attacks, if it is seasonal, I know I’ll be going to live in a hot country when I am older…
I’ve also fallen crazily in love like, and it’s like since I fell in love it disappeared but like, it’s probably nothing to do with it, though haha!
It’s been a while since I have come on here, and I am starting to have a more comfortable life, I just hope it won’t ever come back… and I wish this would go away for everyone as it’s the most irritating thing ever.
Ryan
Title: Re: My Cholinergic Urticaria symptoms have disappeared. HELL YEAH.
Post by: HivesGuy on April 24, 2011, 04:20:57 AM
Hey Nimnims,
That is EXCELLENT news. Thanks so much for updating us. I am very happy for you, and I hope your Cholinergic Urticaria symptoms stay gone forever. These kinds of posts are really good, because they encourage the rest of us not to give up hope. Our hives could mysteriously go away at any time, and we have to have hope and faith that one day they will.
Thanks again, and let us know if anything changes!
That is EXCELLENT news. Thanks so much for updating us. I am very happy for you, and I hope your Cholinergic Urticaria symptoms stay gone forever. These kinds of posts are really good, because they encourage the rest of us not to give up hope. Our hives could mysteriously go away at any time, and we have to have hope and faith that one day they will.
Thanks again, and let us know if anything changes!
Title: Re: My Cholinergic Urticaria symptoms have disappeared. HELL YEAH.
Post by: NimNims on April 24, 2011, 05:06:38 AM
Thanks for taking your time to read guys, and I will update if anything changes.
Last summer, before the Cholinergic Urticaria developed, I didn’t drink enough water, and I suffered heavily from migranes, to the point I almost just dropped and fainted from dehydration and when I did drink water I was sick, now I make sure I drink like 2 litres of water a day.
It could’ve been worth pointing out! felt like it was worth it anyways, and it could just be like hormones and my body changing, one of them one time things, since I am at that age…
However, I feel blessed, and I would wish everyone on this forum the same blessing…
I’ll give an update around every two months ๐
Ryan ๐
Last summer, before the Cholinergic Urticaria developed, I didn’t drink enough water, and I suffered heavily from migranes, to the point I almost just dropped and fainted from dehydration and when I did drink water I was sick, now I make sure I drink like 2 litres of water a day.
It could’ve been worth pointing out! felt like it was worth it anyways, and it could just be like hormones and my body changing, one of them one time things, since I am at that age…
However, I feel blessed, and I would wish everyone on this forum the same blessing…
I’ll give an update around every two months ๐
Ryan ๐
Title: Re: My Cholinergic Urticaria symptoms have disappeared. HELL YEAH.
Post by: Duper on April 24, 2011, 06:13:53 AM
OP, did you do anything differently or did it just go away randomly?
Title: IT’S GONE!!
Post by: ques on April 25, 2011, 08:03:53 PM
hi all ๐
it was about 2 years ago when my cholinergic urticaria became quite full blown around this time of the year (maybe a bit more into spring), and i was diagnosed with urticaria. that summer, feeling so bummed out, i googled and found this forum and made my first post in this forum regarding sex.
it was about 2 years ago when my cholinergic urticaria became quite full blown around this time of the year (maybe a bit more into spring), and i was diagnosed with urticaria. that summer, feeling so bummed out, i googled and found this forum and made my first post in this forum regarding sex.
i never got a chance to update, but i am finally doing so because it’s not fair to post once and have no update, right?
i read everyone’s responses and read through hivesguy’s guide on how to deal with an intimate relationship when you have urticaria, and followed his guide (thanks, hivesguy!). interestingly enough, i have a family member who also had urticaria (lasted ~1 year), and the advice he’d offered me was pretty much identical to what hivesguy had wrote there, so i just knew i had to follow through with the advice offered by both of ’em! ๐
i would say my heat allergy lasted for about 1 year, and during that period, i was very worried, self-conscious, you name it. i’m sure ya’ll can relate. i told my then-partner about the problem, and he did not find it to be a problem. i told other people — friends, co-workers, acquaintances, etc. about this, and they all tried to think of personal experiences so they can relate with me, which was kind of them. i had several people tell me they would break out in rashes in the sun, but of course, not as severe as the rest of us.
perhaps it was a blessing in disguise, hah, but i decided to quit moping around feeling sorry for myself and start working out! great for lazy people like me, lol. plus, it was recommended by hiveguy’s guide and my fam member! so i knew it should have some effect, and it did! i regularly worked out at the gym, daily (minus sundays), every morning. for 24 hours, no hives whatsoever! i tried to be active as i can, and even joined a summer dance class in college! so i worked out and danced everyday (i guess sex helped, too :P), and i was in shape, haha. i also took hot showers.
however, a little over a month, i took a week long break from everything, even from exercise. basically, i was a couch potato – barely moved at all and had AC on high. after the break, i decided to continue with my exercise routine and went out for a jog. the hives….wow, it was insane. i broke out in hives like no other, from head to toe, could barely blink because my face felt so tight, was slightly dizzy, and had difficulty breathing. that was so scary that i continued on with my workouts without missing more than a day per week.
i continued on with this, and life became hectic eventually, so gradually, my workouts lessened. i never really kept track, but eventually, i noticed that the hives lessened, and one day, i’d realized that when in heat, i’d only get a few bumps on and around my lips. basically that was it (prob ~8 months after the diagnosis). everywhere else on my body…no bumps.
all was great, but almost 1 year later, however, i did realize that instead of bumps, my face would get hot and flushed when in the heat, but this lasted about a month or 2. i was pretty self-conscious about my red face, but eventually told myself to get over it and tried my best to get over being embarrassed over having a red face. in time, it somehow just….stopped. well, not permanently, but i no longer felt that hot flush as often.
so, currently (2 years after my diagnosis), i get a bump on my lip once in a blue moon, and the face turning red when hot….well, that doesn’t happen too often. overall, i’d say that i’m doing just fine! no hives on body! hooray! and hopefully, it’ll never come back again. i try not to think about it, just in case it might somehow, i don’t know, trigger it again. call me paranoid, but i’m thinking in terms of psychology, it might be possible? :-
and to think, if i’d ever followed my dermatologist’s advice….wow, i would’ve just led a really sedentary life. he recommended me to avoid the sun, use a parasol, and basically somehow avoid heat for the rest of my life as there’s nothing i can do about this. uhh, no. he was so wrong. i did not even take a single claritin pill he’d prescribed me.
wow, sorry, i wrote an essay here, heh.
i just truly wanna say thanks to everyone who responded to my other thread, and hopefully, everyone here will find a way to overcome this! ๐ it’d be awesome to see this section of the forum filled with more cured stories!
i read everyone’s responses and read through hivesguy’s guide on how to deal with an intimate relationship when you have urticaria, and followed his guide (thanks, hivesguy!). interestingly enough, i have a family member who also had urticaria (lasted ~1 year), and the advice he’d offered me was pretty much identical to what hivesguy had wrote there, so i just knew i had to follow through with the advice offered by both of ’em! ๐
i would say my heat allergy lasted for about 1 year, and during that period, i was very worried, self-conscious, you name it. i’m sure ya’ll can relate. i told my then-partner about the problem, and he did not find it to be a problem. i told other people — friends, co-workers, acquaintances, etc. about this, and they all tried to think of personal experiences so they can relate with me, which was kind of them. i had several people tell me they would break out in rashes in the sun, but of course, not as severe as the rest of us.
perhaps it was a blessing in disguise, hah, but i decided to quit moping around feeling sorry for myself and start working out! great for lazy people like me, lol. plus, it was recommended by hiveguy’s guide and my fam member! so i knew it should have some effect, and it did! i regularly worked out at the gym, daily (minus sundays), every morning. for 24 hours, no hives whatsoever! i tried to be active as i can, and even joined a summer dance class in college! so i worked out and danced everyday (i guess sex helped, too :P), and i was in shape, haha. i also took hot showers.
however, a little over a month, i took a week long break from everything, even from exercise. basically, i was a couch potato – barely moved at all and had AC on high. after the break, i decided to continue with my exercise routine and went out for a jog. the hives….wow, it was insane. i broke out in hives like no other, from head to toe, could barely blink because my face felt so tight, was slightly dizzy, and had difficulty breathing. that was so scary that i continued on with my workouts without missing more than a day per week.
i continued on with this, and life became hectic eventually, so gradually, my workouts lessened. i never really kept track, but eventually, i noticed that the hives lessened, and one day, i’d realized that when in heat, i’d only get a few bumps on and around my lips. basically that was it (prob ~8 months after the diagnosis). everywhere else on my body…no bumps.
all was great, but almost 1 year later, however, i did realize that instead of bumps, my face would get hot and flushed when in the heat, but this lasted about a month or 2. i was pretty self-conscious about my red face, but eventually told myself to get over it and tried my best to get over being embarrassed over having a red face. in time, it somehow just….stopped. well, not permanently, but i no longer felt that hot flush as often.
so, currently (2 years after my diagnosis), i get a bump on my lip once in a blue moon, and the face turning red when hot….well, that doesn’t happen too often. overall, i’d say that i’m doing just fine! no hives on body! hooray! and hopefully, it’ll never come back again. i try not to think about it, just in case it might somehow, i don’t know, trigger it again. call me paranoid, but i’m thinking in terms of psychology, it might be possible? :-
and to think, if i’d ever followed my dermatologist’s advice….wow, i would’ve just led a really sedentary life. he recommended me to avoid the sun, use a parasol, and basically somehow avoid heat for the rest of my life as there’s nothing i can do about this. uhh, no. he was so wrong. i did not even take a single claritin pill he’d prescribed me.
wow, sorry, i wrote an essay here, heh.
i just truly wanna say thanks to everyone who responded to my other thread, and hopefully, everyone here will find a way to overcome this! ๐ it’d be awesome to see this section of the forum filled with more cured stories!
Title: Re: IT’S GONE!!
Post by: HivesGuy on April 26, 2011, 03:26:52 AM
Thank you so much for updating us ques! That was a very well written and thorough update. I really appreciate it.
I have really been trying hard to exercise lately, sometimes having to break it up into 5 minute intervals throughout the day. I am hoping this will lessen my hives over the next month or two.
Thanks again for the update, and it is wonderful hearing your success story.
I have really been trying hard to exercise lately, sometimes having to break it up into 5 minute intervals throughout the day. I am hoping this will lessen my hives over the next month or two.
Thanks again for the update, and it is wonderful hearing your success story.
Title: Re: So, yah. ๐
Post by: Cain0 on May 09, 2011, 02:25:46 PM
Glad to hear that this is working for more and more people. Sweating is key, no matter what, I find that the more I sweat the less Cholinergic Urticaria I get. I have recently been on holiday to Virginia and I didn’t get 1 Cholinergic Urticaria breakout the whole time without sweat therapy because the temperature was between 80-90F most of the time which is more than enough to make me sweat without the therapy. Once I get back to rainy England though, I have to start up the sweat therapy again because the temperatures have been between 40-60F and I get attacks if I dont do it every morning. However, its just part of my life now, yes its a chore sometimes and it gets annoying when I cant be bothered to run on a morning, but it is nothing more than an annoyance. As I said in a previous post, there is someone in my class at college who has Ichthyosis (a truly awful skin condition), and I would take Cholinergic Urticaria any day over that.
BTW, to the person who asked how long I do sweat therapy for, 15 minutes every moring at 7:30 no matter what with the fire on, I run up and down my living room until I get all of the itchyness away and then I take a shower and the rash is normally anywhere from almost unseeable to quite bad, its quite random on how intense I get it. I am no longer in pain when I get the attack, I just get this annoying itch which varies in intensity, but its never so intense that I have to stop. I find from over 4-5 months of experimenting that when I do the sweat therapy properly, I am completely free from hives for 8-10 hours. Anything after 10 hours, it can come out but not at all bad, thats why I try to make myself sweat at least twice during the day. If I was to go somewhere on the night, I would definatley do the sweat therapy again just to make sure, I dont break out.
BTW, to the person who asked how long I do sweat therapy for, 15 minutes every moring at 7:30 no matter what with the fire on, I run up and down my living room until I get all of the itchyness away and then I take a shower and the rash is normally anywhere from almost unseeable to quite bad, its quite random on how intense I get it. I am no longer in pain when I get the attack, I just get this annoying itch which varies in intensity, but its never so intense that I have to stop. I find from over 4-5 months of experimenting that when I do the sweat therapy properly, I am completely free from hives for 8-10 hours. Anything after 10 hours, it can come out but not at all bad, thats why I try to make myself sweat at least twice during the day. If I was to go somewhere on the night, I would definatley do the sweat therapy again just to make sure, I dont break out.
Title: Re: I’m winning the battle.
Post by: AdamM on June 12, 2011, 03:45:03 PM
Just posting to update that my hives are gone I can sweat with no issues but I am not stopping my workout regimen since I know if I get lazy they will come back.
Title: Re: I’m winning the battle.
Post by: HivesGuy on June 12, 2011, 06:58:49 PM
Great news, and thanks for the update!
Title: Re: I’m winning the battle.
Post by: LuisAguilar on June 29, 2011, 08:11:16 PM
Congrats on getting relief over Cholinergic Urticaria :D. I wanted to know what you meant about sweat therapy? and also, did allegra really help or was it the sweat therapy?
Title: Re: How Do You Know….
Post by: White Rice on July 07, 2011, 10:37:35 AM
Just following up here –
Things have gotten a little bit better since the last post. I can sweat after a bit of prickling/stinging on my lower back…after that I’m good to go. Still haven’t actually seen a hive since about January, though I still get the pain sensation. However, once I start to sweat the pain goes away and I’m able to do whatever. It’s just the time before I sweat that gives me any problems.
Anyone else able to relate to this? Are they on the way out or just a little seasonal relief and they’ll be back full force in the Winter? I haven’t made a full rotation around the sun with Cholinergic Urticaria yet so I’m kind of flying blind and not knowing what to expect when the seasons change.
Thanks
Things have gotten a little bit better since the last post. I can sweat after a bit of prickling/stinging on my lower back…after that I’m good to go. Still haven’t actually seen a hive since about January, though I still get the pain sensation. However, once I start to sweat the pain goes away and I’m able to do whatever. It’s just the time before I sweat that gives me any problems.
Anyone else able to relate to this? Are they on the way out or just a little seasonal relief and they’ll be back full force in the Winter? I haven’t made a full rotation around the sun with Cholinergic Urticaria yet so I’m kind of flying blind and not knowing what to expect when the seasons change.
Thanks
Title: Re: My Cholinergic Urticaria symptoms have disappeared. HELL YEAH.
Post by: NimNims on July 09, 2011, 05:56:07 PM
Little bit of an update, it’s been a little over 2 months but here it goes…
Symptoms are still lurking. They’re not as severe as they were, just the odd prickly tingles which last about half a minute to a minute, or I’ve kind of learned to tolerate them better, before I could not stand them and was driving me insane, I guess when you don’t keep calm, and get frustrated it makes it worse…
I’ve not really taken any medication, I do not feel like I actually need it, or its too little gain for taking it, and to be honest, no one wants to really be on medication do they if they don’t utterly need it? I’ve tried it of course, but then I tried it afterwards for a long duration. It’s been a good one month since I have not taken medication. I do not want it encumbering me, as like I said, too little gain in my opinion.
I’ve not exercised much lately, or done anything to provoke it, but I can enjoy hot showers now without a reaction occurring, only rarely does it happen, whereas before every time it started. The only things now which generally set my reactions off is if I’m feeling embarrassed for some reason, or rarely in a hot room.
So, there’s still improvement I guess, it’s not what I thought was gone like in April, but I am glad it’s died down a bit. I’d rather it be like this than before like in the Winter. I yet wonder if it will return as bad as it was before in the upcoming Winter, but I’ll keep you guys updated for that.
I can’t really think of anything which could of changed the way it behaves now, I think it’s just changed itself, not what I have done to change it. I have not really changed my life style, except being more out going.
Symptoms are still lurking. They’re not as severe as they were, just the odd prickly tingles which last about half a minute to a minute, or I’ve kind of learned to tolerate them better, before I could not stand them and was driving me insane, I guess when you don’t keep calm, and get frustrated it makes it worse…
I’ve not really taken any medication, I do not feel like I actually need it, or its too little gain for taking it, and to be honest, no one wants to really be on medication do they if they don’t utterly need it? I’ve tried it of course, but then I tried it afterwards for a long duration. It’s been a good one month since I have not taken medication. I do not want it encumbering me, as like I said, too little gain in my opinion.
I’ve not exercised much lately, or done anything to provoke it, but I can enjoy hot showers now without a reaction occurring, only rarely does it happen, whereas before every time it started. The only things now which generally set my reactions off is if I’m feeling embarrassed for some reason, or rarely in a hot room.
So, there’s still improvement I guess, it’s not what I thought was gone like in April, but I am glad it’s died down a bit. I’d rather it be like this than before like in the Winter. I yet wonder if it will return as bad as it was before in the upcoming Winter, but I’ll keep you guys updated for that.
I can’t really think of anything which could of changed the way it behaves now, I think it’s just changed itself, not what I have done to change it. I have not really changed my life style, except being more out going.
Title: Re: How Do You Know….
Post by: NimNims on July 09, 2011, 06:10:12 PM
Hey there,
It’s good news that you are starting to feel better with your Cholinergic Urticaria, I know you are curious as to what way it’s headed, as so am I.
I guess I’m kinda on the same branch as you. I have not had Cholinergic Urticaria for a full year yet, I think I started developing it around Sept-Nov 10′ and now it’s starting to get warmer, my symptoms have been getting better, and I am having more freedom with what I do, that being – Having hot showers, exercise and you name it.
I still occasionally get the slight prickly feeling, but it’s not what I would consider bad, it lasts much shorter time than what it used to in Winter season.
I am indeed sweating now, which is a good thing. I can even say yesterday I was sweating a lot, and not feeling a breakout of Cholinergic Urticaria.
So, I am curious too to where my Cholinergic Urticaria is going. I hope it goes, or gets even less noticeable. I have read that it can get worse again when seasons change, but that depends on if it goes or not. Some people can have it for a few months to many, many years unfortunately.
So all I can do is hope just like you. Best of luck though, Ryan
It’s good news that you are starting to feel better with your Cholinergic Urticaria, I know you are curious as to what way it’s headed, as so am I.
I guess I’m kinda on the same branch as you. I have not had Cholinergic Urticaria for a full year yet, I think I started developing it around Sept-Nov 10′ and now it’s starting to get warmer, my symptoms have been getting better, and I am having more freedom with what I do, that being – Having hot showers, exercise and you name it.
I still occasionally get the slight prickly feeling, but it’s not what I would consider bad, it lasts much shorter time than what it used to in Winter season.
I am indeed sweating now, which is a good thing. I can even say yesterday I was sweating a lot, and not feeling a breakout of Cholinergic Urticaria.
So, I am curious too to where my Cholinergic Urticaria is going. I hope it goes, or gets even less noticeable. I have read that it can get worse again when seasons change, but that depends on if it goes or not. Some people can have it for a few months to many, many years unfortunately.
So all I can do is hope just like you. Best of luck though, Ryan
Title: Re: My Cholinergic Urticaria symptoms have disappeared. HELL YEAH.
Post by: HivesGuy on July 09, 2011, 06:10:52 PM
Glad to hear things are going well! Keep us updated and best of luck.
Title: Re: My Cholinergic Urticaria is Currently In “Remission”
Post by: billysielu on August 06, 2011, 11:04:38 AM
6 August 2011
I’ve seen an ENT specialist about a hearing problem (unrelated), and discovered I have allergic rhinitis. I’ll be getting a steroid nasal spray in about 2 weeks which should bring down the swelling inside my nose. I went looking around my house for mold, and found a huge patch of black mold behind a wardrobe in my bedroom.
All the reading I’ve done about nasal/sinus problems also mentions anti-histamines as a possible treatment. I won’t be getting those because I’ve tried them all before! There seems to be a strong possibility that this at least a contributing factor to my Cholinergic Urticaria, if not the single cause. I’ll deal with the mold and take my prescription and report back in a few weeks.
I’ve ordered a mold test kit to diagnose the type of mold, assuming there are no hidden costs I’ll send that off to the lab for analysis and report back with the results.
Picture: I’ve slept about 1 meter from this for potentially a very long time, my exposure is huge.
— Points from my earlier posts in this thread:
Symptoms of nasal/sinus problems: – Headaches – Toothache – Difficulty Sleeping – Excessive nose blowing
Preventing mold growth: – Fresh air – Sunlight
I’ve seen an ENT specialist about a hearing problem (unrelated), and discovered I have allergic rhinitis. I’ll be getting a steroid nasal spray in about 2 weeks which should bring down the swelling inside my nose. I went looking around my house for mold, and found a huge patch of black mold behind a wardrobe in my bedroom.
All the reading I’ve done about nasal/sinus problems also mentions anti-histamines as a possible treatment. I won’t be getting those because I’ve tried them all before! There seems to be a strong possibility that this at least a contributing factor to my Cholinergic Urticaria, if not the single cause. I’ll deal with the mold and take my prescription and report back in a few weeks.
I’ve ordered a mold test kit to diagnose the type of mold, assuming there are no hidden costs I’ll send that off to the lab for analysis and report back with the results.
Picture: I’ve slept about 1 meter from this for potentially a very long time, my exposure is huge.
— Points from my earlier posts in this thread:
Symptoms of nasal/sinus problems: – Headaches – Toothache – Difficulty Sleeping – Excessive nose blowing
Preventing mold growth: – Fresh air – Sunlight
Title: Been outside all Summer, even in 107 degree weather…NO HIVES!!!!
Post by: mozartthekat on September 19, 2011, 05:05:10 AM
Remember me? I have a couple of postings…some of which were on the positive side. Others were not as happy, such as “Pregnancy started the hives.” Which is true. Many of you who have not read my post, let me fill you in.
The Beginning. Feb 2010 I noticed that after a hot shower I had hives. A few weeks later I found out I was pregnant and the hives got worse. I was sensitive to the sun, heat, and most of all stress. I was a full time student in college and dating an RN, who broke up with me when he found out I was pregnant. We got back together and a few days later miscarried. He told me, “I am sorry for your loss.” A month later I tried to exercise and hives consumed my whole entire body to the point my breathing was affected. Hives destroyed my life. The relationship improved slightly…the hives didn’t until a year later.
Skipping forward towards June. I finally graduated! Yay! Sad part…he broke up with me that night. He was supportive, yet I hated myself being with him. Once a month, I would receive an “I love you.” And I pretty much glorified him for all of his accomplishments and smarts. Meanwhile I was secretly in love with him for 7 years! We were together less than 2 years.
Why does he have to do with my hives? I think he was the reason! Talking to both a highly experienced naturopath and energy worker both his negative energy that was getting me. Suppression of my anger, hurt, resentment, were a few of many emotions that were stored within me.
What did I do? I took it easy at first but I hit the gym. At first it was hard. I was itching and looked like I got attacked by bees. But each week it got better, so I fought harder. I ran. I ran almost to the point it hurt. I also wore my ipod and pushed through my hurt while exercising and watching the movie, “The Secret.” I played that puppy over and over, every gym session and sometimes when I was just bored at home. Also, I cried…I cried so hard….I cried like I never cried before. I loved that guy so much and despite how much I did, it wasn’t enough and he was very arrogant and mean.
Back to the good part. By the end of the 3rd week, it was completely gone! I went swimming outside. Went to Dallas Texas and walked around…NO HIVES. Last Summer I couldn’t even be outside for 5 mins in the heat without rashing up every where and crying from embarrassment.
My conclusion. I think it was stress and the traumatic situation I went through. It sensitized me to everything. I guess, it was my body’s way of protecting me? Whatever the case, I am going on almost 4 months hives free. Now that I got my degree in Marketing, I have decided to work for the cause-related marketing industry. Still searching for a job now, I want to gain experience in the non-profit sector and hopefully be a part of a Hives Foundation. (I haven’t seen one as of yet) Anyone interested and by Los Angeles, let me know.
I consider everyone on this forum my family. I pray that my hives free life continues on and that you too will one day be able to experience the same remarkable feeling free. I love you all! -Kimmy
The Beginning. Feb 2010 I noticed that after a hot shower I had hives. A few weeks later I found out I was pregnant and the hives got worse. I was sensitive to the sun, heat, and most of all stress. I was a full time student in college and dating an RN, who broke up with me when he found out I was pregnant. We got back together and a few days later miscarried. He told me, “I am sorry for your loss.” A month later I tried to exercise and hives consumed my whole entire body to the point my breathing was affected. Hives destroyed my life. The relationship improved slightly…the hives didn’t until a year later.
Skipping forward towards June. I finally graduated! Yay! Sad part…he broke up with me that night. He was supportive, yet I hated myself being with him. Once a month, I would receive an “I love you.” And I pretty much glorified him for all of his accomplishments and smarts. Meanwhile I was secretly in love with him for 7 years! We were together less than 2 years.
Why does he have to do with my hives? I think he was the reason! Talking to both a highly experienced naturopath and energy worker both his negative energy that was getting me. Suppression of my anger, hurt, resentment, were a few of many emotions that were stored within me.
What did I do? I took it easy at first but I hit the gym. At first it was hard. I was itching and looked like I got attacked by bees. But each week it got better, so I fought harder. I ran. I ran almost to the point it hurt. I also wore my ipod and pushed through my hurt while exercising and watching the movie, “The Secret.” I played that puppy over and over, every gym session and sometimes when I was just bored at home. Also, I cried…I cried so hard….I cried like I never cried before. I loved that guy so much and despite how much I did, it wasn’t enough and he was very arrogant and mean.
Back to the good part. By the end of the 3rd week, it was completely gone! I went swimming outside. Went to Dallas Texas and walked around…NO HIVES. Last Summer I couldn’t even be outside for 5 mins in the heat without rashing up every where and crying from embarrassment.
My conclusion. I think it was stress and the traumatic situation I went through. It sensitized me to everything. I guess, it was my body’s way of protecting me? Whatever the case, I am going on almost 4 months hives free. Now that I got my degree in Marketing, I have decided to work for the cause-related marketing industry. Still searching for a job now, I want to gain experience in the non-profit sector and hopefully be a part of a Hives Foundation. (I haven’t seen one as of yet) Anyone interested and by Los Angeles, let me know.
I consider everyone on this forum my family. I pray that my hives free life continues on and that you too will one day be able to experience the same remarkable feeling free. I love you all! -Kimmy
Title: Re: Been outside all Summer, even in 107 degree weather…NO HIVES!!!!
Post by: nowash on September 19, 2011, 08:35:54 PM
Wow! That’s great! Regarding your hives I mean.
So did you have to run everyday? And for how long? Seems like exercise cures a lot of people with this condition, which makes me wonder if I never exercised hard enough in my life. I mean I’ve ridden my bike to and from work everyday. Did you take any medicine while you were exercising?
So did you have to run everyday? And for how long? Seems like exercise cures a lot of people with this condition, which makes me wonder if I never exercised hard enough in my life. I mean I’ve ridden my bike to and from work everyday. Did you take any medicine while you were exercising?
Title: Re: Been outside all Summer, even in 107 degree weather…NO HIVES!!!!
Post by: mozartthekat on September 20, 2011, 04:28:21 PM
Thank you very much! Well, I ran almost everyday. More importantly, I would take a shower before I left. I noticed that I experienced a worse reaction of hives when my body sweated and didn’t have a shower immediately before hand and I didn’t take any medicine My thinking is that my body would rely on the medicine if I was in another hot situation and would still break out if I didn’t have it on hand. Basically, I tried to work through it.
When I first started running I ran for 15 mins at most. I would include walking in between. Progressively I increased each workout…which was at least every other day and stopped at about an hour of walking and running. Afterwards I would cool down and stretch. When I was done, I went home and took a shower and felt great.
Oh and also I forgot to mention I did also drink some detox tea stuff. I was trying to loose some weight because I gained quite a bit of weight (10lbs.) from being afraid of exercising (over a year’s time). It hurt me at first and it was a struggle, but I really just tried to focus and start being happy with myself -accepting who I was and all that I have been through. Little by little I noticed some improvement. However, I can’t say that this is a remedy everyone should try. I know that I tried to work out months prior and was incredibly sick with hives. So start off slow. Try not to think about your hives and just breathe and feel happy. I know it’s hard…I felt so embarrassed and ugly that I wasn’t sure how I was able to remain in my field of marketing. I had to stop thinking that. And that’s what I did. STAY POSITIVE….above all! ::HUGS:: -Kimmy
When I first started running I ran for 15 mins at most. I would include walking in between. Progressively I increased each workout…which was at least every other day and stopped at about an hour of walking and running. Afterwards I would cool down and stretch. When I was done, I went home and took a shower and felt great.
Oh and also I forgot to mention I did also drink some detox tea stuff. I was trying to loose some weight because I gained quite a bit of weight (10lbs.) from being afraid of exercising (over a year’s time). It hurt me at first and it was a struggle, but I really just tried to focus and start being happy with myself -accepting who I was and all that I have been through. Little by little I noticed some improvement. However, I can’t say that this is a remedy everyone should try. I know that I tried to work out months prior and was incredibly sick with hives. So start off slow. Try not to think about your hives and just breathe and feel happy. I know it’s hard…I felt so embarrassed and ugly that I wasn’t sure how I was able to remain in my field of marketing. I had to stop thinking that. And that’s what I did. STAY POSITIVE….above all! ::HUGS:: -Kimmy
Title: Re: Been outside all Summer, even in 107 degree weather…NO HIVES!!!!
Post by: baseball1288 on October 06, 2011, 04:08:14 PM
Ive had this Cholinergic Urticaria since I was about 5 or six and still trying to understand it. Last year I had very few outbreaks due to that I was doing very well in life. This year ive gained weight and been out of work due to partying with the money ive saved up from my job. This year ive broke out a lot. I cant even drive to the store sometimes. Now im trying to loose weight and get to my old self. By the way hows la I vacationed there in march it was very nice.
Remember me? I have a couple of postings…some of which were on the positive side. Others were not as happy, such as “Pregnancy started the hives.” Which is true. Many of you who have not read my post, let me fill you in.
The Beginning. Feb 2010 I noticed that after a hot shower I had hives. A few weeks later I found out I was pregnant and the hives got worse. I was sensitive to the sun, heat, and most of all stress. I was a full time student in college and dating an RN, who broke up with me when he found out I was pregnant. We got back together and a few days later miscarried. He told me, “I am sorry for your loss.” A month later I tried to exercise and hives consumed my whole entire body to the point my breathing was affected. Hives destroyed my life. The relationship improved slightly…the hives didn’t until a year later.
Skipping forward towards June. I finally graduated! Yay! Sad part…he broke up with me that night. He was supportive, yet I hated myself being with him. Once a month, I would receive an “I love you.” And I pretty much glorified him for all of his accomplishments and smarts. Meanwhile I was secretly in love with him for 7 years! We were together less than 2 years.
Why does he have to do with my hives? I think he was the reason! Talking to both a highly experienced naturopath and energy worker both his negative energy that was getting me. Suppression of my anger, hurt, resentment, were a few of many emotions that were stored within me.
What did I do? I took it easy at first but I hit the gym. At first it was hard. I was itching and looked like I got attacked by bees. But each week it got better, so I fought harder. I ran. I ran almost to the point it hurt. I also wore my ipod and pushed through my hurt while exercising and watching the movie, “The Secret.” I played that puppy over and over, every gym session and sometimes when I was just bored at home. Also, I cried…I cried so hard….I cried like I never cried before. I loved that guy so much and despite how much I did, it wasn’t enough and he was very arrogant and mean.
Back to the good part. By the end of the 3rd week, it was completely gone! I went swimming outside. Went to Dallas Texas and walked around…NO HIVES. Last Summer I couldn’t even be outside for 5 mins in the heat without rashing up every where and crying from embarrassment.
My conclusion. I think it was stress and the traumatic situation I went through. It sensitized me to everything. I guess, it was my body’s way of protecting me? Whatever the case, I am going on almost 4 months hives free. Now that I got my degree in Marketing, I have decided to work for the cause-related marketing industry. Still searching for a job now, I want to gain experience in the non-profit sector and hopefully be a part of a Hives Foundation. (I haven’t seen one as of yet) Anyone interested and by Los Angeles, let me know.
I consider everyone on this forum my family. I pray that my hives free life continues on and that you too will one day be able to experience the same remarkable feeling free. I love you all! -Kimmy
The Beginning. Feb 2010 I noticed that after a hot shower I had hives. A few weeks later I found out I was pregnant and the hives got worse. I was sensitive to the sun, heat, and most of all stress. I was a full time student in college and dating an RN, who broke up with me when he found out I was pregnant. We got back together and a few days later miscarried. He told me, “I am sorry for your loss.” A month later I tried to exercise and hives consumed my whole entire body to the point my breathing was affected. Hives destroyed my life. The relationship improved slightly…the hives didn’t until a year later.
Skipping forward towards June. I finally graduated! Yay! Sad part…he broke up with me that night. He was supportive, yet I hated myself being with him. Once a month, I would receive an “I love you.” And I pretty much glorified him for all of his accomplishments and smarts. Meanwhile I was secretly in love with him for 7 years! We were together less than 2 years.
Why does he have to do with my hives? I think he was the reason! Talking to both a highly experienced naturopath and energy worker both his negative energy that was getting me. Suppression of my anger, hurt, resentment, were a few of many emotions that were stored within me.
What did I do? I took it easy at first but I hit the gym. At first it was hard. I was itching and looked like I got attacked by bees. But each week it got better, so I fought harder. I ran. I ran almost to the point it hurt. I also wore my ipod and pushed through my hurt while exercising and watching the movie, “The Secret.” I played that puppy over and over, every gym session and sometimes when I was just bored at home. Also, I cried…I cried so hard….I cried like I never cried before. I loved that guy so much and despite how much I did, it wasn’t enough and he was very arrogant and mean.
Back to the good part. By the end of the 3rd week, it was completely gone! I went swimming outside. Went to Dallas Texas and walked around…NO HIVES. Last Summer I couldn’t even be outside for 5 mins in the heat without rashing up every where and crying from embarrassment.
My conclusion. I think it was stress and the traumatic situation I went through. It sensitized me to everything. I guess, it was my body’s way of protecting me? Whatever the case, I am going on almost 4 months hives free. Now that I got my degree in Marketing, I have decided to work for the cause-related marketing industry. Still searching for a job now, I want to gain experience in the non-profit sector and hopefully be a part of a Hives Foundation. (I haven’t seen one as of yet) Anyone interested and by Los Angeles, let me know.
I consider everyone on this forum my family. I pray that my hives free life continues on and that you too will one day be able to experience the same remarkable feeling free. I love you all! -Kimmy
Title: Re: SUCCESS STORY RIGHT HERE!!!
Post by: baseball1288 on October 07, 2011, 06:03:29 PM
You do a lot for the people like us thanks a lot. Your a very good person.
Title: Re: I’m winning the battle.
Post by: baseball1288 on October 07, 2011, 06:25:54 PM
Yoyo I’m new to this site just found out about what I had since the doctors didnt tell me crap. So im here learning more, thats awesome man I actually was going to join the army and actually looking to join soon. They tried tricking me into doing something different then what me and the recruiter agreed on. I would have to say being in shape and exerciseing does help a lot, email me at shinton2648@gmail.com
Title: Re: FINALLY ๐
Post by: baseball1288 on October 08, 2011, 04:45:19 PM
Yea dude you are awesome. I probly would still feel like I was a loner and not knowing what this was.
Title: Re: Unbelievable what Ginseng did for me
Post by: baseball1288 on October 08, 2011, 05:21:40 PM
so which one works the best the red ginseng or the saint jons wort?
Title: Re: I’m winning the battle.
Post by: Blazing Leaf on October 13, 2011, 10:39:44 PM
Nice man! im doing the same and im happy now too! I hope everyone can sweat everyday and live a normal life, kudos my friend
Title: CURE
Post by: homamsy on October 26, 2011, 06:20:11 PM
Apple cider vinegar…. is the sln for sure .>>> i tried it & it works
all u have to do is get this vinegar but it has to be with the residue >>> or u can prepare it at home
take two spoons twice a day and start reducing ur sugar intake for a while
I hope it goes well with everybody
peace!
all u have to do is get this vinegar but it has to be with the residue >>> or u can prepare it at home
take two spoons twice a day and start reducing ur sugar intake for a while
I hope it goes well with everybody
peace!
Title: I am winning the battle!
Post by: nehcrow on October 27, 2011, 03:08:26 PM
Yesterday, I tried a new antihistamine known as levocetirizine. It’s working wonders! I took a hot 15 minute shower without bursting into hives!I couldn’t even find one wheal on my body. Everybody should try this antihistamine. It’s over-the-counter and a little difficult to find but it works! Good luck everybody.
Title: Re: CURE
Post by: HivesGuy on October 27, 2011, 04:55:23 PM
Hello homasmsy,
Thanks for your posts and welcome to the forum. Hmm, that definitely sounds interesting that vinegar seems to be helping. How long have you been doing this?
I’ve tried vinegar (both on my skin and consuming it). It never did anything for me, but I am glad to hear it may be helping you.
Thanks for your posts and welcome to the forum. Hmm, that definitely sounds interesting that vinegar seems to be helping. How long have you been doing this?
I’ve tried vinegar (both on my skin and consuming it). It never did anything for me, but I am glad to hear it may be helping you.
Title: Re: CURE
Post by: hatetowalkorrun on October 29, 2011, 06:45:35 AM
Thanks! I will have to try that. Do you buy it from a health food store?
Title: Hives have been better lately – READ
Post by: HivesBGone on November 07, 2011, 09:43:01 AM
Hello all, I have had Cholinergic Urticaria at 3 different times in my life, each time lasting a few years. Once when I was a teenager, once in my early-mid 20’s, and most recently in my early 30’s. They came back last winter (I mainly get symptoms in the winter and have very little symptoms in the summer months) and they were horrible. MY Cholinergic Urticaria is very severe during the winter months and I am in complete agony when I get an attack. I still felt the symptoms this summer, although they were very minor. The symptoms were coming back full-blown this fall, but the last week I have had very little to no symptoms. I really hope they are gone again, but I wanted to pass on a few changes I had made that I feel may have contributed to my hives going into remission in the hopes that this info may be of some help to any of you.
I’m going to list these changes in order from what I think helped from LEAST LIKELY to have helped to what I feel is MOST LIKELY what helped. Hopefully, I’m not being pre-mature here, seeing as I’ve only been hive free for about a week, but I feel so night-and-day different that I’m pretty confident they are in remission for the time being.
1. Following HivesGuy’s blog I changed my diet a lot. I had been tested for celiac disease and it came back negative, but I decided to cut gluten and dairy out of my diet for a while just to give it a shot. I was so miserable that even a difficult diet like this was not a big deal so long as I thought it might potentially help. I was gluten-free for over a month, but it never seemed to help much. Last week, when I noticed my hives getting better I started eating gluten and dairy again. My hives have not come back, so I am not convinced that my diet is what made the difference, although there is a possibility that it is a delayed response and my hives may come back because of my diet. The only way to know for sure, though, is to pig out on gluten, and so far so good, no hives even with gluten.
2. Beta Blockers. I got prescribed propranolol a few weeks ago. Whether or not this drug is the difference-maker or not is in question. I am going to continue eating gluten for a while, and if my hives do not come back the next step for me is to cut out my propranolol. I certainly don’t want my hives to come back, but I definitely want to know what is helping. I also don’t want to be taking Beta Blockers if I don’t need them.
3. An infection in the body. Hear me out on this. I’ve read about people saying their white blood cell counts were high or they never get sick because of high white blood cells. I’ve read some research that Cholinergic Urticaria can be an auto-immune disorder associated with the immune system overreacting to things. I really think there is something to this. I have had major ear problems in my left ear all of my life. I had a tumor in my left ear as a child and it destroyed my ear. I lost most of my hearing in there as a child and had to have a bunch of tissue and bone removed. What resulted was an open cavity that was prone to constant infection. I would see an ear specialist regularly to get it cleaned out. Well, last month I went to the ENT (ear doctor) and she said my ear was horrible and I needed to be operated on immediately. When they opened my ear up, the infection was so bad she said if I had left it alone it could have reached my brain. She had to clean out the infection really well, remove some more bone, and patch some things up. I need to have a second surgery in a few weeks to finish cleaning up the ear, as well as reconstructive surgery to make my ear easier to clean out. My hives really started to feel better after this surgery. A ton of infection got removed and I was put on some really heavy anti-biotics. I started thinking about it, and what do you all think of the chances that my immune system was going crazy because of this infection? Maybe my immune system was going haywire trying to fight off this infection and it was causing my hives at the same time. It’s possible that when I have had Cholinergic Urticaria in the past, it was at times that my ear was in really bad shape.
Well, I wrote a book here and maybe this is all incorrect, but I want to get this info out in the case that it helps anyone. I know how horrible Cholinergic Urticaria can be. I will report back and let you all know whether or not my Cholinergic Urticaria stays in remission.
I’m going to list these changes in order from what I think helped from LEAST LIKELY to have helped to what I feel is MOST LIKELY what helped. Hopefully, I’m not being pre-mature here, seeing as I’ve only been hive free for about a week, but I feel so night-and-day different that I’m pretty confident they are in remission for the time being.
1. Following HivesGuy’s blog I changed my diet a lot. I had been tested for celiac disease and it came back negative, but I decided to cut gluten and dairy out of my diet for a while just to give it a shot. I was so miserable that even a difficult diet like this was not a big deal so long as I thought it might potentially help. I was gluten-free for over a month, but it never seemed to help much. Last week, when I noticed my hives getting better I started eating gluten and dairy again. My hives have not come back, so I am not convinced that my diet is what made the difference, although there is a possibility that it is a delayed response and my hives may come back because of my diet. The only way to know for sure, though, is to pig out on gluten, and so far so good, no hives even with gluten.
2. Beta Blockers. I got prescribed propranolol a few weeks ago. Whether or not this drug is the difference-maker or not is in question. I am going to continue eating gluten for a while, and if my hives do not come back the next step for me is to cut out my propranolol. I certainly don’t want my hives to come back, but I definitely want to know what is helping. I also don’t want to be taking Beta Blockers if I don’t need them.
3. An infection in the body. Hear me out on this. I’ve read about people saying their white blood cell counts were high or they never get sick because of high white blood cells. I’ve read some research that Cholinergic Urticaria can be an auto-immune disorder associated with the immune system overreacting to things. I really think there is something to this. I have had major ear problems in my left ear all of my life. I had a tumor in my left ear as a child and it destroyed my ear. I lost most of my hearing in there as a child and had to have a bunch of tissue and bone removed. What resulted was an open cavity that was prone to constant infection. I would see an ear specialist regularly to get it cleaned out. Well, last month I went to the ENT (ear doctor) and she said my ear was horrible and I needed to be operated on immediately. When they opened my ear up, the infection was so bad she said if I had left it alone it could have reached my brain. She had to clean out the infection really well, remove some more bone, and patch some things up. I need to have a second surgery in a few weeks to finish cleaning up the ear, as well as reconstructive surgery to make my ear easier to clean out. My hives really started to feel better after this surgery. A ton of infection got removed and I was put on some really heavy anti-biotics. I started thinking about it, and what do you all think of the chances that my immune system was going crazy because of this infection? Maybe my immune system was going haywire trying to fight off this infection and it was causing my hives at the same time. It’s possible that when I have had Cholinergic Urticaria in the past, it was at times that my ear was in really bad shape.
Well, I wrote a book here and maybe this is all incorrect, but I want to get this info out in the case that it helps anyone. I know how horrible Cholinergic Urticaria can be. I will report back and let you all know whether or not my Cholinergic Urticaria stays in remission.
Title: Re: Hives have been better lately – READ
Post by: HivesGuy on November 07, 2011, 10:52:15 AM
Wow, thanks for sharing that.
It is definitely interesting hearing what has worked and what has not worked for you. Also, that sounds like some pretty serious surgery, so I hope all goes well.
I have read many times in the past that a big cause of hives (not necessarily Cholinergic Urticaria, but hives in general) can be infection. In fact, when I first visited a dermatologist, he asked me several times “So you don’t have any infection anywhere, right?” I was like, “No.”
So it is definitely possible that the infection was making your Cholinergic Urticaria MUCH worse, or, it could have even been the cause. If it goes away and doesn’t come back, then it will be a pretty strong indicator.
In any event, thanks again for sharing. I am thrilled that your hives have improved. I hope things continue to go well, and the other surgery/treatments are successful.
It is definitely interesting hearing what has worked and what has not worked for you. Also, that sounds like some pretty serious surgery, so I hope all goes well.
I have read many times in the past that a big cause of hives (not necessarily Cholinergic Urticaria, but hives in general) can be infection. In fact, when I first visited a dermatologist, he asked me several times “So you don’t have any infection anywhere, right?” I was like, “No.”
So it is definitely possible that the infection was making your Cholinergic Urticaria MUCH worse, or, it could have even been the cause. If it goes away and doesn’t come back, then it will be a pretty strong indicator.
In any event, thanks again for sharing. I am thrilled that your hives have improved. I hope things continue to go well, and the other surgery/treatments are successful.
Title: Re: CURE
Post by: Hvs85 on November 08, 2011, 10:04:48 AM
There has been a lot of success with this from what I can understand. Some people who try this don’t have any luck, but it may be the fact that you need truly unprocessed apple cider vinegar to know for certain. There’s this thing called “the mother”. It’s the cloudy residue that is in unpasteurized apple cider vinegar. You can find this in health food stores. Most forms of vinegar are too processed – so try to look for that one instead.
Title: Re: CURE
Post by: LucidHvn on November 09, 2011, 10:36:15 PM
good advice, I actually got some unprocessed raw apple cider vinegar… it’s really acid! .. ๐ is it supposed to be taken raw in tablespoons or should It be combined with water?
Title: Re: CURE
Post by: sandman205 on November 13, 2011, 11:27:48 PM
+ 1 for ACV.
I have been taking 2 capfuls of ACV (Braggs ACV – raw + unfiltered w/ the mother) in a glass of water each morning and night for the past 3 days.
I am also trying to cut out Milk as much as i can.
To my delight its been working wonderfully. When i would get hot i would get immense stinging pains on my scalp and im extremely happy to report that these feelings are 98% gone – i might get the occasional stinging feeling. So give this a try guys but make sure its raw / unfiltered with the ‘Mother’. Stoked!
I have been taking 2 capfuls of ACV (Braggs ACV – raw + unfiltered w/ the mother) in a glass of water each morning and night for the past 3 days.
I am also trying to cut out Milk as much as i can.
To my delight its been working wonderfully. When i would get hot i would get immense stinging pains on my scalp and im extremely happy to report that these feelings are 98% gone – i might get the occasional stinging feeling. So give this a try guys but make sure its raw / unfiltered with the ‘Mother’. Stoked!
Title: Re: I’m winning the battle.
Post by: femalebodybuilder on December 20, 2011, 03:59:02 PM
I’m a female body builder who has been avoiding getting overly warm and unable to sweat for a very long time, so I’m trying to induce sweating. I tried with steam showers but got no sweating in there, felt great DURING the shower, after I’d get a HORRIBLE attack and have to run outside and lie on concrete. So I’m hoping eventually sweating helps…only just tried cardio today for the first time…I no longer sweat when I lift and like I said when an attack would come on getting warm during lifting I’d rush to some cold source or go home and finish my lifts in my basement. Haven’t done cardio in a couple years…
Title: Re: Hives have been better lately – READ
Post by: HivesBGone on January 06, 2012, 02:04:57 AM
Well, I had my second surgery and things went well. I had started to get some symptoms coming back pretty strongly until I had the second surgery, but things seemed a lot better again afterwards. As soon as I was able to, I also started exercising better. The fact that my hives were feeling so much better enable me to push through and make myself sweat, whereas before it was just too agonizing to do so. I have started taking hot yoga. They set the room at 105 degrees and do 90 minutes of yoga. A few months ago, something like this would have probably killed me. Now, I am drenched from head to foot and it feels wonderful. I have maintained a pretty healthy diet. I am still taking beta-blockers (propranolol). But, I really feel that clearing up this infection in my ear is what has helped me. This infection was probably present for years. I’m not sure if it is the cause of the hives, but maybe it just made the symptoms worse? I don’t know. But one of those 3 things are what has helped me. I am tempted to say that maybe it is all just happenstance that I am feeling better, since my hives have gone into remission 3 separate times in the past, but I don’t believe that this time since my hives always went into remission in the summer months and then didn’t come back the following winter. They have never just “gone away” during the winter months.
Title: no longer really an issue
Post by: godpoos on January 12, 2012, 02:11:10 PM
i cant believe i didn’t find forums like this sooner. i guess its because its just something i got used to and learned to deal with.
anyways, i feel like i would be the biggest butt in the world if i didn’t tell my story.
i developed heat hives in high school from what i truly believe was a series of panic attacks i got one summer which triggered it.
the following fall i got my first breakout. the itching occured basically everywhere. i broke out into hives on my arms, chest, and legs.
the following couple years were basically unbearable. i wanted to kill myself on many occasions and just rip my clothes off and light myself on fire.
i avoided people and situations which would cause me to get hot and basically had to change my entire life.
BUT, there was relief. during the summer the itching and hives went away. my skin did turn a weird texture as i sweat, but other than that, there were little to no hives or itching.
in my mind, the problem isn’t so much about the heat, its about the change from cold to heat.
also, its about the consistent conditioning of your body temperature. that’s why air conditioning doesn’t cause any itching or hives in the summer because the vast majority of the time is still spent in pretty high temperatures.
however, spending just a few days in 50 degree weather will bring back the heat hives instantly because of the consistent cool temperatures.
after dealing with this for about 9 years and absolutely dreading the fall, winter, spring months, i had an idea, why not just try and replicate summer temperatures in the fall-spring in a ‘consistent’ way?
i had a few portable heaters in the house so i fired one up in my room to get it as hot as possible and try it out. the rest is history.
basically, my room during the fall-spring months is around 85-95 degrees. im not really sure because i just keep the heater on the whole time.
i don’t remember exactly how difficult it was to get used to that heat but at this point in my life, it really isn’t something i think about. i wouldn’t consider it uncomfortable once you get used to it.
plus, the benefits far far far out way any uncomfortableness you may experience in that heat. first off, i now get ZERO hives. ZERO. secondly, the itching is reduced by about 75% or to the point that its just a minor annoyance. i can go jogging in 30 degrees and will only experience minor itching.
ive been doing this for a few years now and when the cold months get here, i just know its time to make my room into a mini sauna.
now, before you go and say you can’t live in that heat, please know that i do it ‘comfortably’ for about 6 months a year and it really really isnt that big of a deal. i mean, people live in tropical climates without air conditioning their entire lives.
i actually feel weird if my room isn’t super hot in the cold months.
a couple notes: i am not sure the exact amount of time and temperature needed to ‘condition’ your body successfully. i get away with 5 nights a week ‘sleeping only’ in about 90 degrees.
perhaps 80 degrees in enough or only 4 nights a week. im sure it varies from person to person.
the first year my room was hot 24 hours a day.
also, if you live with people, know that almost no one will be comfortable in that heat and some will even get pissed that you do it (my mom….)
the point is, my heat hives have gone from unbearable to now just a minor annoyance. it really is no longer an issue for me. i dont even think about it anymore and i consider myself basically cured of it.
also, doing a quick search i see that the hives going away in the summer is a pretty common thing so i really think people could benefit from this technique.
o, i also tried some acupuncture and some medications with little to no success.
trust me people, this works.
anyways, i feel like i would be the biggest butt in the world if i didn’t tell my story.
i developed heat hives in high school from what i truly believe was a series of panic attacks i got one summer which triggered it.
the following fall i got my first breakout. the itching occured basically everywhere. i broke out into hives on my arms, chest, and legs.
the following couple years were basically unbearable. i wanted to kill myself on many occasions and just rip my clothes off and light myself on fire.
i avoided people and situations which would cause me to get hot and basically had to change my entire life.
BUT, there was relief. during the summer the itching and hives went away. my skin did turn a weird texture as i sweat, but other than that, there were little to no hives or itching.
in my mind, the problem isn’t so much about the heat, its about the change from cold to heat.
also, its about the consistent conditioning of your body temperature. that’s why air conditioning doesn’t cause any itching or hives in the summer because the vast majority of the time is still spent in pretty high temperatures.
however, spending just a few days in 50 degree weather will bring back the heat hives instantly because of the consistent cool temperatures.
after dealing with this for about 9 years and absolutely dreading the fall, winter, spring months, i had an idea, why not just try and replicate summer temperatures in the fall-spring in a ‘consistent’ way?
i had a few portable heaters in the house so i fired one up in my room to get it as hot as possible and try it out. the rest is history.
basically, my room during the fall-spring months is around 85-95 degrees. im not really sure because i just keep the heater on the whole time.
i don’t remember exactly how difficult it was to get used to that heat but at this point in my life, it really isn’t something i think about. i wouldn’t consider it uncomfortable once you get used to it.
plus, the benefits far far far out way any uncomfortableness you may experience in that heat. first off, i now get ZERO hives. ZERO. secondly, the itching is reduced by about 75% or to the point that its just a minor annoyance. i can go jogging in 30 degrees and will only experience minor itching.
ive been doing this for a few years now and when the cold months get here, i just know its time to make my room into a mini sauna.
now, before you go and say you can’t live in that heat, please know that i do it ‘comfortably’ for about 6 months a year and it really really isnt that big of a deal. i mean, people live in tropical climates without air conditioning their entire lives.
i actually feel weird if my room isn’t super hot in the cold months.
a couple notes: i am not sure the exact amount of time and temperature needed to ‘condition’ your body successfully. i get away with 5 nights a week ‘sleeping only’ in about 90 degrees.
perhaps 80 degrees in enough or only 4 nights a week. im sure it varies from person to person.
the first year my room was hot 24 hours a day.
also, if you live with people, know that almost no one will be comfortable in that heat and some will even get pissed that you do it (my mom….)
the point is, my heat hives have gone from unbearable to now just a minor annoyance. it really is no longer an issue for me. i dont even think about it anymore and i consider myself basically cured of it.
also, doing a quick search i see that the hives going away in the summer is a pretty common thing so i really think people could benefit from this technique.
o, i also tried some acupuncture and some medications with little to no success.
trust me people, this works.
Title: Re: no longer really an issue
Post by: HivesGuy on January 12, 2012, 02:22:28 PM
Hello godpoos,
Excellent post and welcome to the forum!
Wow, thanks for typing that out. It is definitely interesting, and I think a lot of people can benefit from reading that.
I too have found that maintaining regular sweating (and controlling the heat/humidity in the winter), along with super healthy and lean diet has eliminated my hives as well–and I am still sustaining it.
Thanks again for sharing that!
Excellent post and welcome to the forum!
Wow, thanks for typing that out. It is definitely interesting, and I think a lot of people can benefit from reading that.
I too have found that maintaining regular sweating (and controlling the heat/humidity in the winter), along with super healthy and lean diet has eliminated my hives as well–and I am still sustaining it.
Thanks again for sharing that!
Title: Re: Hives have been better lately – READ
Post by: HivesGuy on January 12, 2012, 02:23:42 PM
Thanks for the update! I’m glad to hear things are still improving for you. Let us know if anything changes.
Title: Re: no longer really an issue
Post by: godpoos on January 12, 2012, 02:41:58 PM
i know how absolutely life changing and devastating this condition is.
the fact that at this point in my life i no longer really think about it is something i take for granted even though its only been that way for a few years.
ive basically gotten my life back because of this method so i hope others can as well.
the fact that at this point in my life i no longer really think about it is something i take for granted even though its only been that way for a few years.
ive basically gotten my life back because of this method so i hope others can as well.
Title: Cholinergic Urticaria Came & Gone In 6 Months
Post by: 11BRavo on January 16, 2012, 05:12:01 AM
My story starts off probably a little different then most but seems to really not make a difference. When I first started feeling the “crazy itch” sensation I was about two months of being deployed in Iraq. My unit deployed in mid July, it was HOT here (130 Degrees) it had started to get cooler around Halloween and this is around the time Cholinergic Urticaria started to take a real hard toll on me.
I am 20 years old, mexican-caucasion, 160 in weight, no drugs, pretty healthy diet (but was drinking a lot of Gatorade which contains a lot amount of sugar.) (I’ve found the age about the same with most posters.)
First I ignored it, just scratched really really hard into my scalp until I had been sweating for a good five minutes (As described by most it is a really annoying hard itch sensation that is unstoppable then goes away after you have been sweating for 5-10 minutes.) Then next I needed help, I couldn’t deal with it anymore. Asked people for better shampoo and conditioner, after I realized I had been accidentally been using body wash in my hair. (I read before bad products could lead to this cause but didn’t really think body wash would do it)
After a couple months it never changed at all, still researching it every few weeks. (Never finding this website wish I would have) but I found a couple sites leading me to use a couple special products and pills with some healthy nutrients I may have been missing to keep my head cooled down and stop the itch. I got leave (R&R) for two weeks and went home where I could actually buy these things. I bought…
CURES I FOUND Barlean’s Fish Oil (Orange Flavor) (Found could help keep scalp healthy and full of nutrients AllerClear (Non-Drowsy) (Antihistamine) Desert Essence Shampoo & Conditioner… Contains Tea Tree (I found could help the itchyness)
I bought these products at the local supplement store. Keep in mind it is still cold here January 16th and I have no control over temperature as I am in a 50-man tent and well outside is outside. I really needed to figure this problem out as you may think it really affected the way I executed my job daily.
Hope this helps at least one person! I know it is a really bad and annoying skin condition. Knock on wood I don’t get the condition again! Good luck everyone!
I am 20 years old, mexican-caucasion, 160 in weight, no drugs, pretty healthy diet (but was drinking a lot of Gatorade which contains a lot amount of sugar.) (I’ve found the age about the same with most posters.)
First I ignored it, just scratched really really hard into my scalp until I had been sweating for a good five minutes (As described by most it is a really annoying hard itch sensation that is unstoppable then goes away after you have been sweating for 5-10 minutes.) Then next I needed help, I couldn’t deal with it anymore. Asked people for better shampoo and conditioner, after I realized I had been accidentally been using body wash in my hair. (I read before bad products could lead to this cause but didn’t really think body wash would do it)
After a couple months it never changed at all, still researching it every few weeks. (Never finding this website wish I would have) but I found a couple sites leading me to use a couple special products and pills with some healthy nutrients I may have been missing to keep my head cooled down and stop the itch. I got leave (R&R) for two weeks and went home where I could actually buy these things. I bought…
CURES I FOUND Barlean’s Fish Oil (Orange Flavor) (Found could help keep scalp healthy and full of nutrients AllerClear (Non-Drowsy) (Antihistamine) Desert Essence Shampoo & Conditioner… Contains Tea Tree (I found could help the itchyness)
I bought these products at the local supplement store. Keep in mind it is still cold here January 16th and I have no control over temperature as I am in a 50-man tent and well outside is outside. I really needed to figure this problem out as you may think it really affected the way I executed my job daily.
Hope this helps at least one person! I know it is a really bad and annoying skin condition. Knock on wood I don’t get the condition again! Good luck everyone!
Title: Re: Cholinergic Urticaria Came & Gone In 6 Months
Post by: HivesGuy on January 18, 2012, 07:57:10 AM
Hello 11BRavo,
Thanks for the post and welcome to the forum.
Yes, I agree that Cholinergic Urticaria definitely seems to hit most people at the end of their teens. I’m glad that you seemed to have found something that may help. Thanks again for the post, and thanks for your military service.
Thanks for the post and welcome to the forum.
Yes, I agree that Cholinergic Urticaria definitely seems to hit most people at the end of their teens. I’m glad that you seemed to have found something that may help. Thanks again for the post, and thanks for your military service.
Title: Re: CURE
Post by: Struikgewas on January 19, 2012, 06:06:47 AM
What are the ingredients of the ACV?
In my country there’s no such thing as apple cider vinegar. There is ‘AppleVinegar’, but I don’t know if that is the same..
And ‘the Mother’ is the brandname right?
Thanks for helping
In my country there’s no such thing as apple cider vinegar. There is ‘AppleVinegar’, but I don’t know if that is the same..
And ‘the Mother’ is the brandname right?
Thanks for helping
Title: Remission I hope?
Post by: LookMaNoHives on January 25, 2012, 04:22:03 PM
Hey guys, it has been awhile since I have posted or been on here (a year!). When I was posting my hives were really bad. After last summer my hives got better, but weren’t really gone. If I exercised I still got them mildly but I could handle it. Shortly into the fall I was diagnosed with chronic migraines (basically I wake up everyday with a migraine). I was put on Topamax (terrible drug, never take it). It helped my migraines but the side effects were worse than my migraines if you can believe that and I was switched to amitriptylline, a tricyclic antidepressant which helped my migraines considerably with fewer side effects. I remember reading on potential treatments for Cholinergic Urticaria that people mentioned anti-depressants and I considered it but never acted on it. Ever since the amitriptylline has been in full effect I haven’t had hives once (all through winter!). It is too soon to say for sure, but I feel normal again! I ran on an elliptical for 40 minutes and I felt awesome and then I went to a corefusion class and it was also awesome! ;D hopefully it stays this way and I hope that everyone else can find their cure too ๐
Title: Well known condition in France and there is medication for it.
Post by: Baf on February 05, 2012, 02:28:20 PM
THIS CONDITION IS WELL KNOWN IN FRANCE AND THE BELOW IS THE NAME FOR THE MEDICATION YOU NEED TO CURE IT.
ONLY AVAILABLE IN FRANCE
INORIAL CPR 30 ยฎ
GOOD LUCK.
ONLY AVAILABLE IN FRANCE
INORIAL CPR 30 ยฎ
GOOD LUCK.
Title: my only cure for my hives is my job
Post by: Snuff on February 06, 2012, 04:18:18 PM
I can honestly say that the only reason my hives haven’t returned full forces because of my job . i can now liv e a normal life. i work in a factory and bi work really hard easily work my tail off physically and over been working since last summer and straight thru this winter . if it wasn’t for my job thatt works me to the bone i would be living with hives . But i love my job its fun so its a win win
Title: Re: Well known condition in France and there is medication for it.
Post by: Nathaaan on February 06, 2012, 08:40:14 PM
Hmm, can anyone confirm if this is real or not?
Title: Re: my only cure for my hives is my job
Post by: HivesGuy on February 11, 2012, 06:51:09 AM
Hey Snuff,
Thanks for the update. I’m glad to hear that your job is keeping you busy, and keeping your hives at bay. I hope you have continued success, and thanks for updating us!
Thanks for the update. I’m glad to hear that your job is keeping you busy, and keeping your hives at bay. I hope you have continued success, and thanks for updating us!
Title: Re: Well known condition in France and there is medication for it.
Post by: HivesGuy on February 11, 2012, 07:42:35 AM
Hey Baf,
Thanks for sharing. What type of drug is this? I googled it, but it is all in french. It appears it may be an antihistamine, is this correct? Either way, I’m glad it seems to be helping you.
@Nathaan, if it is an antihistamine, then it will work just like the rest. Some may benefit from it, some may not. I can’t find much on the web about it, but one article title suggested it may just be an H1 antihistamine (like Zyrtec or others).
Thanks for sharing. What type of drug is this? I googled it, but it is all in french. It appears it may be an antihistamine, is this correct? Either way, I’m glad it seems to be helping you.
@Nathaan, if it is an antihistamine, then it will work just like the rest. Some may benefit from it, some may not. I can’t find much on the web about it, but one article title suggested it may just be an H1 antihistamine (like Zyrtec or others).
Title: Re: Remission I hope?
Post by: HivesGuy on February 11, 2012, 08:07:11 AM
Thanks for the update. I’m glad that this seems to be helping you, and I hope you continue to get relief from this. Let us know how things progress, and best wishes!
Title: Re: Well known condition in France and there is medication for it.
Post by: void on February 17, 2012, 09:41:31 PM
INORIAL CPR 30 ยฎ (AKA) Bilastine is a a selective histamine H1 receptor antagonist
The use of H1 RA’s for Cholinergic Urticaria is futile imo
The use of H1 RA’s for Cholinergic Urticaria is futile imo
Title: Re: Well known condition in France and there is medication for it.
Post by: Fregien on February 24, 2012, 01:51:52 AM
I just spent a little time on research of this bilastine drug. It doesn’t seem futile to me with the test results I’ve seen. It’s specifically trying to treat rhionotis and urticaria. Results show It’s ten times more effective than cetrizine, more effective and less side effects. Unfortunately not available in the USA yet as an option. Anyone tried it outside the US? Effective?
Title: Please share your experience if you haves have completely dissappeared.
Post by: LuckyHives on March 04, 2012, 06:58:27 PM
I’ve suffered for 9 years with cholinergic urticaria. To be honest I don’t feel like this condition will ever go away completely. If your out there and your hives have completely dissappeared please share your experience. I’m starting to lose hope.
Title: Re: SUCCESS STORY RIGHT HERE!!!
Post by: MikeC on March 07, 2012, 09:24:55 PM
love it!
Title: Re: Please share your experience if you haves have completely dissappeared.
Post by: HivesGuy on March 08, 2012, 09:16:40 AM
Don’t lose hope! Hope was the only thing that got me through some dark days with Cholinergic Urticaria.
The fact is that there are many people who have either eliminated their Cholinergic Urticaria, or have reduced the symptoms so much as to not even make it an issue any more.
I’ve posted my story several times, and so have others.
I’ll just briefly post a few general tips again:
1. Eat clean, consider allergy elimination diets, and maintain a healthy weight. 2. Exercise if you can do so safely. If you’ve ever had anaphylaxis, you’ll want to avoid this. Do so safely with an adult and doctors permission, and read my blog on my tips of how I did it. It’s good to keep the body used to sweating if possible, plus exercise does loads of other things to make you happier and healthier. 3. Eliminate all external allergens possible–dust mite proof bedding, hypoallergenic soaps/detergents/lotions, etc. 4. Bathe in cooler water, and consider a shower filter. 5. Check for vitamin deficiences, and correct any you have (vitamin d3, calcium, multivitamin, etc.). Again, always do so under a doctor’s guidance. 6. Best to avoid all recreational drugs/alcohol for health’s sake (especially for the long term). My wife’s a nurse, and it is truly sad how many people are dying on this synthetic drugs, marijuana, alcohol, etc. Trust me, no one on this forum wants to end up like what she sees daily as a nurse. Even skinny people in their 20’s having major heart, kidney, and other issues from these drugs. 7. Consider probiotics if you’ve had digestion issues. I take a kind by digestive advantage. 8. Be proactive. Learn to listen to your body. Jot down notes of how you responded to certain foods or exercise that day. Keep a log of your hives reactions. Keep reading other’s experiences for new insights or hope. By getting in a habit of being scientific and active about your health, you stand a much higher chance of being able to identify triggers, and notice when something starts reducing your symptoms.
Hang in there!
The fact is that there are many people who have either eliminated their Cholinergic Urticaria, or have reduced the symptoms so much as to not even make it an issue any more.
I’ve posted my story several times, and so have others.
I’ll just briefly post a few general tips again:
1. Eat clean, consider allergy elimination diets, and maintain a healthy weight. 2. Exercise if you can do so safely. If you’ve ever had anaphylaxis, you’ll want to avoid this. Do so safely with an adult and doctors permission, and read my blog on my tips of how I did it. It’s good to keep the body used to sweating if possible, plus exercise does loads of other things to make you happier and healthier. 3. Eliminate all external allergens possible–dust mite proof bedding, hypoallergenic soaps/detergents/lotions, etc. 4. Bathe in cooler water, and consider a shower filter. 5. Check for vitamin deficiences, and correct any you have (vitamin d3, calcium, multivitamin, etc.). Again, always do so under a doctor’s guidance. 6. Best to avoid all recreational drugs/alcohol for health’s sake (especially for the long term). My wife’s a nurse, and it is truly sad how many people are dying on this synthetic drugs, marijuana, alcohol, etc. Trust me, no one on this forum wants to end up like what she sees daily as a nurse. Even skinny people in their 20’s having major heart, kidney, and other issues from these drugs. 7. Consider probiotics if you’ve had digestion issues. I take a kind by digestive advantage. 8. Be proactive. Learn to listen to your body. Jot down notes of how you responded to certain foods or exercise that day. Keep a log of your hives reactions. Keep reading other’s experiences for new insights or hope. By getting in a habit of being scientific and active about your health, you stand a much higher chance of being able to identify triggers, and notice when something starts reducing your symptoms.
Hang in there!
Title: Re: Please share your experience if you haves have completely dissappeared.
Post by: bronxrules on March 09, 2012, 02:12:19 PM
hi. my name is darlene im 51and ive had this cholinergic urticaria for around a year now..every doctor i went to was no help,they would come up with all kinds of stupid answers. ive tryed everything they told me to try even when i knew it was way off the wall…. the symptoms were so bad i could’nt stay outside for more then 10 mins it felt like i rolled around in a catus bush,but as soon as i came in the air conditioner the symptoms went away in a few mins. so all last spring,summer,and fall i was mostley in my house.so a little while ago i notice my hair was thinning, i was flipping out ,so i went to my doc and he told me that my cholesterol pill could be doing it.he said for me to quit it for a month to see if it was it. well the weathers been getting pretty warm here for awhile matter of fact we havent had much cold weather here all winter . ive went off the pill for 3 weeks now last week i went out side to do a little yard work i just knew i was gonna take a break every 5 mins to relieve my itching,i fliped out when i was out there for 1/2 hour and i didnt itch at all. i stayed out there for 7 hours and did not itch once, i thought it was to good to be true so the next day i put it to the test, i went out in the sun it was 68-70 degrees nothing…. went in got my hoodie (black one) stood in the sun for awhile .nothing.. started to exercise in the sun.. nothing.. im gonna say im 100 percent in my case it was the medicine that did this to me when i asked the doc when it was that he put me on those pill it was about the same time my cholinergic urticaria came..i dont know if you take meds, but i would check hope you get relief soon for your
Title: Re: Been outside all Summer, even in 107 degree weather…NO HIVES!!!!
Post by: MikeC on March 12, 2012, 11:59:37 AM
hi Kimmy, Glad to hear that you are hive free now and hope you still are. Did you move to a different location or housing when you started exercising and became hive free?
Title: My root cause for Cholinergic Urticaria – talc
Post by: mikes on March 14, 2012, 09:52:28 PM
I wanted to share my story and happy ending with having Cholinergic Urticaria in the hope that it might make someone else’s situation some better. My Cholinergic Urticaria (heat itching) seemingly appeared rather suddenly and then persisted for maybe a decade until I found my root case and eliminated that cause from my diet. There were times when the itching was overwhelmingly debilitating. Although the itching was acute for me the wheals were barely noticable. Overall all of my doctors visits and testing were not helpful at all. No drug I ever took, and I took many, was useful. At one point I spent a week at Stanford Medical Library reading all the primary research articles that I could find on it and that firmed up my diagnosis.
The basic cause of my Cholinergic Uticaria was “talc” in my diet. Once I was aware of it I could mostly eliminate it from my consumption and the problem cleared up. It is present in some places you might expect (in white tablets like Bufferin and various supplements) and in some relatively unexpected places (like as an anti-caking agent in rice).
I was lucky in that I knew I had an allergy to talc from childhood skin exposure so that gave a clue. However, it was extremely difficult to find that the actual root cause of my Cholinergic Urticaria was talc. For example, I fasted for a week on water and there was still sufficient amounts in my body that I had attacks at the end of that time. Eliminating foods from diets gave no useful clues nor did the multitude of allergy test pricks on my back.
I say talc but I know it is talc plus maybe a few other things that are chemically similar. The only other thing I worry about is “dutch processed” chocolate. Dark, non-dutch processed chocolates (which I love) are fine.
So, by elminating foods and supplements with ‘talc’ explicitly listed and by avoiding dutch-processed chocolates I’m now fine and have been symptom free for more than a decade. And I mostly don’t worry about trace amounts, such as in rice.
The basic cause of my Cholinergic Uticaria was “talc” in my diet. Once I was aware of it I could mostly eliminate it from my consumption and the problem cleared up. It is present in some places you might expect (in white tablets like Bufferin and various supplements) and in some relatively unexpected places (like as an anti-caking agent in rice).
I was lucky in that I knew I had an allergy to talc from childhood skin exposure so that gave a clue. However, it was extremely difficult to find that the actual root cause of my Cholinergic Urticaria was talc. For example, I fasted for a week on water and there was still sufficient amounts in my body that I had attacks at the end of that time. Eliminating foods from diets gave no useful clues nor did the multitude of allergy test pricks on my back.
I say talc but I know it is talc plus maybe a few other things that are chemically similar. The only other thing I worry about is “dutch processed” chocolate. Dark, non-dutch processed chocolates (which I love) are fine.
So, by elminating foods and supplements with ‘talc’ explicitly listed and by avoiding dutch-processed chocolates I’m now fine and have been symptom free for more than a decade. And I mostly don’t worry about trace amounts, such as in rice.
Title: Re: My root cause for Cholinergic Urticaria – talc
Post by: HivesGuy on March 15, 2012, 07:03:03 AM
Hey Mikes,
Excellent post and welcome to the forum.
That was very interesting reading your story. I too have found that diet was pretty much the biggest contributing factor to my hives. I know I have a lot of sensitivities to various foods, but to this day I am not sure what chemical or exact component it is in them.
It was very interesting reading that you were able to pinpoint talc.
I am so happy mine is gone as well, and I thank God daily for being able to live again.
I’m not sure if everyone’s Cholinergic Urticaria is caused by diet (I’m sure some may have it from another cause), but I would strongly urge every single person on this forum to go through their diet with a comb and microscope, spend many months removing and testing things.
Like you, I noticed that it took a long time (3+ weeks) before removing the foods finally allowed my symptoms to calm down.
Thanks again for posting this and sharing it with others.
Excellent post and welcome to the forum.
That was very interesting reading your story. I too have found that diet was pretty much the biggest contributing factor to my hives. I know I have a lot of sensitivities to various foods, but to this day I am not sure what chemical or exact component it is in them.
It was very interesting reading that you were able to pinpoint talc.
I am so happy mine is gone as well, and I thank God daily for being able to live again.
I’m not sure if everyone’s Cholinergic Urticaria is caused by diet (I’m sure some may have it from another cause), but I would strongly urge every single person on this forum to go through their diet with a comb and microscope, spend many months removing and testing things.
Like you, I noticed that it took a long time (3+ weeks) before removing the foods finally allowed my symptoms to calm down.
Thanks again for posting this and sharing it with others.
Title: Re: Please share your experience if you haves have completely dissappeared.
Post by: HivesGuy on March 15, 2012, 07:19:49 AM
@Darlene (bronxrules),
That’s definitely interesting about the pill you were taking. Definitely let us know how things progress, and if your hives come back or not.
That would be wonderful if you can maintain this long term. God bless you!
That’s definitely interesting about the pill you were taking. Definitely let us know how things progress, and if your hives come back or not.
That would be wonderful if you can maintain this long term. God bless you!
Title: i finally got rid of my cholinergic urticaria
Post by: bronxrules on March 24, 2012, 06:40:28 PM
we’ll i waited awhile before i posted this to make sure it wasnt gonna come back,and it didn’t..My cholinergic urticaria was so bad ,anything 60degrees and above would make my skin itch so bad it felt like i rolled in a catus bush, all last sping and summer i could go outside for more then 5 mins,i had to run in the house and cool myself down. it would go away real quick once im in the house.ive had this thing for a little over a year,i live in maryland and spring came early this year we didnt even have a cold winter.right away i felt this thing come on i started crying cause i knew my spring and summer was ruined for me…ive been to over 3 differnt doctors my family doc which told me i had a skin problem,,my thyroid doc said it was cause im menopauseing and thats one of the symptom..dermatologist said something with a real long name…well over a month ago my hair started to thin out so i ask my doc what could be causeing it i figured he was gonna say cause im meopauseing, cause they seem to blame everything on that..he told me my cholesterol pill might be causeing my hair to thin and told me to go off of them for a month to see.. so i quit taking the pills, like i said the weather has been real warm here, i started getting my garden bed ready for planting i was out side for a real long time and then all of a suddened i relized i didnt itch at all i wanted to wait before i got my hope up its been over a month of staying outside in the sun, excirsising in the house.and i still aint itched.. i am 100% that the cholesterol pills was the cause of my cholinergic urticaria, dont know what im gonna do about my chlesterol but i aint gonna take these pills again .if anyone out there is takeing medicine for something i would check to see if it might be the cause of your itching cause you never know ..i wish every body luck out there..take care…darlene
Title: Re: i finally got rid of my cholinergic urticaria
Post by: HivesGuy on April 05, 2012, 10:47:59 AM
Hi Darlene,
I just wanted to pop in and say thanks so much for following up and sharing that. I’m really happy for you, and I hope you can maintain this for the rest of your life.
God bless you.
I just wanted to pop in and say thanks so much for following up and sharing that. I’m really happy for you, and I hope you can maintain this for the rest of your life.
God bless you.
Title: Re: Been outside all Summer, even in 107 degree weather…NO HIVES!!!!
Post by: rs91 on April 05, 2012, 09:42:33 PM
hello im a newbie here but i had to join up seeing your story…yay youre free from this horrible thing ::) Did you cool yourself down (drinking and/or, spray pour rub whatever,water on your skin. ) while running or did you just tough it out and wait till your done running because i know if it was me running right now id have to carry a bottle of water with me stop asap then just dump it on my skin to soothe the burning itching nasty feeling
Title: Re: Been outside all Summer, even in 107 degree weather…NO HIVES!!!!
Post by: Struikgewas on April 06, 2012, 08:33:37 AM
Hi Kimmy,
Thank you for your story. Somehow I find it great to read succesfull stories like these. Reading how people get better physically and especially mentally gives me strength.
I really try to stay positive and stress-free, because I also think that that is important. I started a week ago with daily exercise (1,5 hour racing everyday) and I feel great.
Wouter
Thank you for your story. Somehow I find it great to read succesfull stories like these. Reading how people get better physically and especially mentally gives me strength.
I really try to stay positive and stress-free, because I also think that that is important. I started a week ago with daily exercise (1,5 hour racing everyday) and I feel great.
Wouter
Title: My sucess progress so far!
Post by: yash on April 11, 2012, 01:37:48 AM
Inspired by a lot of success stories here including Hivesguy’s but specially Ray’s.
I decided to try my own recovery therapy based on theirs but with a few twists.
So im very pleased to announce that after following this therapy for about 3 weeks now my hives are 85%-90% GONE, I swear yesterday while i was walking by the street with the sun at it’s hottest splendor I almost broke into tears of joy, after almost 5 years im finally able to go outdoors without having to worry about Cholinergic Urticaria!
But anyways, my therapy basically consisted of 3 “pillars”: Diet, workout and vitamins.
:: DIET ::
A very crucial part of the therapy indeed, cause its important that during this time your consumption of histamine-free or histamine-low loaded food is dramatically reduced, my diet basically consisted of:
– Veggies (Tomato, onion, broccoli, cauliflower, potatos, etc) – Fruits (All of them except Strawberry and cranberry since they are high on histamine) – Soy milk (I bought soy milk powder to prepare instant drinks and whatnot) – Chicken (preferably boiled with veggies, also make sure it’s skin free as the skin is high on histamine) – Olive oil (used ocasionally, I love it haha) – Corn Fluor (avoid using wheat fluor) – Brown Sugar used on low amounts as a sweetener, can be replaced by honey
And thats it, no sodium salt at all, I use a potasium salt supplement which is wonders as it’s way healtier and tastest almost the same as standard salt.
:: WORKOUT ::
This is the crucial part of the recovery I guess, what I did was 45 mins to 1 hour daily of mid to intesive physical activity to force the body to sweat, I must say the first 2-3 days were the thoughest cause the pain was a bad, but I was determined, luckily it lasted for like 10 mins or so and then the rest went smooth, and btw I worked out by night cause thats when I noticed my body temperature wouldn’t rise as high as it would during the morning /afternoon.
To make things a little less dull and boring, I included dancing on my workout, haha im a terrible dancer but somehow It made me feel psychologically better and… “free”, to the point I totally replaced standard workout for full dancing sessions haha, whatever works to force the body to sweat right?
:: VITAMINS ::
I also Included on my diet supplementary Vitamin E / Calcium pills, why? well, Most of us Cholinergic Urticaria carriers are deficient on Vitamin E, cause the primary source of our body to obtain it is… Take a guess??? SUNLIGHT, so go figure, and calcium cause dairy (which is the main calcium source) tends to make the Cholinergic Urticaria sympthoms worse. And somehow I do feel like these pills helped me too as I was deficient on both.
WARNING: Consult your doctor first to make sure it is safe for you to take these pills.
And that was pretty much it, im still on this therapy hoping to get to that 100%, I cannot wait, but overall im sooooooo happy, so I would REALLY like to encourage you guys to try the workout therapy, I don’t know if it will be gone for good after this, but im sooo gonna enjoy it while it lasts.
Regards
Andy
So im very pleased to announce that after following this therapy for about 3 weeks now my hives are 85%-90% GONE, I swear yesterday while i was walking by the street with the sun at it’s hottest splendor I almost broke into tears of joy, after almost 5 years im finally able to go outdoors without having to worry about Cholinergic Urticaria!
But anyways, my therapy basically consisted of 3 “pillars”: Diet, workout and vitamins.
:: DIET ::
A very crucial part of the therapy indeed, cause its important that during this time your consumption of histamine-free or histamine-low loaded food is dramatically reduced, my diet basically consisted of:
– Veggies (Tomato, onion, broccoli, cauliflower, potatos, etc) – Fruits (All of them except Strawberry and cranberry since they are high on histamine) – Soy milk (I bought soy milk powder to prepare instant drinks and whatnot) – Chicken (preferably boiled with veggies, also make sure it’s skin free as the skin is high on histamine) – Olive oil (used ocasionally, I love it haha) – Corn Fluor (avoid using wheat fluor) – Brown Sugar used on low amounts as a sweetener, can be replaced by honey
And thats it, no sodium salt at all, I use a potasium salt supplement which is wonders as it’s way healtier and tastest almost the same as standard salt.
:: WORKOUT ::
This is the crucial part of the recovery I guess, what I did was 45 mins to 1 hour daily of mid to intesive physical activity to force the body to sweat, I must say the first 2-3 days were the thoughest cause the pain was a bad, but I was determined, luckily it lasted for like 10 mins or so and then the rest went smooth, and btw I worked out by night cause thats when I noticed my body temperature wouldn’t rise as high as it would during the morning /afternoon.
To make things a little less dull and boring, I included dancing on my workout, haha im a terrible dancer but somehow It made me feel psychologically better and… “free”, to the point I totally replaced standard workout for full dancing sessions haha, whatever works to force the body to sweat right?
:: VITAMINS ::
I also Included on my diet supplementary Vitamin E / Calcium pills, why? well, Most of us Cholinergic Urticaria carriers are deficient on Vitamin E, cause the primary source of our body to obtain it is… Take a guess??? SUNLIGHT, so go figure, and calcium cause dairy (which is the main calcium source) tends to make the Cholinergic Urticaria sympthoms worse. And somehow I do feel like these pills helped me too as I was deficient on both.
WARNING: Consult your doctor first to make sure it is safe for you to take these pills.
And that was pretty much it, im still on this therapy hoping to get to that 100%, I cannot wait, but overall im sooooooo happy, so I would REALLY like to encourage you guys to try the workout therapy, I don’t know if it will be gone for good after this, but im sooo gonna enjoy it while it lasts.
Regards
Andy
Title: Re: My sucess progress so far!
Post by: HivesGuy on April 11, 2012, 04:39:02 AM
Thanks for the update. I’m so glad that things are going well, and that you are improving so much. My hives are still gone, and I’ve been outside working, exercising, sweating, no issues or worries. It is so awesome.
I wish you the best of luck, and I hope things get even better over time.
I wish you the best of luck, and I hope things get even better over time.
Title: Re: My sucess progress so far!
Post by: Struikgewas on April 12, 2012, 12:05:38 PM
It’s the same with me man ๐ Hives are 90% gone, only because of daily workout (75 min racing). Perhaps you should figure out which of your three factors (Diet, wourkout, vitamines) helps you the most. Because I really feel 90% better pure by sweating each day!
Title: Re: i finally got rid of my cholinergic urticaria
Post by: Claudia on April 20, 2012, 01:47:51 PM
Hi Darlene,
Your story inspired me to share my own experience with high cholesterol issues…
I am 26 years old, but when I was around 15-16 years old, I was diagnosed with having high cholesterol (my doctor compared my cholesterol to that of an 80-year old man).
It took me a few years, but I was able to get it under control with diet, and exercise, and no medication. I started eating a lot more fiber: salad, whole wheat cereal, bread, oatmeal, etc.; and no eggs, nuts or any other food that’s high in cholesterol. This leads me to believe that not everyone needs need pills to keep their cholesterol down. Since I didn’t need the pills to lower my cholesterol, there’s a possibility that you won’t need them either.
Your story inspired me to share my own experience with high cholesterol issues…
I am 26 years old, but when I was around 15-16 years old, I was diagnosed with having high cholesterol (my doctor compared my cholesterol to that of an 80-year old man).
It took me a few years, but I was able to get it under control with diet, and exercise, and no medication. I started eating a lot more fiber: salad, whole wheat cereal, bread, oatmeal, etc.; and no eggs, nuts or any other food that’s high in cholesterol. This leads me to believe that not everyone needs need pills to keep their cholesterol down. Since I didn’t need the pills to lower my cholesterol, there’s a possibility that you won’t need them either.
Title: i know the cure! it’s just a matter of doing so.
Post by: HeatLad on April 22, 2012, 04:53:07 PM
Hey guys i am Ryan 17 from england. my hives are awful and i suffer from anxiety so it is even worse. i have found out from vigorous research that taking two anti histamines (H1 AND H2) at the same time can give double the affect and help. Diet: cutting out food you might be allergic too. Exercise: YOU NEED TO EXERCISE. i will start soon, I’m going to get a hoodie on so i can get hotter quicker and just go for it, what have i got to lose? nothing. the more the sweat comes out on a regular basis the easier it will come out and also it will be a very good mental help for you just knowing you can sweat ๐ Will power: BELIEVE YOU CAN DO THIS. We are all strong HivesGuy you are amazing, i was seeking help on the internet and i ended up finding a second family and a place of comfort knowing there is hope! What gets me through some days is the stories of people on here and also knowing people all over the world live in poverty, war torn countries and have much worse lives than what i do! Email: email me at ryan_geraghty1990@hotmail.co.uk if you want some banter or a good conversation about this because we need to stick together and ill be happy to help anyone with this condition. ( i am on allegra and so far it isn’t working but ill give it another week) THANKYOU MY FAMILY. ๐ ;D ;D ๐ ๐ ๐ ๐ ๐
Title: Re: My sucess progress so far!
Post by: Claudia on April 23, 2012, 05:15:59 PM
Congrats on the improvement in your symptoms! For those of us who’re still struggling with C.U., it gives us hope that we might actually beat this thing. I, too, am curious if exercising was the main reason why your hives went away. Tonight, I’ll try exercising to sweat — it’ll be my first time exercising in almost 2 years lol. I’m keeping my fingers crossed that I’ll also see some improvement in my symptoms, but I’ll keep everyone updated either way.
Title: Cured atlast!
Post by: nauqaz on April 27, 2012, 09:53:35 AM
hey,i am 21 years old and i got heat urticaria when i was around 17,so i spent the last 4years beneath a fan cringing at the thought of going outside or even exercising indoors.i tried alot of doctors who recommended alot of antihistamines but their effect was next to zero.i had lost hope until i met another doctor 2 weeks ago who told me to take 2 tablets of Polybion z and 2 of Cecon 500mg daily.I took them for around 2 weeks and today i stood in the sun for 30 minutes to see if they worked and THE ITCH WAS GONE!!!THANKYOU GOD!I am so happy,it cant be described.i couldnt stand for more than a minute in the sun previously. Polybion Z is a high potency Zinc + Vitamin E, C, Folic Acid & B-Complex and Cecon is a vitamin C tablet. I really really want all of you to try these two or any similar tablets and hope all of you get rid of the itch!
Title: Re: Cured atlast!
Post by: Him_Osiris on April 27, 2012, 04:37:38 PM
Seriously Dude? Cause the meds that u are mentioning are both vitamin and mineral supplements and nothing else. How certain are u that u had Cholinergic Urticaria? Cause I eat a lot of vitamins ( naturally) in my diet and I cant think of any reason of being deficit in them. P.S: I have had medium case of C.U for atleast 10 years now.
Title: Re: What did you guys use to be cured. And how to use it /tips/. Hope u guys help me
Post by: HeatLad on May 05, 2012, 04:11:52 PM
SWEATING i recently bought a treadmill so if i broke out of hives at least I’m in my own house so i feel much more comfortable.i put music on, put trackies and 2 coats on, walk for 15 minutes then run for 15 and i am sweating like a pig! i have stopped itching! today ii was in the sun for ages, itched for a few seconds then i started sweating! it was magical, you need to sweat, the more you sweat the less you itch
Title: DAY 3 of getting cured! (why didn’t i do this sooner?)
Post by: HeatLad on May 07, 2012, 01:22:47 AM
DAY 3 i have my treadmill in my living room and now it is working wonders! I do 10 minutes walking and 10 minutes running I wear a shirt, trousers,trainers and two big heavy coats; the reason i do this is the hotter i am the easier it is to sweat so i find it so easy to sweat with the coats on. Day 3 and today, like yesterday, i had no hives! i was running and i started sweating with a few tiny pin pricks in my back but after a minute of jogging they went! i was so happy. Every day this is getting better and better, i am going to go for a cold shower and get ready for a good day ๐ ๐ ๐ ๐ I have been taking allegra for 4 weeks now and to be honest i don’t know if this is helping or it is just down to me sweating every day but just in case it is helping i will be continuing to take allegra. SUGGESTION get a treadmill in your house and do what i have done! i finally feel good about myself and i am ready to take on the world! ๐ come on guys you can all do it and i WILL keep you updated with this, even if none of you reply because i just like getting this all off my chest because it makes me feel better ๐ thank you guys. HOPE EVERYONE HAS A GOOD DAY
Linda Barone says
I developed diabetis and as soon as I started taking metformin my cholinergic urticarial subsided. I was diagnosed with cholinergic urticaria and suffered with it for many many years. It started at 17 years old to 66 years now. Hope this helps someone.
Hivesguy says
Thanks for sharing that, Linda. Glad you’re hives are better.
Tyler says
Hey everyone,
I just wanted to know how long it took for your CU to settle down just enough that we can be bold and start sweating this thing out. This is my 8 month with CU but it got worse in month 5.
Hivesguy says
Hey, Tyler. If you mean how long it takes for my CU to go away once staying on my strict diet, it is about 4 weeks, give or take a week.