I’ve been experiencing what I’ve deduced to be heat hives since the age of thirteen. It started a few weeks after I abruptly stopped taking an HGH Medicine named Genotropin. When the first time symptoms hit it felt like an odd tingling sensation all over my body except it didn’t hurt. Whenever the summer of that year occurred It soon developed into the “needles and pins” feeling. There have been periods where CU has completely gone into remission and I was able to live without the fear of feeling it. I’ve never had a skin rash or any immediately noticeable effects. However, I do start to sweat once the attacks stop happening.
I’ve had my blood drawn 5+ times, the doctors looking for thyroid issues, and nothing of the sort was found. My pediatrician assumed I was talking about herpes. A dermatologist prescribed Zyrtec to no avail. A neurologist assumed I was making things up and decided to do a regular checkup instead of suggesting a fMRI Scan or even having me run in place to see if I was lying.
To continue the story: During summer and I had to walk a quarter mile from the bus stop to my house. Which is a relatively easy stroll, except It felt as if I was being enveloped in a fire but pinpointedly all over my body. I was usually crying at my doorstep while waiting for my older sibling to answer the doorbell throughout the summer. I explained the symptoms to him and assumed he would tell my Father. Mysteriously, nothing was done about it. Instead of doing something about it myself I escaped into online video games day-in-day-out.
Fast forward to the age of 15 and I have to deal with high school gym class. It felt as if I was running through a valley of spikes nearly every single class. Before our warmups, I sat down mindlessly trying to enjoy the time before I had to exercise. Making sure not a thing that would stimulate my body temperature. Because being looked at as a freak instead of trusting my fellow peers and being accepted was too difficult of a concept at that time. I attempted to describe what it felt like to a gym teacher, however, they told me to get a doctors’ note. Again, I felt if the authorities in my life wouldn’t believe me, why would a doctor? I haven’t been able to live my life out of fear that a person will trigger the “hives” and then judge me for scratching myself since they aren’t visible.
They’ve caused further psychological problems such as depression, anxiety, undiagnosed agoraphobia and possibly undiagnosed PTSD. I’m not searching for a cure since that can be done by simply going to a sauna or exercising every day. What I want is a diagnosis for peace of mind. I plan to schedule an appointment for an allergy immunology doctor and to see if my Primary Care Physician is able to recommend me to a respectable Neurologist in order to see if the pain is detectable through a fMRI.
If there’s anyone else out there who’s struggling I hope this helps to see that you’re not suffering alone.