I just came across this disorder for the first time today, and I’m pretty sure this is what I have. I’m a 32-year-old female, and I currently have Hashimoto’s Thyroiditis. Let me explain what has been going on with me.
In March 2014, I realized that I needed to lose weight and get healthy for my upcoming wedding. I started eating very healthy and working out–A LOT. I was doing “insanity” 5 days a week and lost 45 pounds. In June I started getting a prickly sensation on my scalp at my hairline during my workouts. I brushed it off and pressed through.
I got married in August and went to St. Thomas for my honeymoon. No symptoms at all. Upon my return I continued to work out but my scalp kept getting the pins and needles feeling every time. One Friday I decided to go for a run so I set out on what I thought would be a nice 4 mile run. About half mile down the road the sensation returned with a vengeance this time!
My entire scalp, chest, back and arms had horrible pins and needles, prickly, painful sensation. So bad I had to walk home. I thought I was having a stroke! I went to my doctor. At first she thought it was just anxiety, but she took me pretty seriously. Since that bad episode, I have had the symptoms more frequently. Vacuuming, hot showers, sitting around a hot camp Fire, laughing hysterically, during intimacy.
In the last 4 months I have seen a cardiologist, neurologist and endocrinologist. I’ve had an MRI of my brain to rule out MS, X-rays of my neck to rule out a pinched nerve, a stress echo and pretty much all possible blood work you can think of. Everything came back clear. Never once has my doctor even mentioned cholinergic urticaria.
I happened to Google my symptoms and found it out on my own. So since my symptoms intensified I have been completely avoiding all exercise which has been very depressing. I need to get back to normal life! I’m going to follow up with my doctor and see if she recommends an antihistamine but as I read some of these post it seems like it helps for awhile but the symptoms return. I’m so glad I found this blog. I felt like I was the only one going through this! It’s very frustrating!