Cholinergic Urticaria

Foundation or Charity

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I sincerely agree with the forum leader’s perspective on a cholinergic urticaria foundation or charity. How much money is poured into heart disease, cancer and diabetes research when we already know that lifestyle changes can bring cessation to the vast majority who suffer with these sicknesses?

Each sufferer of cholinergic urticaria has to take responsibility for their own salvation, and we owe a great debt of gratitude to the founder of this forum for providing a path that will also work for the vast majority of us. Throwing money at the problem has to date not created a universal cure, and it can not because of the very nature of this uncomfortable and distressing syndrome.

We need to keep focused on what has worked and how to enable those who suffer with the awareness to pursue a regimen that can work. Donating a few dollars to those who have not experienced the illness is bound to be a waste, not just of money but of all the suffering for all the years we wait for others to solve our problem without looking at the things in our life that continue to irritate our immune system and our sense of well being.

Many thanks to Ben for leading us to a place for answers and sharing. And if we want to contribute to the cause then I suggest investing in your own knowledge base. Watch the videos on YouTube. They are free, and if you want to assist the author who has donated so much time and thoughtfulness toward alleviating suffering then buy the book on Amazon. I just ordered a kindle copy. Best investment I ever made.

And since this forum is moderated by the author I hope he will accept this post and my sincerest thanks and not view this as some type of advertisement as unsuitable for the forum. I think we all want to encourage what WORKS to ease other’s suffering. We are all in it together.

-Solman636

Comments

  1. Wow, thanks so much for taking the time to write that, Solman636. It meant a lot, and I certainly appreciate your kind words and support. I agree with you that we need to focus on practical results, not just throwing money into research or supplies that attempt to put a bandaid on the problem. I’ve always kept this forum free and always plan on it. I feel that knowledge is power, and when people can read others’ experiences and find things to try, it will lead to a better outcome when compared to just doing another study. One solution doesn’t always fit all, but at least people can learn more through the years and have a list of practical things to try, all free of charge.

    Thanks again,
    Ben/Hivesguy

  2. Foundations and disease drives, esp. Cancer are a joke. Read The Politics of Cancer sometime. This forum and others like it as well as word of mouth and other ‘s observations as well as Naturopathic doctors/chiropractors that are On The Ball (many are not) is the only way. Majority of money goes to another agenda.

    • I agree, Deborah. Just this year 4 major cancer charities made news for fraud and lavish living. Even if people who start charities mean well, it’s just an inefficient model to donate money for “good,” when someone then takes a “cut” of it (and has to file all this paperwork and employee taxes, etc), leaving your dollars much less effective than if people just joined together and gave directly to a need. I’ve never been a fan of charities, period.

      • Thanks for that Hivesguy. Keep doing what you do as many have benefitted. Now that winter is here many of us are starting this thing all over again. Grrrr!!

        • You’re welcome, and thanks for your comment as well. Winter can be a beast for cholinergic urticaria sufferers. I hope you can keep it under control for the next few months =).

  3. Ben. Thanks for all you do. I agree I see no need for a formal charity or whatever. You have helped all of us. If it weren’t for you I don’t know what I would have done when I was at my worst. Sincerely.
    John the accountant.

    • You’re welcome, John. I’m glad this site helped you at your worst. The best part about this site is members like you and others who have taken time to share their stories and help others with CU. I’m thankful for everyone who has done that over the years.