I’m 22 years old, male, and have been suffering from cholinergic urticaria for around 7 years. Although it does not usually affect me on a day to day basis, I have had to adjust my life for this to be the case. I used to do a lot of exercise and hate leading my mostly sedentary lifestyle. For sure, the disease also affects confidence levels and weight gain has been a consequence.
Anyway, I would like to discuss something particular I noticed. Antihistamines or diets never worked for me, but I noticed the reactions would sometimes go away or weaken for weeks on end. Often, this was on holiday. I’m at home in the UK but lived on mainland Europe until age 13. I have just come back from spending a year in Spain. I was worried about going to a hot country and although in the beginning I suffered, my condition improved. I started doing sport regularly, going to the beach or on walks in the sun. Cholinergic urticaria was never completely gone, but instead became much more tolerable – just a few red spots and hardly any painful itching.
Now, back in the UK, I have started commuting to work walking or cycling. Just after 15 minutes of walking at a moderate temperature, I can feel the horrible itching on its way. Today I went on a run for the first time since in Spain – worst reaction in a long time, I really suffered.
Any ideas why this might be the case? My diets in the two countries were similar, but I never drank tap water in Spain, always bottled mineral water. Could the UK be putting something into the food? Chemical additives?
Where are you all from? I was thinking about starting a survey, asking CU sufferers where they come from and in which, if any, locations they felt the condition improved. This could all be mapped, and might lead to clues or shed light on some sort of pattern.
Let me know your thoughts. Best wishes to all!