Anyone tried a low-histamine diet whilst taking a DAO supplement?
by Forum Member
Just wanted to know if anyone’s tried a low-histamine diet whilst taking a DAO supplement, and if they’ve had any improvements on their cholinergic urticaria?
Several people have mentioned trying DAO. Some have said that it helps, while others have said that it doesn’t seem to help.
While I haven’t tried DAO, I have tried a low-histamine diet. A low-histamine diet wasn’t the answer, but altering my diet via eliminating foods was the answer, in addition to the probiotics and other things I’ve mentioned before. Some of the foods I eat now are low histamine, and some are high histamine. I also tried taking vitamin C regularly, which is supposed to reduce histamine, and that didn’t help when I had cholinergic urticaria, either.
Debby clementssays
Don’t take medications to cure your symptoms. that is what is wrong with main-steam medicine today.
If they cure your symptoms, you’re cured. they do not treat the problem.
– This is my success story.
I am 66 and had this hit me in June 2016. I wasn’t doing anything different in my life, not eating anything different. It started sporadically – a reaction every couple of weeks, but within a month, it was an every day thing. First time I was just sitting outside eating at a restaurant. Second time, I was in my house – steam cleaning the carpets and got hot. Then it got to the point that I’d get warm at work and have a reaction; or be at a tense movie and it would start. Anything that warmed up my body or increased my heart rate. I bought cold packs, that you pop the bag and they turn cold, for my purse and car, so if it happened and I wasn’t near a bathroom where I could put cold water on myself and cool down, I’d have some relief from the cold packs. I went to 5 doctors, including an Indian doctor who reads eyes. (yeah, sound hokey, but this woman is right on with her diagnoses.) She said it was due to a build up of yeast in my body and so did one of the dermatologists. I started eliminating a few things, but didn’t help much. Then this past February, I went on a serious diet. My husband and I booked a 17 day dream vacation to Europe and I wanted to lose weight and a lot of it. So, I totally cut out bread, pasta and most sweets. I stopped drinking cokes and any sodas in 2003, so now I only drink water, coffee, tea and lemonade. I tried to limit myself to 40-50 carbs a day and 1200 calories and not eat any processed foods ( anything made from a mix or box, no frozen TV dinners). So, I ate a lot of salad – lettuce, tomato, carrots and salad dressing – balsamic vinegar. No creamy dressings. I don’t eat cheese. I ate fruit – organic when I could get it, and whole foods. Fresh green beans, corn, zuchinni… I ate baked potatoes with butter about 3 times a week. Steamed vegetables and some yogurt. Boiled eggs and deviled eggs. Lots of broiled meat, fish, shrimp, and chicken and home made soups. I also stopped using ALL artificial sweeteners – stopped buying “sugar free” stuff. I went back to using a teaspoon of real sugar in my coffee and tea. And, after about a month, something happened… I did not have a bad reaction when my body temperature rose, except one small reaction at an outdoor concert in May and it lasted about 5 minutes and was mild. And, when we went to Europe and went on our cruise in June- I toured every day and did not have one reaction and it was really hot during the days. Not one itch, no stinging!! It was amazing. And, on the cruise I ate bread – every day and I ate desserts – sometimes several times a day, pasta and pancakes on many mornings and almost everyday on the 12 day cruise, I drank 1-3 Pina Coladas a day. One of the big differences is in Europe and on the cruise ship ( I asked about this) – they use flour that has no GMO products and no MSG and not many preservatives. They bake fresh bread every day and at the end of the day, all old bread is thrown out. It doesn’t last because there are no preservatives. Also, because of all the walking we did, I only gained a half a pound on vacation. AND, I sweated during the day when we were touring or even sitting out by the pool – My arms, legs, back and stomach sweated… first time in 2 years!!! Then I came home and decided I would go off my diet for a few weeks and enjoy a few things I had been missing and then in July I’d go back on the diet. I had lost 28 pounds and want to lose another 25-30. So, for 2 weeks of my diet break – I allowed myself a couple of candy bars. I ate pancakes off our work breakfast bar in the café twice and I made waffles (from a mix) at home one morning. I ate toast in the morning with my boiled eggs. I ate fried shrimp and I ate pasta. One week after I got home, I started having the stinging again – really bad. One week of American bread and a few processed foods and the UC was back. So, I am convinced this issue is caused by something in the food we eat. Not really an allergic reaction, but it IS causing a yeast overrun or something. When I first started having this, I was taking quite a few supplements, so I cut out everything except a multi vitamin. I’m going to start back on 1500mg of coconut oil -but, you have to start slowing with coconut oil..1 capsule for 5 days, then do 2 capsules for a week, then three. If you start with 3 – you will get fast yeast die-off and run a fever and feel like you have the flu !!! I’m going to order some pancake mix made in Barcelona and compare the ingredients to my mix and see what the difference is. I may even order some bread mix and start making my own bread. Maybe there is a kind of flour and pasta in Sprouts or a health food store that is purer and isn’t made from GMO wheat. I’ll post again to let you know how that works.. For now, it’s back on my diet that I was on, which actually was not that hard after the first month.
Start writing down everything you eat. Look at the ingredients. If you can’t pronounce it, don’t eat it.
and don’t eat anything with wheat flour. Good Luck.
Annesays
Thanks so much for sharing Debby! WOW what a cool story. It’s amazing to me how different yet alike the stories are and symptoms people face. I can’t wait until the day I can fully sweat. It’s so hard to cut out carbs but I just need the determination and support. I’m slowly making changes to my diet so I’ll post or share when something changes. I just posted about the humidity change for my recent experience w/ CU.
Hivesguy says
Several people have mentioned trying DAO. Some have said that it helps, while others have said that it doesn’t seem to help.
While I haven’t tried DAO, I have tried a low-histamine diet. A low-histamine diet wasn’t the answer, but altering my diet via eliminating foods was the answer, in addition to the probiotics and other things I’ve mentioned before. Some of the foods I eat now are low histamine, and some are high histamine. I also tried taking vitamin C regularly, which is supposed to reduce histamine, and that didn’t help when I had cholinergic urticaria, either.
Debby clements says
Don’t take medications to cure your symptoms. that is what is wrong with main-steam medicine today.
If they cure your symptoms, you’re cured. they do not treat the problem.
– This is my success story.
I am 66 and had this hit me in June 2016. I wasn’t doing anything different in my life, not eating anything different. It started sporadically – a reaction every couple of weeks, but within a month, it was an every day thing. First time I was just sitting outside eating at a restaurant. Second time, I was in my house – steam cleaning the carpets and got hot. Then it got to the point that I’d get warm at work and have a reaction; or be at a tense movie and it would start. Anything that warmed up my body or increased my heart rate. I bought cold packs, that you pop the bag and they turn cold, for my purse and car, so if it happened and I wasn’t near a bathroom where I could put cold water on myself and cool down, I’d have some relief from the cold packs. I went to 5 doctors, including an Indian doctor who reads eyes. (yeah, sound hokey, but this woman is right on with her diagnoses.) She said it was due to a build up of yeast in my body and so did one of the dermatologists. I started eliminating a few things, but didn’t help much. Then this past February, I went on a serious diet. My husband and I booked a 17 day dream vacation to Europe and I wanted to lose weight and a lot of it. So, I totally cut out bread, pasta and most sweets. I stopped drinking cokes and any sodas in 2003, so now I only drink water, coffee, tea and lemonade. I tried to limit myself to 40-50 carbs a day and 1200 calories and not eat any processed foods ( anything made from a mix or box, no frozen TV dinners). So, I ate a lot of salad – lettuce, tomato, carrots and salad dressing – balsamic vinegar. No creamy dressings. I don’t eat cheese. I ate fruit – organic when I could get it, and whole foods. Fresh green beans, corn, zuchinni… I ate baked potatoes with butter about 3 times a week. Steamed vegetables and some yogurt. Boiled eggs and deviled eggs. Lots of broiled meat, fish, shrimp, and chicken and home made soups. I also stopped using ALL artificial sweeteners – stopped buying “sugar free” stuff. I went back to using a teaspoon of real sugar in my coffee and tea. And, after about a month, something happened… I did not have a bad reaction when my body temperature rose, except one small reaction at an outdoor concert in May and it lasted about 5 minutes and was mild. And, when we went to Europe and went on our cruise in June- I toured every day and did not have one reaction and it was really hot during the days. Not one itch, no stinging!! It was amazing. And, on the cruise I ate bread – every day and I ate desserts – sometimes several times a day, pasta and pancakes on many mornings and almost everyday on the 12 day cruise, I drank 1-3 Pina Coladas a day. One of the big differences is in Europe and on the cruise ship ( I asked about this) – they use flour that has no GMO products and no MSG and not many preservatives. They bake fresh bread every day and at the end of the day, all old bread is thrown out. It doesn’t last because there are no preservatives. Also, because of all the walking we did, I only gained a half a pound on vacation. AND, I sweated during the day when we were touring or even sitting out by the pool – My arms, legs, back and stomach sweated… first time in 2 years!!! Then I came home and decided I would go off my diet for a few weeks and enjoy a few things I had been missing and then in July I’d go back on the diet. I had lost 28 pounds and want to lose another 25-30. So, for 2 weeks of my diet break – I allowed myself a couple of candy bars. I ate pancakes off our work breakfast bar in the café twice and I made waffles (from a mix) at home one morning. I ate toast in the morning with my boiled eggs. I ate fried shrimp and I ate pasta. One week after I got home, I started having the stinging again – really bad. One week of American bread and a few processed foods and the UC was back. So, I am convinced this issue is caused by something in the food we eat. Not really an allergic reaction, but it IS causing a yeast overrun or something. When I first started having this, I was taking quite a few supplements, so I cut out everything except a multi vitamin. I’m going to start back on 1500mg of coconut oil -but, you have to start slowing with coconut oil..1 capsule for 5 days, then do 2 capsules for a week, then three. If you start with 3 – you will get fast yeast die-off and run a fever and feel like you have the flu !!! I’m going to order some pancake mix made in Barcelona and compare the ingredients to my mix and see what the difference is. I may even order some bread mix and start making my own bread. Maybe there is a kind of flour and pasta in Sprouts or a health food store that is purer and isn’t made from GMO wheat. I’ll post again to let you know how that works.. For now, it’s back on my diet that I was on, which actually was not that hard after the first month.
Start writing down everything you eat. Look at the ingredients. If you can’t pronounce it, don’t eat it.
and don’t eat anything with wheat flour. Good Luck.
Anne says
Thanks so much for sharing Debby! WOW what a cool story. It’s amazing to me how different yet alike the stories are and symptoms people face. I can’t wait until the day I can fully sweat. It’s so hard to cut out carbs but I just need the determination and support. I’m slowly making changes to my diet so I’ll post or share when something changes. I just posted about the humidity change for my recent experience w/ CU.