First, I would just like to thank you to everyone that has share their story or their tips and for the positivity in this group. I have been reading these post for the last couple weeks and its good to see everyone trying to overcome this problem we have.
So I thought I would share my story. I am a 32 black male from London. I have had cholinergic urticaria since around last year (Sept/October). It started around a time I was going through a really bad depression and around a time I was on antibiotics for tooth pain and got my first filling (I mention this as I have seen people mention that it started around a time they had stress, when on medication, or even getting their first filling).
The first time it started, I was walking up a hill on my way to the dentist. I got hot and got the most painful stinging sensation. I immediately took off my jacket, and after around 5 minutes, it went and I didn’t think anything of it.
It didn’t happen again for around a month when I was running on a treadmill and got the same stinging sensation. Then, a few weeks after that it happened again while I was walking in a new thick jacket I had just brought. Then from there, every time I got hot or anxious I have had attacks.I went to the doctor in December and he told me I had cholinergic urticaria prescribed me cetirizine and sent me away. (I actually came across this site in the waiting room) so when the doctor told me I had cholinergic urticaria I already knew.
This has really got me down, and I have stayed away from exercise which was really helping my depression from fear of the attacks. Reading comments on antihistamines, I generally see they don’t really help anyone, so am reluctant to take any from fear they will make me worst. I have tried the sauna therapy, which is very painful at first but gets better once I start sweating but this only brings temporary relief. I go once a week but will try more.
This site brings me hope as I see how people are battling through, but always brings me down as I see that some people have had this for over 10 years so it gets me down in thinking this is now my life. I am a social guy but now just work and go home. I was sleeping fine but since last week I have been waking up 2 3 times a night with stinging pains. I am really finding it hard to deal and sometimes don’t really think I can.
I have been back to the doctor and have booked in some blood test but he said they don’t do NHS referrals to allergist.
I commend you all on your strength, but this is really hard to deal with.