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My Cholinergic Urticaria Story…

November 16, 2014 by Hivesguy

I just came across this forum today and wanted to briefly share my story. It’s nice to know I’m not the only one out there.

I was diagnosed with Cholinergic Urticaria in 2003. My triggers are exercise/physical activity and stress/emotional responses. After not getting results from antihistamines, I was prescribed Doxepin to mange my CU. It has worked well to manage my outbreaks.

-Crystal

This post was submitted by a reader.

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Comments

  1. Hivesguy says

    November 16, 2014 at 1:27 pm

    Crystal,
    Thanks so much for taking the time to share your experiences on this site. I’m glad this treatment seems to be helping you, and I hope you continue to do well with it.

    • Crystal says

      November 18, 2014 at 9:18 pm

      Glad to share! I hope my story lets others know that CU can be managed well. Don’t give up hope if you haven’t found the treatment that is right for you!

  2. Ali says

    November 17, 2014 at 1:01 am

    It appears that your CU is exactly like mine. I heard people saying that spicy food triggers CU for them but I don’t feel anything when I eat spicy food. I only feel it in the same circumstances that you mentioned. I will talk to my doctor about this and see if he can prescribed me with that medicine and hopefully it goes away. Thanks!
    Ali

    • Crystal says

      November 18, 2014 at 9:15 pm

      Hi Ali,

      Spicy foods definitely aren’t a trigger for me. I love spicy foods! I tried the Claritin, Zyrtec, etc.. route. Those did not work for me at all. Doxepin was a life savior for me. Definitely talk to your doctor about it!

      • Ali says

        December 4, 2014 at 9:26 pm

        Can you tell me how many times did you take Doxepin? I just got it yesterday and I took one pill before I go to sleep. I didn’t have any high expectations but I was surprised that it seems like it’s working! But the problem is that it has side effects it makes you feel dizzy for the entire day. So do you take Doxepin daily? Or have you stopped taking it?

        • Crystal says

          December 8, 2014 at 1:31 pm

          I take it at night a couple hours before bed. I’ve never had any problems with dizziness. The only side effect I’ve had is it makes me a little sleepy which is why I take it a couple hours before bed. If the dizziness continues, I would talk to your doctor.

          • Ali says

            December 13, 2014 at 2:44 am

            It’s weird.. the first night that I used it I felt dizzy for the entire day but I also didn’t feel itchy. I was able to sweat in a sauna without feeling itchy.. for a second I felt that the attack was about to come but then I started sweating from my head. I got happy and I thought that Doxepin is working. But that was only the first day, I got CU attacks in the rest of the days. My doctor told me that I can take one extra capsule every week if it doesn’t go away, until I reach 4 capsules and if it still doesn’t work then I should go back to him.
            How many capsules did you take? Do you just take one? I am currently taking 2 and I don’t think it’s working 🙁

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The information on this website is NOT intended to be medical advice. Rather, this site is a platform for people to share experiences on chronic hives. Never take or stop taking any drug, supplement, exercise or diet program, or other treatment unless your doctor approves it. Some treatments, such as sweat therapy, may not be safe for you. By accessing this website, you agree not to hold the owner liable for any use, misuse, or negligence resulting from your use of the site and/or its contents.

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