So my 14 year old daughter has recently been diagnosed with cholinergic urticaria. Her symptoms began in may 2015, but we blew them off thinking it was stress from cheerleading tryouts. It wasn’t severe or consistent, in fact it was very random…..until around august 2015. Then her hives became more frequent, more widespread, and the unknown hive trigger had begun to show itself.
She was given her diagnosis from her allergist shortly there after. She has no other allergies, asthma, or skin issues. But, here’s the kicker….she has heat AND cold induced cholinergic urticaria?!? So the cold showers don’t work, hot showers don’t work. Summer is miserable, as is winter.
I feel like this is a lose-lose situation. She has an epipen, but hasn’t had to use it yet, but now that its getting warmer (85°today) she is beginning to have chest tightness when she get hot, so I’m sure we will likely need use it in the near future. She’s on 720mg of Allegra a day, it does help some, but the burning and itching is still a big problem.
The allergist only wants to use the immune suppressive treatment as a last resort, and at this point I agree. I’ve read many of your suggestions and can’t wait to try them…but, does anyone else have cholinergic and cold urticaria? Suggestions??
This truly scares me to death as a mom, not knowing what to do for her or how to make it better.