Cholinergic Urticaria

People think I am a freak when I tell them about my condition

by

Every time I talk to people about my condition they think I am a freak. When I told a friend about it and some family members they thought so too but I just realized that EVERY ONE I told thinks I am a freak.

And I haven’t told them that I get itchy when I get nervous because they will immediately think I am a freak for saying that. I just told them that I get itchy when I do physical activities or if I feel hot. It’s annoying when people think of you that way :/ … My family told me not to tell anyone about my condition but I did tell everyone I am close too from my friends and relatives but they all think I am a freak. How do I deal with this? I got a little itchy today when I was out and my brother told me “You Freak” It’s annoying!

Comments

  1. You aren’t a freak but I know it is hard for people to relate to you. I tell people thinking maybe they will have heard of it or someone who has it. You will not find things that might help you if you aren’t open to talk about it. I started taking H2 antihistime (Allergra) and that has helped. I can sleep better at night. Maybe that will help you too.

    • Unfortunately, my condition is a little different than yours. I don’t have any problems sleeping. The only things that trigger CU for me are (excitement – shock – laughter – physical activities – when I get nervous for example when doing a presentation in college).. But most of my time especially when I am in my house they don’t get me. I tried a lot of pills but they did not help at all.

  2. My son has a severe case of it, any kind of emotion triggers it, hot showers, spicy food, excercising, any kind if heat at all, he is a gamer & if a game gets him
    Excited or anxious he is effected. Almost most of summer little to no reaction, come April it starts again for approximatly 6mths. It is such a horrible thing watching him 🙁

  3. I can certainly relate to feeling like a freak. I would sometimes just tell people that I was having an allergic reaction to something I ate. It’s easier for them to understand that than having to launch into a discussion about physical urticaria types and why I had that type of reaction.

    Nevertheless, I was rather isolated at times when my hives were worst, and the people closest to me just accepted that I couldn’t do certain things without breaking into a crazy rash. So I rarely had to explain to new people what was going on with me. It can be frustrating, to say the least.

    But hey, you’re not a freak. Physical urticaria types are actually quite common. It’s no less “freaky” than diabetes, asthma, cancer, or whatever else. It’s just that people tend to know nothing whatsoever about this disorder. Sometimes ignorance is bliss, but when it comes to trying to explain CU to someone (especially during the actual attack), it’s just plain obnoxious at times.