I posted on here back in October/November. I began having cholinergic urticaria symptoms without hives in mid-September 2015. I did not have actual hives, but I did have the awful prickling/itching. This would occur whenever my body temperature rose regardless of whether I was actually engaged in physical activity.
I have 3 kids, all boys, and it was preventing me from doing any time of physical activity with them. Even in chilly weather. I should note that I also developed a strange skin colored rash that looked like goosebumps all over my torso and arms. It is hard to see unless you really look. I went to two dermatologists.
The first misdiagnosed me with a sun rash and then with KP. She recommended I purchased a bunch of creams which did absolutely nothing. She also performed a biopsy on my back and prescribed Xyzol. The biopsy came back as “possible urticaria” which to me, really means inconclusive. I never took the Xyzol as I had read it can give you hallucinations and make you drowsy.
In addition, around this time (early December) my cholinergic urticaria went away (although I still had the rash). I have no idea why. I did try running outdoors a few times and was able to sweat for the first time in weeks on my back and check. Unfortunately, this only lasted 2-3 weeks, as it came back. It did come back to a much lesser degree, but it is still very annoying and I have constant anxiety that it may go back to how it was before, which was debilitating.
I had read Ben’s book and was aware that it was likely to just be a guessing game with my doctors. However, I decided to make an appointment with an allergist. The allergist did not believe I was allergic to anything. But he did order a whole series of blood tests. I saw him last week to go over the results.
All of the tests came back normal except for Vitamin D. He told me that a normal Vitamin D level is “30” and that mine was “23”. He said someone is deficient when there level is “20” or below. I live at the beach and am outdoors quite a bit during the summer, but I am wearing sunscreen etc. which prevents the absorption of Vitamin D. Otherwise, I rarely am as I work long hours in an office and usually leave work after its dark. I started taking Vitamin D supplements last week. I’m hoping it does the trick. I saw a post on here from Hivesguy in 2008 about Vitamin D.
Has anyone else had a similar experience?