I’m 20 years old and have been getting heat-induced hives on and off for years, but the past year has really taken a toll on me. I was finally diagnosed with cholinergic urticaria earlier this year. My hives don’t tend to appear immediately, but they appear in the morning when I wake up either as a result of exercising the day before or even just from my body temperature going up at night, despite keeping my house very cold.
I take 10 mg xyzal, 10mg singulair, and 300mg zantac but the only thing that manages to get rid of my hives are emergency room or doctors visits where they give me steroids. I’m a very active person who loves running, hiking, and rock climbing, but I can’t do those things anymore without fear of another emergency room visit. Even going for walks outside in the summer has been an issue and I’ve been in urgent care or the emergency room at least 10 times this past year.
I’ve tried pretty much every h1 and h2 antihistamine, and I’m at unsure of what to do at this point. I have no issue sweating and in fact, when I sweat a lot is when my hives tend to be their worse, so I don’t think sweat therapy is a good option for me. I’m at the point where I’ve had multiple doctors tell me they don’t know how else to help me, has anyone had a similar experience?
-Alexa
Rob says
Have you tried Xolair? https://www.xolairhcp.com/?cid=xol_PS_00013098_1 I haven’t tried it myself as it’s still on patent and expensive but I think it’s going generic in December 2018.
Marcia Hildreth McGrath says
It doesn’t sound like you’ve tried anything with your diet. It seems that most people who have some measure of relief is through modifying their diet in some way. My son went off all sugar, including fruits, and got almost immediate relief. For you it may be something different. But it’s worth a try. Food sensitivities are a real issue these days. If I was as miserable as you, I’d go on a very bland diet, perhaps just vegetables, raw or cooked, for a few weeks and see what happens. It may take your body a couple weeks to clear out and begin to respond well. So don’t give up too soon. If you haven’t read the book that is offered on this website, you should. It is very helpful.
Ahmed says
The things that worked for some people on the forum here are : sweat therapy – diet – changing where they live , even different apartments in the same city ( sometimes it gets better some times worse but it worth a shot) – lastly meds, which are not always that effective and i don’t prefer this option.