I have been having the exact description of all these symptoms since I was 5 years old. I’m a now a 24 year old male.
I’ve been to doctors to test me for Lupus. My pediatrician told me I had “idiopathic urticaria” and told me to take Benadryl. I honestly felt so alone. People told me they get heat rashes too but not like this. The burning, the itching, the looks from people who think I have some awful contagious disease or something has just been hard dealing with.
After 19 years of not knowing what was wrong with me I stumble across this webpage and I’m so glad I did. I now have this sense of relief that there is a name for this condition and there’s other people who have the same experiences and troubles I do. I’m a Registered Nurse and never once even learned about this in school.
Even professors were baffled when I’d be stressed in class or from exerting myself in clinicals and thought I was having an allergic reaction to something. My only concern is the website states the average person had these symptoms for about 7 years or so. I’ve suffered from this for more than half my life. Is this really ever going to end? Will I have this condition for the rest of my life?
This post as submitted by a reader.