I am 35 and have been battling severe chronic urticaria for 9 years, with each year progressively getting worse. I battle massive outbreaks almost daily, some days not so bad, with no rhyme or reason as to why. I have changed my diet and tried several different eating styles to try to curb this auto immune disorder, such as strict chicken, rice and water diet for 30 days, to Paleo style diet for 6 weeks. The Paleo consisted of no sugar, no wheat, no preservatives, nuts, dairy certain meats etc.
I also tried the Omalizumab (Xolair) injection. I received the injection for 8 months. The first 3 months were euphoric, and each passing month thereafter they began to come back. I was advised to double the injection, but the cost was beyond my limits. I have been on prednisone, atarax, tons of anti histamines, and all meds are rarely having effect.
I am mentally and physically exhausted. I have three wonderful children and an amazing fiancé who are so supportive. I am struggling more than ever lately and am not sure how much longer I can do this.
I recently discovered that drinking a fair amount of alcohol dissipates my hives overnight, lasting for around 24 hours . So needless to say, I have been relying on the alcohol for relief. With my family understanding and being such a strong support system, it helps. Although I am now feeling guilt for consuming alcohol regularly, it provides me with much needed relief. I don’t know what is worse, the guilt of drinking or the mental exhaustion of the urticaria. Is this causing un-needed stress or relief ?
I’m confused, broken, and not sure what to do anymore. Thankfully I have maintained my job consuming so many antihistamines and feeling exhausted daily. I do it for my family, without them I would not have lasted this long. Thankful yet terrified, I cannot endure this much longer.
Any advice or a way to cope with this would be appreciated