Hi, everyone. I have been struggling to make sense of some strange symptoms that my GP seems to have no real idea about! I am 44 and in general good health, so I was taken aback about 2 months ago when I started to get really strange sharp pins and needles sensations when I took a hot shower all over my body.
I thought nothing of it, but it persisted. Then I started to get the same waves of really painful electric shock like sensations across my back, chest and legs when out and about. I saw my GP who prescribed strong antihistamines, but these made no difference.
I began to notice that these painful waves often occurred when there was a change in body temperature (ie. when I played football, climbed a hill, etc.). I noticed that symptoms went away when I cooled down. However, there are never any visible signs of hives, no rash, no raised bumps, and so I’m not sure now if this is heat hives as many people seem to have a rash??
My theory about these flares being temperature related are not consistent, as I am not getting them at night and am really struggling to sleep? I fall asleep OK and then wake every 1-2 hours often with painful prickly sensations across my back and chest. I get up and they go away. I try to sleep again but they return, its driving me mad!
It’s not hot in my bedroom. I leave window open but still it happens? So, how come this happens as I am not exercising, just trying to sleep? All other times my symptoms seem to be related to exercise or temperature? My GP has been much help, he then prescribed me amitriptyline, which made me feel dreadful and really low and no improvement in symptoms.
I went back and mentioned I thought I may have heat hives, but he didn’t seem knowledgeable. He has now referred me to Neurology? Looking at forums I’m not sure if this will help as many seem to be referred to dermatology (yet I have no visible rash so maybe that’s why?).
GP has just prescribed me gabapentin (300mg daily), but he admits this may or may not help! Has anyone tried this and did it help? I have not taken it yet as worried about side effects. I am desperate for some sleep so any advice most welcome. I’m also at a loss regarding what I have and why now.
I don’t feel this is anxiety related. I’m ok otherwise but am now unable to enjoy activities as it triggers waves of painful sensations (I now struggle to play footy with my kids, walk the dog. go hiking etc..). I’ve also tried to change shampoo and lotions but no change so I don’t think its an allergy.
The only time I get any sleep is self medicating with whiskey and codeine which I know is not the answer!! (GP offered me zopiclone to help me sleep but also said they are very addictive and not to use often so not keen)
Sorry for the long post, but I was just chuffed to find somewhere where others have described similar experiences!!