Firstly, sorry for my English. I am 21-year-old man. I have been suffering from cholinergic urticaria for 6 years. I was taking lots of antihistamines, but as you can imagine, it didn’t do much. This condition is ruining my life. I know that I can’t do anything without hives.
I feel like a weirdo and in fact I am, because I constantly have to reject all invitations to the parties etc. I can’t even talk to girls, since I am afraid of being red 3 minutes later. I used to be a footballer so I was working out very hard, but now I am not even able to run 50 metres without pain. I can’t even laugh too much.
At school I am very shy and silent, because I don’t want everybody to see me like this. Exercise therapy helps a little bit, but I think only because I am dehydrated and body can’t sweat more. Unfortunately hives are very visible on my fair skin. I hate to hear from everybody that this condition is not that bad or that there are much worse diseases like cancer. I agree, but what can they know about having condition like cholinergic urticaria?
I know that they would be just like me. This condition is ruining me physically and mentally. What kind of life is this? In summer I can’t go out, because of sun, winters are horrible, because of entering from cold to warm places. I can’t find a holiday job since I am not able to work physically. I am sure that I would be a completely different person without urticaria.
I would like to try diet changes, but I don’t know what to avoid, and things like gluten or salt are extremely hard to avoid. I dream about a day I will be a normal, healthy person again where I could do everything I want. Now I feel like a vegetable or alien and my teenager years were a disaster and unfortunately I will never get them back.
Thanks everyone for reading and for this site. I know how much harder life is with cholinergic urticaria. I suppose all we can do is to have faith that each of us will be cured someday and I hope that it will happen sooner or later.