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Urticaria Sufferer (cholinergic urticaria)

January 13, 2016 by Forum Member

I first want to say what a help this site has been. I am not alone. I suffer terribly from Cholinergic Urticaria, which started about 7 months ago. I did not know what was going on. It started slow, and ended up completely changing my life.

I couldn’t do anything that loved doing. I started using organic soap & Zyrtec and thought I had finally found my “cure”. I could play with my dogs, nieces & nephews, run, dance, take hot showers…I thought I was getting my life back. But unfortunately the Zyrtec quit working, and the hives are even worse.

Now my skin is so sensitive that I can’t hardly bear anything to touch my skin, and I itch all the time, especially my arms and legs. I did notice because of this site, that I do not sweat, and that I have severe allergies. I am slowing working through all the ideas that have been posted.

-Meg

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Comments

  1. Hivesguy says

    January 13, 2016 at 3:32 pm

    Thanks for your post, Meg. Sorry to hear of your sufferings. It sounds like you’ve been reading a lot on this forum already and plan to try a few things. The only thing I’d add is that people often adapt to antihistamines after a while. One strategy for the short term (as you try other things like possibly diet modification) is to try other antihistamines. Some people will use one for a few weeks and then switch to another. Allegra (fexofenadine) is another popular one, and there are a lot of prescription-based ones as well. Always check with a doctor first to be safe. I hope you feel better soon.

    • Meg says

      January 13, 2016 at 4:01 pm

      I tried Alegra-D, It did not work at all, i also tried flonase, but It gave me massive headaches. lol

      • Mikayla says

        January 17, 2016 at 4:37 am

        Have you tried anti-inflammatory medications? Ben I’m curious if you’ve seem work for people with CU. antihistamines didn’t seem to work for me whereas Anti-inflammatories like Advil have.

        • Hivesguy says

          January 17, 2016 at 10:31 am

          I can’t recall anyone saying that Advil has helped their hives, but if it seems to be working for you, that’s great.

  2. Dave Martin says

    January 13, 2016 at 10:04 pm

    Meg,
    I have been very successful combating itchy skin problems by taking a herbal tablet called Quercetain.

    It contains quercetin and bromelains and distributed by BioCeuticals Ltd in Australia but something similar should be available overseas.

    Depending on expected physical activities and forecast weather conditions, I manage now to only take these tablets on a needs basis.

    This may be of some assistance for you.

    • Anonymous says

      January 14, 2016 at 8:27 am

      Thank you. I will look into it. I am definelty open to all iseas at this point

  3. Darnell says

    January 14, 2016 at 4:24 am

    Forgive me if I sound hopeless, but this experience makes you feel that way! It doesn’t really matter what you take, this is something that has to run its course. Everyone on here, except for an elite few, have similar stories. We take several different medicines, try various attempts at making this go away, to no avail. The hives go away, come back and go away again, only to realize that you are no closer to figuring out what the cause may be. I’ve tried everything. The doctors never figured it out, from Allergists to dermatologist, to my family doctor, no success, but hundreds in medical bills. My allergist told me to go to Sam’s club and by Zyrtec in bulk. So if our bodies become “used to” antihistamines, than why would he tell me to buy so many? If it were up to me, the doctors wouldn’t get paid unless they were successful, to some degree. I’ve tried steam baths, saunas, working out, diet change, nothing! My suggestion would be to keep going in life, regardless of how you feel, and it will run its course. Maybe they won’t come back and you will be one of the lucky ones. My opinion as I’ve been going through this off and on for some time now.

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The information on this website is NOT intended to be medical advice. Rather, this site is a platform for people to share experiences on chronic hives. Never take or stop taking any drug, supplement, exercise or diet program, or other treatment unless your doctor approves it. Some treatments, such as sweat therapy, may not be safe for you. By accessing this website, you agree not to hold the owner liable for any use, misuse, or negligence resulting from your use of the site and/or its contents.

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