I have suffered severely from cholinergic urticaria now for 3 years. I believe I have found my cure. (I am not saying this will work for everyone!) I started donating plasma and my CU cleared right up. I have never felt happier. I can get hot and be active again without itching. My doctor who was previously […]
Cholinergic Urticaria (?) – My Story
First of all, I am not even sure what I really suffer from. My specialist diagnosed CU, but I have never had problems with hot showers, baths, blankets or just sitting in the sun. The hives, stinging, tickling irritation only arises as soon as I begin to exercise. Heat, stress or nervousness seem to elevate […]
Cholinergic Urticaria Questions
Hi everyone! I am living with this awful condition for the past 5 months. I have some questions because I’m still learning about this condition. Does anyone else get anaphylaxis allergic reaction, needing an epipen? How long does this condition last for? What are your best ways of cooling done when this responds happen? Anyone […]
My chronic hives journey- quest for triggers and cure
I, like most of us, have spent countless hours on the internet trying to learn more about hives and figure out how to get rid of them. A little bit about myself; I am 42 years old but first noticed hives in my mid 20’s. They appeared while working a landscaping job in the hot/humid […]
14 years old to 54 and still have cholinergic urticaria
I must start by saying I was overwhelmingly happy to find this site. Pleased just to have a name for my problems with burning hives. I originally started getting the symptoms at 14 while participating in group sports. I was on the track and basketball teams. I quickly stopped participating after becoming too self conscious […]
Cold Urticaria in Winter?
Hi everyone, My name is Emily, and I’ve been suffering from hives for about a year and a half. I have both cholinergic urticaria and cold urticaria. My hives seemingly disappeared over the summer but for an unknown reason have begun to resurface at a greater intensity than before. Lately my cold hives have been […]
Possible Cholinergic Urticaria Link to Multiple Sclerosis?
I’ve had cholinergic urticaria for about 18 years now. I first showed symptoms right after the birth of my second daughter. I had it for several years consistently then it just went a away for a couple years and came back relentlessly over the past 5 years or so. My doctors have called it many […]
This is the only cure! The reasons behind everything
Okay I’d like to start by saying I’ve suffered with cholinergic urticaria for just over 5 years now and I have been researching ridiculous amounts. I AM NOT A DOCTOR and all information here is coming from personal experience or research. Please speak to a doctor before trying this. (Just to cover myself, this is […]
Sweating helping cholinergic urticaria/heat exhaustion
Hello! I’m a 23-year old ex-collegiate rower, and wanted to share how I developed cholinergic urticaria. My whole life up to 23, I never knew I had CU. I played sports all my life (important for later) and was a rower in college for my freshman and sophomore years. I stopped rowing due to a […]
Chronic Hives and Kidneys
I am a 61-year-old female, and I got the hives about a year ago. After suffering with them for about 2 months, and realizing that they weren’t going away, I went to the doctor. She prescribed Zyrtec , Zantac, steroid cream, and pills for itching. She also said to start an elimination diet (which lasted […]
This is it, finally!
As a child, I suffered from hives after every shower. If my allergies were triggered, I’d get hives if I ate shellfish and even certain tropical fruits (namely, papaya…). After gym class, my skin would glow so red, it looked nearly purple, and then I’d start to itch. The hives always disappeared within 30 minutes, […]
Need Suggestions/Advice for Heat Hives
I’ve had cholinergic urticaria for 8 years. I did allergy testing, food intolerance testing, all that, which nearly killed me! After a year of benadryl and hospital visits, I found two medications that helped! For years, Singulair + xyzal suppressed the heat activated hives for about 6 years. But why is this happening to me? […]
Doxepin works for me, too!
I’ve been 5 days with almost zero hives, which is miraculous (or a temporary break) – thought I’d share. I’m really grateful for forums like this. My CU (not cholinergic, hope that’s OK – it’s idiopathic) started in early April – just awful, as you guys know. Mine is head to toe or migrating in […]
Anyone else find it easy to endure cold with cholinergic urticaria?
A bit less than a year ago, I got cholinergic urticaria, but only today did I finally actually confidently diagnose myself with it. I was confident before that I had miliaria rubra or something like that. But after reading about this and looking on this website, I’m a hundred percent confident I have this condition. […]
Can this actually be my answer?
Hi, For the past few months now, I’ve been trying to explain to people that I’ve been getting itching, burning, stabbing pain-like symptoms all over my body. I’ve talked with my doctors, and they have no clue. It wasn’t until about 3 weeks ago that I realized it was heat related. The only thing that […]
Antihistamines making me fat
Hi, all. I’ve been suffering with cholinergic urticaria for approx 35 years. I had several years where I’ve had no outbreaks, but then all of a sudden it came back. Mine is strictly heat related and very severe, welts all over my body. With daily Cetirizine (Zyrtec), I don’t get the welts or itching, just […]
Hive support: getting severe at night
Hi, These days, pretty much due to hot summers and heat, hives stay all over my body. But they seem to get severe during night and when it’s pretty cool with A/C. Any suggestions how to deal with this? If I take an anti allergy tablet, I am able to survive for 15 hours, and after that, […]
How I Defeated Cholinergic Urticaria
Hi, my name is Cameron, and this is how I defeated cholinergic urticaria. Please note that before you try any of this, Please talk to your doctor and make sure it’s okay! 1. Every morning, I would either go out for a jog or take a very hot shower. Usually what this does is, it’ll […]
Do I need to take desloratadine every day?
Two weeks ago I went to the doctor. After hearing my description of my symptoms, the doctor confidently said I had cholinergic urticaria without giving me any test. I asked her how could you be so sure about it. She said because I had the same symptoms when I was young and now it happened […]
Change in my body – urticaria
Hi, I have been attacked by urticaria, but slowly it reduced once I controlled some foods which are intolerable to my skin. Just then, when I thought that all is fine, there is a change. I started going swimming and running. I started getting hives back. I don’t sweat much. There is a change in […]
Tanning and hives (cholinergic urticaria)
I have recently started spray tanning and would like to begin using tanning beds. My cholinergic urticaria is controlled using Cholchicine. Do any of you tan using the beds? If so, what have your experiences been like? Thanks, Crystal
Would it be smart to go to the sauna?
Hello, my name is Brandon and I have been suffering from, what I think is, cholinergic urticaria. I am currently a senior in high school, and I first encountered this in 2014, during winter vacation. At first it was a burst of itchiness, red color, and bumps all over my body. The second encounter was when I […]
Itching between Fingers and Wrists Caused by Cholinergic Urticaria?
I have itching in between my fingers and wrists when I wake up. Could this be caused by cholinergic urticaria? Thanks, Jordan
Cholinergic Urticaria, Tinnitus, Yeast Overrun – all connected?
Do any of you who suffer from cholinergic urticaria also have tinnitus – that irritating ringing in your ears? Mine sounds like the sound you hear when you are inside the house and a hose is running outside. It started out occasionally, now I have it nonstop. I was reading on a tinnitus forum about […]
Does anyone else present with hives that are not pinpricks?
Hello, I have recently been diagnosed with this condition (today actually) after over a year of various doctors not knowing and me trying to work out the cause on my own! The hives that I present with, however, are not pinprick-like. It starts as quite a large, white, raised area of skin, and then becomes […]
Febreze Cause Hives Rash?
I started using the Febreze air plugins last April (Easter weekend). My rash started June 10. I never thought about this, but did some research and found that it contains many chemicals that are harmful. Does anyone else use these Febreze plugins? I have unplugged them all now. I’ll see in a month if it […]
Keep searching the cause of our hives
I have been suffering with hives for the last 2 years. An occasional rash turned into everyday occurrence appearing on any part of the body, at any temperature, regardless if I was resting or working out. I never went to the doctor as I know they give me antihistamines and steroids- no way I was […]
How I Cured My Cholinergic Urticaria (Clarinex and Heat)
Before I start in, I just want to let anyone who is struggling with this ailment know that the solution I used was not the most pleasant solution. Ok, as you all may know, cholinergic urticaria isn’t one of the most well known diseases so, by nature, there aren’t very many known cures or solutions. […]
Accepting This Reality of Cholinergic Urticaria
As a young man working at a fast paced restaurant, when the lunch rush hit, naturally my body temperature would rise as the pressure mounted. Last November, however, something changed. It began with an intense itch on the top of my head as we started getting busy. I attributed this to the fact that I […]
How I cured my cholinergic urticaria (from a pharmacy student)
I was diagnosed with cholinergic urticaria when I was a freshman in high school. After going to the dermatologist all they told me to take was Benadryl which helped with the itching a little but that was it. So after doing a ton of research on it (along with the help of my dad… have […]
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