Hello, I am a 45-year-old woman, and I have cold urticaria, as well as the new thing: Red non itchy bumps that appear if the wind blows just a little bit. It started after my trip to Montego Bay Jamaica in July 2014. I have been dealing with this new thing for a year now, […]
Background and Success Stories PLEASE!!!
Hello. I have suffered from Cholinergic Urticaria for 6 months. I would like to start a thread about Background and Success Stories so we can perhaps find a common link or source. I know there are many scattered success stories but I would like to narrow to the most legitimate ones. So far, I see […]
Someone please help me with my hives
Hello everyone, I am a 20 year old female who has grown up in the sun and have played sports my entire life. I have been a runner for a few years, and one day in late April, I was doing my normal 6 mile run and noticed red dots appearing. Eventually they got much worse, and […]
Has Anyone Tried Danazol for Cholinergic Urticaria? What Were Your Results?
My doctor prescribed me Danazol, but it’s not showing any results. I cannot get hold of other doctors in BC for second appointment.What should I do now? Can I stop using Danazol because its making my life even worse. May I know what is the best antihistamine everybody use to keep hives at bay. I stay in Vanouver […]
Cholinergic Urticaria Inherited? My Infant May Have Heat Hives
I started getting heat rashes when I was about 16. I went to the doctor and then a specialist and he said I had cholinergic urticaria. I have been taking Allegra and Pepcid every day since then and my symptoms got better and basically disappeared since then. I am 24 now and my wife and […]
My Cholinergic Urticaria Success Story
I’ve needed to come back here for the past 2 years or so to share my success story, and I’ve only remembered now as a close friend just started getting hives. Roughly two years or so ago I suffered from a very bad case of cholinergic urticaria. I tried several medications from the doctors such as […]
Is anyone else’s cholinergic urticaria not temperature-based?
Five years ago, I started with cold urticaria (and it became cold/cholinergic a few years later). I don’t think it was ever really external temperature-based (except that one time I walked near a Costco refrigerator), as I’ve stood outside at midnight in the winter and been OK before. I think mine, even now, is more […]
Easiest ways to sweat without much pain? Cholinergic Urticaria and Sauna
Hi Guys, I’ve had cholinergic urticaria since January 2015. First it started with arms and legs, and later the itching became so severe that I could not tolerate it. So doctor prescribed me antihistamines, which doesn’t seem to work. Later, he put me on Danazol, which also failed. I heard of sauna which is really helpful, so I bought […]
Cholinergic Urticaria: I Can’t Live Like This
Wow. I never thought that my body would be the thing to bring me to my knees after my very stressful first year of 6th form. I’m 16 and I think I’ve had cholinergic urticaria for around 2-3 years. I didn’t really pay too much attention to it until around January last year. Fortunately, I don’t get […]
Lipomas, Hives, and Dercum’s Disease
Hello everybody, I have only just come across this site. I was reading an old post about lipomas and hives that was archived on the site. Can I just say that if you have chronic itching and any lumps – even really ones which are deep in muscles or fat, you should look into the […]
New sufferer of Cholinergic Urtricaria with History of Eczema
I have always had a slight problem with eczema, for many years it has been dormant mainly with only a few flare ups in hotter weather. Yet today I had a massive and to me unknown reaction (to what I could not say). However after going through many sites to try to find what my […]
Cholinergic urticaria specialist in Australia?
Does anyone know of a specialist who understands the pain of cholinergic urticaria and can advise on whether sweat therapy is suitable for my son? I have found that most specialists put cholinergic urticaria In the same category as other chronic urticaria, whereas the symptoms are very different – ie pain. So I am looking for someone […]
Best sauna product for cholinergic urticaria?
First I wanna say what happened to me recently with my cholinergic urticaria. I’ve been taking Propranolol which made the attacks weaker, but it also made me feel itchy even after I sweat from the sauna…weird, huh? I never got tortured from CU ever since I started taking Propranolol but I still felt itchy sometimes […]
Zantac for Cholinergic Urticaria
I found this website a few months ago, and it prompted me to finally see a dermatologist about my problem and discuss treatment options. So on Thursday I was officially diagnosed with Cholinergic Urticaria. The problem I was running into though is that I have had allergic reactions to both diphenhydramine (benadryl) and hydroxyzine (atarax) […]
Traumeel and Naturopath Helped my Cholinergic Urticaria
I’ve had hives a few times throughout my life due to various allergies. But after a majorly stressful event happened to me, a month later I got a whole hive reaction that lasted eight months – chronic urticaria. Mine was triggered by water, heat, friction, pressure, stress and exercise. Fun! The first day my body […]
Cholinergic Urticaria Experience: My doctor doesn’t really help
I have had Cholinergic Urticaria for 9 months now, I’m 16 years old and played basketball for 7 years with great success. I want to share my story, thoughts and feelings. First it was unbearable with severe itching every day when I got to school. In February I finally got an appointment with a doctor […]
I am traveling to a hot country, any advice dealing with cholinergic urticaria?
Hello guys and gals! I am 16 year old male, and will for vacation flee to a country as hot as hades. I have good reason to believe I’ve got Cholinergic Urticaria. It triggers ONLY when I’m heated, when it hits, it’s like having two dozen small, but painful nails in my chest. It is irritating […]
Ceasing Antiperspirant Use Helped My Hives (Cholinergic Urticaria)
Guys: Try this. I’ve struggled with the symptoms of cholinergic urticaria since Christmas (over 6 months). A half year of my life spent dealing with this horrible condition. The last 3 days have been awesome. Not even a single shock or pin-prick sensation. The difference? I quit using antiperspirant. For me, the pain would always start as […]
Cyclosporine for cholinergic urticaria
Hello everyone, I have suffered from cholinergic urticaria for years. I have taken every combo of antihistamines possible. Nothing has worked. My doctor just prescribed cyclosporine immunosuppressant therapy. I was just wondering if anyone else has tried this and what their results were. Thanks 🙂 -Kami
19 Year old male, hives making life unbearable
Hey! I’m Connor, and I’ve been suffering with Chronic Idiopathic Urticaria for the last 3 months. It all started off really light and wasn’t worth of acknowledgement to be honest. I was out with the girl I was dating at the time and things were fine. It was a hot day, and I was wearing […]
Cholinergic Urticaria Is Ruining My Life!!
I’m 19, I’m female, and I’ve had cholinergic urticaria for two years now. I developed it when I was early seventeen, and I honestly don’t know what to do anymore. I feel like I have become a hermit because it prevents me from doing everything I love. I put off going to college because it was so […]
Travelling/Holiday with Cholinergic Urticaria
I was just wondering if people have travelled or had a holiday when suffering from Cholinergic Urticaria, and whether it was worse during the holiday (perhaps to a hot country or in the summer) or whether it seemed to disappear/ease during your vacation/holiday? Thanks, Lauren
Disability for Cholinergic Urticaria
Hello everyone, I’ve had cholinergic urticaria since I was in elementary school. I’m 24 now. It used to come and go. For the past 4 years it has been bad. Every time I take a shower (even in cold water) I break out. When I go to work I break out really bad to the […]
After 20 years, I found a cure for my hives (Monteleukast)
I thought I should share my success story suffering with an extreme case of Cholinergic Urticaria for over 20 years, which has prevented me from living my life to the full. Most of you know the misery it can cause so I wont waffle on. Two months ago, after a bit of research, I asked […]
My Cure of Cholinergic Urticaria (Chiropractor)
I have never posted on a forum before, but I felt compelled to share my story after my experience with Cholinergic Urticaria. I had suffered from urticaria for around 3 and a half years. It was unbearable, causing itchiness on my scalp, chest, cheeks, and fingers. I loved being physically active, and this had really […]
Cholinergic Urticaria: Confused, Alone, and Afraid
I am a 20 year old british male trying to attend university. I have had Cholinergic Urticaria since December last year and before the outbreak I lived a pretty normal life attending university going out with friends and family. Now I can’t even do basic tasks around my house, let alone leave the place. I did go […]
Cholinergic Urticaria Treatment with Cyproheptadine (Periactin)
Do you need relief? Hi, my name is Denise. I wrote on this website about 6 months ago. My son has been suffering from cholinergic urticaria for the last 4 years. In a nut shell, we moved and it was almost instantly that my son developed CU. My son has a high allergic reaction to dust mite […]
Newbie to Cholinergic Urticaria
Hello! I have just recently been diagnosed with cholinergic urticaria. I was wondering: I was in california (Sonoma county) last summer (June) and went to a clinic there because I had broken out in a allergic reaction. The Doc said she was certain it was bedbugs and that I was highly allergic because she had never […]
How Long Have Your Hives Lasted?
Hi everyone! I’ve had cholinergic urticaria for years. As soon as it gets warm outside, I get hives on my face, neck, chest, back, arms & hands. I’m always sweating, especially on my face, back of my neck, and chest, so those seem to be the most severe hives. I would like to know how long everyone’s hives […]
Please help me figure out what kind of hives I’m getting?
I’ve only gotten full body hives twice in my life before today. When I was about 8, I had a reaction to codeine. I had the little measel type spots/bumps of hives all over. About two years ago, I had another drug reaction to sulfate, and I got the big boil types hives, but they […]
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