Hey everyone, I suffered from cholinergic urticaria for 2 and a half years, so I know where you are all coming from. If you look back on this forum I posted and vented my story back in 2009/2010 (bayless9) when I was going through this as well. April 7th 2011 was the best/happiest day of […]

Hello readers, The following post came through the blog, and I wanted to publish it live, just in case anyone is interested in enquiring about it further. I just want to briefly say that I am not affiliated with this offer, nor have I verified any information contained within it. I’m publishing it “as is.” If anyone decides […]

Hello Guys, I’m writing this post with great excitement and happiness. I used to have a very serious hives. They started when I relocated to Cyprus from Africa two years ago. Most of my friends here have the same symptoms too. So, I assumed the cause is probably the change of water or the change of […]

I’m 16 years old, and I’ve had Cholinergic Urticaria for a few months (most of this school year). Every day I go to school and step into the classroom (which is very hot) I start itching, and when I have sports, especially now when I have exams and get a little nervous before exams. My […]

I been to every doctor and tried every medicine and herb. I have  had Cholinergic Urticaria since November. I had strep throat in October, and shortly after that I devoloped cholinergic urticaria. Doctors are clueless, but sweat therpy really works. I do the elliptical machine, and in about five minutes the pain goes away. Then I hit the steam room. I was scared […]

Hi, My name is Derek, and I just found out what I really have (which is cholinergic urticaria). I have read all these stories, and I find it hard to know that I can’t have the life I used to have 4 years ago. But I also found that I’m not the only one with […]

I developed urticaria when I was 12, and now at 53 I have to take medicine everyday. I now have angio-oedema (the swelling of the throat and tongue), with sickness and diarrhea. I have both cold and hot (cholinergic) urticaria. The medicine does keep the worse effect away if I am very careful with what I do and when I go out. I […]

Hi I thought I would share this in the hope that it may help someone. I have been diagnosed with Cholinergic Urticaria. Tried quite a few things but nothing really helped until I started taking Quinton Isotonic. Now I have only been on these just over a week but since day 3 I have not […]

I’m 15 and have been struggling with Cholinergic Urticaria on my scalp for a year. When seeing the doctor, they said to take Allergy medicine, and that was it. I was still so angry I couldn’t get rid of this horrible thing. When it does get hot, I don’t sweat at all. I wish I […]

I have had this condition now for about 35 years. I have told every doctor that I’ve had over the years that I have this condition and have received no help at all. I finally read about it online, and now I take an antihistamine when I get really chilled. I used to have the hives […]

I think I’ve finally found an answer…after trying absolutely everything, I’m getting the best results yet from sweat therapy. What I have been doing is boiling a pot of water on the stove and putting my head and upper body over the pot with a towel over my head and I have been sweating like […]

Do leg cramps have anything to do with cholinergic urticaria? I got cholinergic urticaria like 4-5 months ago. I play ball occasionally, and it has been really tough with heat hives. Because I don’t sweat like I used to before CU, I barely played ball. Never have I gotten leg cramps playing basketball. So ever since cholinergic urticaria, I […]

I think we can all agree that alcohol makes everyone’s cholinergic urticaria (heat hives) dramatically worse afterwords. It makes CU much more intense and painful. But I was wondering: has Marijuana made anyone’s hives worse similar to alcohol? I have heard some people on cholinergic urticaria forums saying it doesn’t effect their heat hives, and it calms them down […]

Does anyone have any info on cholinergic urticaria and high altitude? Since moving to the mountains at 10,000 feet I have developed cholinergic urticaria whenever my body temp rises. But going down to lower altitude, 6500 feet, it never happens. Thanks, Nathan

Im going to keep this brief, and without going too much into my personal life. I have been searching for an answer to my hives for over 10 years. I have tried all the medicines (steroids, antidepressants, antihistamines), all the diets, all the blood tests. I also had dozens of doctors that could never pinpoint […]

Hey Guys, I forgot the last time I’ve posted in the forums. The last time I checked, it was around 2012 (way before this site update). I appreciate Hivesguy for keeping this site up to date for us CU Sufferers. My brief story: I’ve had cholinergic urticaria for almost 9 years now. This horrible skin problem began […]

Hello, I am a mother of twin 5 year old boys who have all the energy in the world. I love them and they keep me very busy. About a week ago one of my boys broke out in hives pretty bad and I have never experienced hives before. So I made an appointment with […]

Okay I don’t want anyone getting their hope up too high. I’m not even sure if this medicine is even the reason why my CU got much weaker these days. I still feel it sometime but it doesn’t hurt and doesn’t bother me. First off, I want to mention that I’ve been losing a lot […]

I have a rule about not searching for medical symptoms online. Easiest way to scare yourself silly short of playing a horror game at 3 a.m. with nobody home and the sound up–especially if you have a huge cancer risk in your family . But after enduring five months of red rashes across my knuckles, […]

Hey there all of you hived up people. I’ve recently taken Zyrtec and it made my hives explode. Does anybody have an antihistamine that doesn’t affect us and make us covered in hives? -Ali

Hello lads. I discovered this place some months ago and along with another (medhelp forum), I kinda found some conditions and a treatment. When my cholinergic urticaria started, I was finishing cram school. At that time I had the following: Hard stress because I was running out of time to finish. Heavy sugar diet, like coke and some cookies called sponch […]

Hi. First of all I want to congratulate the creator of this very informative and helpful site. I wanna ask a question. Are there researchers / universities studying cholinergic urticaria, or are we limited to live with this frustrating disease? -mano2121

This blog has been so helpful in my cholinergic urticaria adventure. I have never been officially diagnosed with “CU”, but it matches up with just about everything I have read on the internet. I started getting itchy all over and developing little red welps all over my body about 6 weeks ago. Ever since that day, any […]

This post was submitted by a forum reader. You’re probably tired (really tired!) of these hives that attack you suddenly when walking on the street. How can we describe the attack? Bees huge attack? Maybe that’s the closest description. Does this sound familiar: Itchy red skin, extra sensitivity to sun and elevated temperature, you probably […]

For 5 years I’ve struggled with this annoying as condition. I used moisturizer and Allegra/fexofenadine to combat it under the guidance of my doctor, but of course this is only a band-aid fix for the real problem. Among CU, I’ve struggled with IBS, depression, anxiety, sinusitis and hay fever and chronic fatigue (where I need […]

Hey, So, today (Feb 25, 2015), I purchased all the products for my diet and lotions etc. for my extreme condition of cholinergic urticaria. I’ve been having them since October of 2014 and it is very bad. I went to the Doctor, and all they did was tell me to take antihistamines. I don’t want to take them at all–I want to […]

Hello, I have cholinergic urticaria, and I’m left handed. I was just wondering if the other people who have cholinergic urticaria are left handed as well. Thanks, Hamza F.

I think I had scabies last autumn. Well I’m pretty sure I did, as my son did and I had similar symptoms. I used masses of permethrin cream and some other stuff and think I over did it. Basically it’s a pesticide and I’m wondering whether it has done something to my skin and I […]

I had cholinergic urticaria for more than 2 years now and nothing worked for me except for the sauna treatment. I have a portable sauna in my apartment I use it everyday. I wake up turn the sauna on take a shower then go inside the sauna. However, the last couple of days I didn’t take a […]

I study medicine at University so I have a bit of medical knowledge. I have had this disease for almost three years now. I am a really healthy person who has no Eczema, Asthma, and have no other form of Urticaria or any food or environmental allergies. So basically in the summer of 2012, I […]