Ok, so after dealing with cholinergic urticaria for over 2 years, trying things from sweat therapy to wearing a sweater, all the time I think I’ve stumbled across why this really happens to me: moisture. I have come to believe that I developed cholinergic urticaria because of hot, long showers drying out my skin (preventing sufficient moisture). […]
At least I know what I’m experiencing for the past three years!
Having this kind of allergy is really hard because you have no control of it, especially when it comes to emotions and sweat. My boyfriend used to surprise me all the time, and for every surprises there is an allergic reaction because of my emotions lol! Anyway, I am a mountaineer for about two years […]
Anaphylaxis from Cholinergic Urticaria?
For the past 6 years, my 16-year-old daughter has had episodes out of nowhere of what they are now saying is cholinergic urticaria. It comes on so quickly, and takes over her whole body with a “hot” feeling both inside her body and outside, leading to chest tightness. We have been giving her the epipen for […]
Selective Cholinergic Urticaria?
So, I often get reactional rashes that appear very similiar to this on my arms and legs. They don’t occur all the time, which confuses me, but they often occur when I transition from one temperature environment to another (doesn’t matter if its hot to cold or vice versa, it happens in both), or change […]
Pretty sure I have cholinergic utricaria and its ruining my life
I can’t walk along the beach for more than 5 minutes without itching like crazy. I get itchy in awkward situations, during exercise and in hot baths. I have been staying in LA, and it seems to be worse. When I was in Greece and Tenerife (humid and hot) this summer on holiday, I had […]
Thankful I Know What I Have
I have had this condition for at least 13 years now maybe more. I have never known what has caused this. My Dad would take me to doctors but we never received any answers. So I have never thought much of this condition. So when people would ask what was wrong with me, I would […]
Possible help to alleviate hives (nettle capsules)
Nineteen years ago, I had an episode of chronic hives. They have just appeared again, and while searching for solutions, I found this forum. I thought I’d share past experience. Similar to many of you I tried various doctors and did acupuncture , Chinese herbs, allergy meds, Prednisone, etc. (which sometimes gave temporary relief, but hives continued to […]
Foundation or Charity
I sincerely agree with the forum leader’s perspective on a cholinergic urticaria foundation or charity. How much money is poured into heart disease, cancer and diabetes research when we already know that lifestyle changes can bring cessation to the vast majority who suffer with these sicknesses? Each sufferer of cholinergic urticaria has to take responsibility for their own […]
Steam Room for Hives?
Hello, I was wondering if using a steam room would be good or bad for cholinergic urticaria (heat hives)? Thanks in advance, -Simon Reply by Hivesguy: Simon, Thanks for your question. Steam rooms (aka saunas) can make the body become warm quickly, which does help some individuals with cholinergic urticaria to sweat faster and minimize […]
Cholinergic Urticaria in Autumn/Winter?
Hi all, I have this disease since more than one year. It appeared on September 2014 after a single stressing event to which I was not prepared. I went to a lot of dermatologist and allergist, prescribing me different antihistamines, but it’s not related to histamine level since in summer when I take no meds, […]
Can a Dermatologist or Allergist Determine My Cholinergic Urticaria Cause?
Hello, Am I better off going to an allergist or a dermatologist to have one try to determine what is causing my cholinergic urticaria? Can someone please tell me? Thank you, Donald
Allergy Testing for cholinergic urticaria?
I’ve had cholinergic urticaria for a few months now, and I really think I’m having an allergic reaction to something I’m eating. I’ve been keeping a food journal and trying to figure out what could be causing the problem. Should I get an allergy test? Have any of y’all had success going that route? -Mateeah
Sauna Recommendations
Hello, Thanks hivesguy for the website and book. I feel like I’ve learned a lot about a frustrating condition. I’m 50 and have had hives for probably 15 years. I’m trying to find answers. My hives usually start as soon as the weather starts to turn colder. Don’t have much trouble in the summer but […]
Niacin Build-Up or Gilbert’s Disease
I follow this site a few times a week, and I post every three months (ish). I’ve suffered from this terrible condition since July 2014, when I arrived back from holiday in the US. At first it was passive heating, where I would need to exercise to suffer from a reaction. However, it’s steadily progressed […]
The day urticaria left me alone
It is not easy to figure out what the triggers are. Everyone has a different trigger. First, we have to understand what causes the break out of hives. There are a few factors involved: preservatives, pesticides, hormone imbalance, acid-alkaline imbalance, environment, diet, lack of exercise and stress. When you are having a break out of […]
Do I have cholinergic urticaria? This is ruining my life…
Hi, you can call me Buzz. I’m 24 years old, not entirely sure how to start this, but I’ll give it a shot. About 2 months ago I randomly started itching all through my entire body. To be fair, I thought nothing of it. I figured I would shower and all would be good. I showered and slept, […]
Not sure what I have–please help!
About a month and a half ago my back, chest, neck and arms broke out with little goose bumps. At first I thought they would just go away. But then I noticed that whenever my body temperature rises, they itch uncontrollably–not so much itch but feel prickly. This happens if I exercise, feel anxious, get […]
Itchy Girl (with Cholinergic Urticaria)
I’ve never had any issues with my skin, really. When I was younger, it was always fine. I used to get a rash on my body of brown patches occasionally when I hit puberty, especially if I over heated. It would generally occur in the areas I sweat (under the breast, on my back if I slept […]
Cured Myself Easily with this Method (Exercise Therapy, by Abdul)
Hello all, I am a 21-year-old male who has been fighting this condition ever since I stopped playing intense sessions of basketball daily at the age of 18. I am glad to be sharing you my method with the hopes that it can help other sufferers. I have been doing experiments weekly to see how […]
Cholinergic urticaria at onset of common cold
I started showing the cholinergic urticaria rash about 2 or 3 days after the onset of a common cold. The first few days the rash is quite red and hot, but never itchy. I feel a bit feverish when the rash first appears. The rash usually appears on the inside of my arms at the elbows followed […]
Cholinergic Urticaria Gone After Eliminating Gluten Thank You!
I bought your book. I took your advice and gave up gluten and my symptoms have almost disappeared and it’s only been a week!! Thank you so much. I don’t eat much dairy and have been trying to go vegan. I went cold turkey and quit gluten I was miserable but thanks to you and. […]
My experience with heat rash (hope it helps someone out there)
I grew up experiencing this heat rash throughout my entire adolescent life. I’m 49 years old now and I still get the itchy feeling after a hot shower. About 15 years ago this same rash came and never left. I was shocked! The entire time I had experienced this, it always disappeared after about 30 […]
Exercise-Induced Anaphylaxis or Cholinergic Urticaria?
I’m a 19 year old female, I’ve been experiencing hives and itchiness when I work out. I recently purchased and read the e-book on this website, and was struck by what it said – “The main distinguishing characteristic of this disorder is that people suffering with it experience symptoms when exposed to an active physical […]
Dyshidrotic Eczema on hands and fingers
Hi! I’m writing to explain how my eczema has also completely gone. In my case it has been relatively simple. At the same time I started with cholinergic urticaria, eczema and itchy bumps appeared on my fingers and hands. They itched a lot and they also suppurate. Then my skin was so dry and cracked. […]
DAO Level and Cholinergic Urticaria
Hi! Has anybody measured DAO level in blood? The results were useful for cholinergic urticaria? Thank you! -Anna
Anaphalaxsis Reactions?
I’ve been suffering from anxiety/heat hives since I had a miscarriage in March. I have always had anxiety disorder and anhidrosis. I kept checking into urgent cares and ERs, and every day I still get painful, itchy hives. I stopped drinking alcohol and would keep getting outbreaks but they lessened somewhat. Mine have no very […]
My Experience with Cholinergic Urticaria
Hi everyone, I’m a 30 year old female who has been diagnosed with Cholinergic Urticaria from my dermatologist about a year ago. I’ve suffered 3 severe episodes of these hives since I was 26 years old. At first, I didn’t know what was wrong with me. I did endless searches online describing my symptoms and […]
My 3+ Year Experience with Cholinergic Urticaria
Hi Ben, So grateful you created this community to learn from one another and comfort each other in our respective journeys. God bless, you. I’m a 26 year old male and I’ve been working to overcome pretty severe cholinergic urticaria, anhidrosis, neuropathy and a condition called muscle rippling disease for the past 3+ years. The […]
Cholinergic Urticaria for 20 years…
I have had cholinergic urticaria everyday for twenty years. I have been on steroids, antidepressants and antihistamines to treat this terrible condition. I am just on the antihistamines now, and avoid extensive exercise, but try to walk as much as possible. I have lived most of my adult life without people noticing, as I start my days off […]
Hives Cure in Progress Thanks to Diet
First of all, huge thanks to Ben for making such an accessible resource and for all his work. After 6 months of worsening hives I decided to go on an allergy elimination diet. I removed all common allergens and ate only white rice, non-citrus fruits, rice milk, kidney beans, lentils, sweet potato, broccoli, lamb and […]
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