Hello, I am a 22-year-old, in college, and have just discovered there was a name for my condition, which led me to this site. I bought the book, instantly, and read it on my way home (Sunny Florida) were I am about to spend my time in the sun. This book was so helpful! And […]
Cholinergic Urticaria Without a Noticeable Rash (and a Story)
I’ve been experiencing what I’ve deduced to be heat hives since the age of thirteen. It started a few weeks after I abruptly stopped taking an HGH Medicine named Genotropin. When the first time symptoms hit it felt like an odd tingling sensation all over my body except it didn’t hurt. Whenever the summer of […]
Still walking through misery (slightly better)
Hey guys. It’s been a while since I last posted an update about my health. So as I mention every thread, my cholinergic urticaria started during the ending of autumn and starting of winter, I thought it was because of steroids, but now I realised that it has probably have to do something with puberty, […]
Would it be okay to double dose on antihistamines on a night (10mg each)
Hello. Would it be okay to double dose on antihistamines on a night (10 mg each)? As a bit of context to my question, I take 10mg of cetirizine every night, but in all honesty, it barely works. Now later on in May I’m flying to Ukraine to watch the Champions League final, which is […]
How do I survive the summer heat with cholinergic urticaria
I have this heat rash for about half a year now, and it’s getting hotter and hotter. (I live in Japan.) I can’t even walk from my house to the train station and from train station to my school without getting attacked by heat rash anymore, and it’s only 20°!! I can’t imagine what my […]
Bilastine a game-changer for me
Hello everyone. Like many of you, I was struggling with this and decreased quality of life (and bordering temporary madness at times when it was at its worst on busy trains). exercise did it. Stress did it. I’d almost feel the sensation just attack my back, and I’d know soon the nerves would flare up […]
Cholinergic Urticaria and Period Pain?
Good day fellow sufferers of cholinergic urticaria. My name is Andrew. I am between the ages of 15 and 18 and am currently schooling in England (my native county) and have been living with a diagnosis of cholinergic urticaria for over year as of this posting. I experience attacks daily, often minor; however, I do […]
Cholinergic urticaria attack whilst simply walking?
Hello everyone. I was just wondering if anyone starts to feel itchy and get hives simply by walking outdoors for more than about 1/2 a kilometre. I’m 16, and I’ve had Cholinergic Urticaria for about a year now. I walk back home from school every Monday, and it’s a distance of about 2 miles. I […]
Cholinergic urticaria and body hair reduction?
Hi, everyone. Has anyone noticed a reduction in body hair with cholinergic urticaria, especially underarm hair? The hair on my scalp still grows normally, but I’ve noticed a reduction in my body hair. Do you think cholinergic urticaria has something to do with this? Thanks, -Anonymous
Could I have cholinergic urticaria even though I don’t have “small” or “pinprick” hives?
Hi. I have been dealing with something for the past 2 years I’d say, and I think I might have finally figured it out. However there is something I’m still unsure about. Around two years ago I started getting this rash across my knees that was incredibly hot. It was also quite “painful.” However, I […]
My Experiences with Cholinergic Urticaria
I am assuming what I have is cholinergic urticaria or something similar. But its root causes may be a result of immune system problems which go further back. Many of the symptoms and remedies described by others on this forum mimic what I have encountered. Hopefully my experiences may provide information or help to others. […]
Cholinergic Urticaria as a Medical Student (Physician Associate)
Posting my experience of CU and offering advice to those with the condition as it not only affects sufferers physically but also psychologically. Talking with those who have the condition and understand what you are going through is a massively help. My Cholinergic Urticaria (CU) started when I was 13 years old, I am currently […]
How many antihistamines can I take for cholinergic urticaria?
I have been suffering from cholinergic urticaria for the last 3 months. I usually get severe prickly sensation in my back and legs after any physical exertion (walk, cycle) or temperature change (cool to warm). I work in NY city and have to switch 2 trains and a 15 min walk every day to and […]
Cholinergic urticaria and tap water
Hi guys. I have had cholinergic urticaria since moving to a new location in 2016. Recently I had a tour for few days and all through the tour I did not experience CU. On the day I returned to my base city, a friend of mine hinted that drinking water from the tap causes his […]
Finding Relief for Cholinergic Urticaria
I wanted to share my relief and gratitude with Hivesguy and this community, as well as give some more hope for individuals. I’ve posted twice before, once about “what can I eat” and another time when I first found this site titled “18-year-old student” or something like that. The previous post made me want to […]
I am walking through hell
Hello once again, I had previously submitted a few threads before here, updating my health status, sharing my story, asking related questions and so on, but right now I am literally walking through hell and I had never felt worse. This time this thread is going to be much longer than my threads before, so […]
Suffering badly from prickly heat
Hi guys, I am excited about this post as every reader will actually understand what I am going through with the physical hives and most I’m sure will understand the mental aspect of the hives. I am based in the UK and I’m certain the weather contributes to the following: In December I entered a […]
Cholinergic urticaria ongoing suffering
Hello, I have been reading the story of many people on this forum for a while and feel like its time for me to share my story. I first started getting the symptoms of cholinergic urticaria at the age of 17. At first it was a slight prickly/itchy/burning sensation I would get in my hands […]
My Hivey Evolution
Hey. I just wanted to say “Hi” to everyone here and introduce myself. I am Stefani, 53 years old, and I’ve had hives for 23 years (onset at age 30). They started out as exclusively cholinergic (only heat/exercise) and, ironically, shopping related (the stress of trying on clothes, one of the many reasons I hate […]
What Can I Eat?
I’ve been on the diet for the last few weeks, and my main problem is that I’m always hungry. I’m on campus, and I eat at the diner twice a day. But when I don’t have my meals, I’m starving. I’ve only eaten rice, chicken, sweet potatoes, and broccoli so far. My question is really […]
I believe I found the cause of my hives (candida)
I’m 16 years old and I’ve had hives for a few years now. I discovered that I had them around 13 years old. I was in a gym class, and as I was working out, I started to feel them on my legs. Later that day, in a classroom, I started to feel them on […]
My cholinergic urticaria has been gone for about 4 years
My cholinergic urticaria started back in the early winter of 2013. I thought it was just going to be a common Winter’s itch, but I was wrong. Dead wrong. I remember coming to this site (and actually posting my then-current story in this forum) to help self-diagnose my condition (I eventually got officially diagnosed by […]
When does cholinergic urticaria go away for you?
Hello. I’d like to address this thread to those who only have cholinergic urticaria during the winter. Since my cholinergic urticaria started during ending of autumn and starting of winter, I still have hopes that it’s seasonal and it will go away. It is only the 10th day of spring, so maybe not so soon, […]
Having Hope with Cholinergic Urticaria
I’m a 24-year-old who has had cholinergic urticaria for about six months now. It is horrible when my body warms up, whether it’s from the sun or when I get nervous, or even walking through stores. I’ve take antihistamines like hydroxyzine and cetirizine, and it doesn’t seem to help. I’ve tried sweat therapy in steam […]
Is dry or humid heat better for cholinergic urticaria?
Hi there. For sweat therapy purposes, or even just going on holiday – is dry heat worse or humid heat for cholinergic urticaria? I suppose it’s like comparing a sauna to a steam room. Are there any types of heat which might be difficult with cholinergic urticaria? I know someone on the forum mentioned they […]
Have These Histamine-Lowering Foods Helped Your Cholinergic Urticaria?
So I’ve had cholinergic urticaria for 10 years, and I’m constantly on the look out for anything that may help alleviate symptoms. I’ve recently read a book which advocated a whole host of foods, herbs, and supplements to lower histamine levels, and I wonder if anyone on here has tried and had benefit (or not) […]
Attending Indoor Concerts with Cholinergic Urticaria
So, for my birthday, I got tickets to Metallica for when they come to my town in this winter. My question is how hot does an indoor concert get? Are there areas of the arena that get more hot than other parts? The arena is around 13-14 thousand people, I think. Are there any steps […]
We need to raise attention on CIU
People, even doctors and health professionals, dismiss CIU as nothing of major concern for most people, even going as far as to tell them they are either imagining things or supplying them with antihistamines and then hoping they wont have to deal with these people (mainly, in my opinion, because doctors don’t know what this […]
Realizing this Condition (Cholinergic Urticaria)
Hey everyone, what a relief it is to know that there are other people across the globe battling this stuff and sharing their experiences on this forum. Let me start by saying that this pesky cholinergic urticaria has been bothering me now since the start of December. I always remember walking into class quite quickly, […]
Cholinergic Urticaria Diet?
Hello. I haven’t been formally diagnosed with cholinergic urticaria but have all the described symptoms, with the exception that my hives are never raised (they appear, but as dots under my skin). I have seen a dermatologist, neurologist, and an allergist, and no one has had an answer. The dermatologist said it’s neurological, neurologist said […]
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