Hey everyone. I just wanted to start off by saying I am utterly heartbroken with stories I’ve read with people who have been suffering from urticaria. Heartbroken because that’s how I feel with myself. I am suffering urticaria as well. I also want to give out some good energy to everyone too because sometimes I […]
Chronic urticaria in “remission”
For over 5 years I suffered from chronic urticaria. I started out having only delayed pressure urticaria and eventually progressed to full blown chronic urticaria everyday. Like everyone else reading this (I’d assume), I’ve been to more doctors and have had more test done with no results. I depended on meds everyday. Well I haven’t […]
Use Greenhouse For Sweat Therapy
Hi everyone, this is just something that has REALLY been helping me recently (in hot months) [Before you try this consult your doctor as very very few people sometimes experience anaphylactic shock with some exercise/heat] I’ve really wanted to try sweat therapy but have no sauna/gym near me, I’ve tried running and intense exercise, all […]
Aggravation (Rant)
I have only had cholinergic urticaria for a year, and it drives me insane to know that there are people out there who’ve had it for 9 years – it’s crazy. It’s simply barbaric what we have to go through. I’ve woken up at 4 AM unpleasantly with my belly, back, thighs, and legs burning […]
Cholinergic Urticaria is Getting Worse
So backtrack a few months around December, I would be able to sweat but after I would itch a bit and it was fine, lasted maybe 2 minutes. But this last month, I think it’s gotten worse. I can’t go in the sun, I always have a fan going in my room, and I can’t […]
Is it safe to exercise if you have cholinergic urticaria?
I’ve had cholinergic urticaria for a while now, which has made working out really hard for me. I’ve went to my doctor, and my doctor said it was alright to exercise. But my symptoms are also getting worse, so I’m worried exercising will contribute in making it worse. I’ve tried an allergy elimination diet, which […]
Hives are getting better!!! I SWEATED!
Hello. It’s the 22-year-old girl who wrote in the forum weeks ago. Okay, so I went to the beach and blew up in HIVES! I had to get out the water and lie down with a towel for shade. The rest of the day I had huge hive bumps that took hours to go away, […]
Heat trigger hives – 9 years and getting worse
Hi. It all started with a sore heal during a beach holiday in Thailand over 9 years ago. I used to love the sun, but it has become my enemy. Year in, year out my condition seems to get more severe – I can have a breakouts anywhere on my body or from just having […]
What should I do about my cholinergic urticaria?
Hi, all. Right now I don’t know what to do about my cholinergic urticaria. Since it’s summer, I’ve been feeling awful every single day because of the very hot weather. I’ve checked in with a doctor, and I’ve been taking antihistamines. And while they do help with the itching, they don’t help with preventing the […]
Cholinergic Urticaria Update from Hivesguy
Hey, everyone. It has been a while since I’ve made an update video, so I thought I’d update everyone by answering a few common questions. Are my hives still gone? Yes, absolutely! I can work out, sweat, enjoy hot weather, wear a suit to church, and so forth without breaking out in hives. I don’t have […]
Should I be concerned about my symptoms?
So I’ve had cholinergic urticaria for many years now, and it usually doesn’t bother me. But recently it seems like I’ve been experiencing it more frequently and more severely. A few weeks ago, I developed a total rash throughout my body while taking a hot shower. I also felt somewhat lightheaded, and I was wheezing […]
Should I try sweat therapy?
I have had cholinergic urticaria for 6+ years now, and even though it’s usually tolerable during the winter, during the summer it becomes torture for me. I get constant breakouts every single hour of the day (sometimes while I’m sleeping too), which basically is altering almost every part of the day. As soon as I […]
Mild case of Cholinergic Urticaria?
Hi guys, Just wondering what are everyone’s experiences with being diagnosed. Do you think there’s any point in seeing a doctor over a potential mild case? So obviously I haven’t been diagnosed, but I’ve stumbled across this condition on the internet and think there’s a possibility I may have it. I don’t want to fall […]
Stress is the trigger/cause!!
So I’ve been suffering from cholinergic urticaria for about two years now. I researched into this pretty quickly as I started feeling horrible as I would get triggered by everything, even starting a conversation with someone! Apparently that raises the body temp enough. No exercise, no more spicy food. Horrible. Then I came across this […]
Switching to Natural Deodorant Cured My Hives
Alright, so until recently, I’ve been dealing with this issue for four years. And it might not work for everyone, but it has literally CURED me. I brought up the issue to my boyfriends step mom, and she asked me what deodorant I use. I said the normal store brand, the one that has all […]
My Treatment for Cholinergic Urticaria
I have suffered from cholinergic urticaria for 2 years before I was diagnosed and treated just a month and half ago. The only thing that I could figure that changed was that I quit allergy shots before my heat rash started. Luckily the allergy office that I went to was also a research office that […]
Does cholinergic urticaria get worse over time?
I’ve had cholinergic urticaria since I was very young, and my symptoms usually range from a strange splotchy-looking rash to itching, to slight swelling. But over the years it seems to be getting worse. Sometimes now if I’m out in the heat for too long I’ll start to have trouble breathing or I’ll begin to […]
Burning feet
Hello, I have posted on here before regarding my symptoms. Everything literally started over night after I had carpal tunnel surgery. I won’t recap all of that but my symptoms are anytime I get warm I get a reaction that feels like a thousand bee stings. It never itches and only shows in dots on […]
Cold Weather Causing Urticaria?
I have had cholinergic urticaria for a few months starting in January. However, I recently found 80-90% relief from my urticaria once spring hit and the weather started heating up to 70 and 80 degree weather. I would rarely get reactions and they would be less intense. My urticaria has been like this for all […]
It is driving me crazy.
Hi, I am from Philippines and I am suffering from hives for almost 5 years now ( I think). I experienced it first when I was 15. I got hospitalized ’cause I can’t breathe, but after that incident I haven’t experienced it for 2 years. When I turned 18 I’ve experienced it again. We’re just […]
Just diagnosed with CU, drowsy from meds
Hello everyone! I’m so glad I found this awesome resource and community. After years of having itchy, painful rashes with no answers from doctors, I got diagnosed with cholinergic urticaria a few days ago. I got put on Zyrtec twice daily, on top of the Singulair once daily I already take for seasonal allergies and […]
I am sweating again, no itching!!
Hey guys, I had almost lost my hope that I would ever be writing this thread any time soon, but it finally happened. If you’re wondering who I am, my last two threads were (Still walking through misery (slightly better)) and (I am walking through hell). So I was almost certain that my cholinergic urticaria […]
Swollen eyes after physical activity or hot weather
It’s been about a year now that I have been getting extremely swollen eyes. It it all started with hot showers. I thought I was allergic to my shampoos or body products first. After taking a shower my eyes would swell up really badly like an allergic reaction, and at times they would turn really […]
8 Years and Counting with Cholinergic Urticaria
Hello all, I’ve just found this forum and its a relief! I’m a 23 y/o female, and I’ve been suffering from cholinergic urticaria for 8 years now. The onset in the summer of 2010 was fast and extreme. I went from being symptomless to laying on the beach blind and covered in these hives. Let […]
Hives after Chemotherapy for Hairy Cell Leukemia
Just wanted to share my experience. I tried to comment to two existing threads on “Hives after Chemo” to keep information in a consistent place but it appears comments are closed after a certain period. I was diagnosed with Hairy Cell Leukemia in August ’17 and immediately was treated with a seven day continuous drip […]
Could Duac Gel be Causing My Cholinergic Urticaria?
Hello. So I’ve had my cholinergic urticaria for about a year and a half now, which is around the same amount of time I’ve been using Duac gel since (on/off) in order to clear spots away on my face. Now for the past 6 months or so I’ve consistently been using Duac gel daily, and […]
Dupixent for Eczema
Although my skin has been diagnosed differently each time, the latest dermatologist is convinced it is eczema. To that end he has recommended a shot that is relatively new on the market for extreme eczema sufferers, called Dupixent. I only have a bad eczema breakout once or twice a year; however, many of the symptoms […]
Teen dealing with CU (and how I successfully manage it)
Hey, I’m a 17-year-old dealing with cholinergic urticaria (but it is getting better!!). First I’ll be talking about my experience and then ways I manage with CU. The first reaction I remember was in a mall around January (the month it really starts getting cold where I’m from). I had a heavy coat on and […]
It’s finally going away…
So I have had cholinergic urticaria for just over 2 years now, and I believe I am now entering my second Summer. It started out when I hurt my back and did no activity for 2 weeks. Finally when I went back to the gym, I felt itchy, and it got worse day after day. […]
Heat rash from just physical contact?
I am 20 years old in Canada. I believe it’s been 2 years since I’ve began experiencing heat rashes from mentioned causes, stress, physical activity, temperature, etc. However, does anyone else experience hives from being touched by someone in one spot for too long? For example, when I cuddle with my partner, I receive very […]
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